ms-sillyak-screwed
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Latest Celiac Disease News & Research:
Everything posted by ms-sillyak-screwed
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ARCHIVED Beware Of Soy!
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Related Issues & Disorders
"""QUOTE(Carriefaith @ Mar 29 2006, 10:17 AM) Like the brazil nut genetically modified soybeans.""" Is this really true??? If this is a fact -- it explains why I get a reaction to BrazilNuts. -
ARCHIVED South Florida
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Introduce Yourself / Share Stuff
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ARCHIVED What Do You Do When You Get Glutened?
ms-sillyak-screwed replied to coco-loco's topic in Coping with Celiac Disease
I looked at the vitmins in RED BULL and I was suprised. -- niacin 100%; vitamin b6 250%; vitamin b12 80%; pantothenic acid 50% -- I know when I get a B-12 shot, it has folic acid and pantothenic acid too. The pantothenic acid makes a big difference for me. Like ChelsE said the caffene lifts her energy. I can see how it works. I'm just hypersenstive and... -
ARCHIVED Feeling Sick After Eating
ms-sillyak-screwed replied to KayJay's topic in Coping with Celiac Disease
I don't know anything about babies but I have read the best thing YOU can do is breastfeed them. It builds up their antibodies so they won't get celiac disease... Talking about babies I just posetd something about 'baby stuff' that might help YOU feel a little better. drink baby pedialyte when I feel bad I'll link it here. This was from a thread... -
ARCHIVED What Do You Do When You Get Glutened?
ms-sillyak-screwed replied to coco-loco's topic in Coping with Celiac Disease
Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link This stuff is a life saver for me. If I'm laying on the bathroon floor after a seizure and steatorrhea diarrhea that has me weak and frail I drink this stuff. It's like a miracle treatment. I keep a bottle un-opened... -
ARCHIVED Other Intollerances/ Allergies
ms-sillyak-screwed replied to lisaemu's topic in Coping with Celiac Disease
SOY is poison! This is a thread from awhile ago. Some people (in denial) still think it's good. You can judge for yourself. BE WELL! Open Original Shared Link Open Original Shared Link Open Original Shared Link -
ARCHIVED Feeling Sick After Eating
ms-sillyak-screwed replied to KayJay's topic in Coping with Celiac Disease
I was the same way about 5 years gluten & dairy free and then -- bam -- secondary food allergies and a thyroid problem. Some celiac's can't do dairy, corn, rice or potatoes... I can't either. For me the real poision is SOY. Some don't believe me because the mainstream and healthfood stores are still in denial. And some here know it's a fact. I know... -
ARCHIVED I'm New And Have Celiac And Graves Disease
ms-sillyak-screwed replied to Texas Celiac's topic in Coping with Celiac Disease
Texas Celiac -- Welcome to your new home away from home! I agree with everyone here. And I also have a thyroid problem. At first my endo doc wrote in my chart I was borderling-hyperthyroid, then she charted that I had Graves...then I developed a HOT NODUEL on my hyperactive thyroid. I also had the RAI treatment and am in the same situation as many here... -
ARCHIVED What Do You Do When You Get Glutened?
ms-sillyak-screwed replied to coco-loco's topic in Coping with Celiac Disease
NUTRITION FACTS & INGREDIENTS Red Bull Energy Drink Ingredients: carbonated water, sucrose, glucose, sodium citrate, taurine, glucuronolactone, caffeine, inositol, niacin, D-pantothenol, pyridoxine HCL, vitamin B12, artificial flavours, colors Nutrition Facts: Serving Size: 8.3 fl. oz Servings per Container: 1 Amount per serving: Calories... -
ARCHIVED Accidental Glutening Again
ms-sillyak-screwed replied to a topic in Coping with Celiac Disease
nini -- I know what the seizures are like, I get them too. I wouldn't know if I get them in my sleep. I'm all alone. But I will say they are frightening to say the least! Be well! -
ARCHIVED What Scares Doctors? Being The Patient
ms-sillyak-screwed replied to Claire's topic in Publications & Publicity
Sunday, Apr. 23, 2006 Q: What Scares Doctors? A: Being the Patient What Insiders Know About Our Health-Care System That the Rest of Us Need to Learn By NANCY GIBBS, AMANDA BOWER It's easy to imagine that doctors don't get sick. Surely the hygienic shield of the sterile white coat guards them from ever having to put on the flapping gown and flimsy... -
ARCHIVED Larry King Live
ms-sillyak-screwed replied to Rikki Tikki's topic in Publications & Publicity
If no -one wants to write to her and ask -- I will... Just let me know... I remember her story and read her first book about the boat the 'trashman'. I know what it feels like being at the mercy of the ocean. I'm a boater, have been my whole life, learned to swim before I learn to walk. And I've made the same trip from the NE to south Florida by yacht... -
ARCHIVED Chewing Gum Speeds Healing
ms-sillyak-screwed replied to Claire's topic in Related Issues & Disorders
Open Original Shared Link It doesn't say it where I'm looking on their web iste, but on the outside of the label it is made with SOY in it too. Open Original Shared Link -
ARCHIVED I Hate This Disease
ms-sillyak-screwed replied to tiredofdoctors's topic in Coping with Celiac Disease
Lynne -- Sorry about the job... I'm going to speak for all of us here, "WE NEED YOU HERE!" If you were to take a job, even if your were doing consulting or something -- we all really need you here. You add so much to this site you help more people then you know. You have given so much to so many of us. God has a plan -- he want you to help us with celiac... -
ARCHIVED Larry King Live
ms-sillyak-screwed replied to Rikki Tikki's topic in Publications & Publicity
Thank you Patti for finding the transcripts. I just read the transcripts and wow quite a story. It is amazing to say the least, I remember when this happened back in the early 80s. I also read her first book. From what I can gather the person with celiac disease didn't come out on the show. This is what was said... ----------------------------------... -
ARCHIVED What Scares Doctors? Being The Patient
ms-sillyak-screwed replied to Claire's topic in Publications & Publicity
Thanx for the article it looks good... For some reason you must subscribe. And my computer won't allow me... Is there anyway you can copy-and-paste the article on this thread? ((((hugs)))) -
ARCHIVED I've Never Heard Of Celiac Or Dh, But Maybe That's My Answer...
ms-sillyak-screwed replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
They only stuck you 4 times? The test has 5 components... hope they did it right. Open Original Shared Link If they have a lot of patients with celiac disease ask to speak with one or two of them, or give them your phone number and have them pass it on. You'll see no-one will call you. ...cause they [all] lie! its all about $$$ mmc -- I pray... -
ARCHIVED Thyroid Problems
ms-sillyak-screwed replied to PreOptMegs's topic in Related Issues & Disorders
Hope I didn't chop-up everyone’s post. Thank you for creating this thread. I feel that there is a connection between celiac disease, thyroid and our hormones. I've tried to speak with my thyroid doctor and the gastro doc, but it's like talking to 'dead-air'. As a kid I was hyperactive and all of my life plenty of energy. I had a total hysterectomy in m... -
Open Original Shared Link This is side effectes and etc. I can't see what is in it like binders. She said she was making rice when it happened. So of us Celiac's have a problem with other things like rice, corn, soy and etc... Open Original Shared Link here we go -- it has sugar, corn and dairy in it. I don't know if you have a problem with them. And...
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ARCHIVED Celiac In The Florida News Again Soon...
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Publications & Publicity
I'm disappointed I can not eat this -- I can't eat nuts, corn, dairy or soy. The author says that these things are bad for many of us, but goes on to give the recipes anyway. They just don't get it do they? I really have a problem with SOY or their use of soy.... I will post the article below. -----------------------------------------------------------... -
ARCHIVED Gluten-eaters Annonymous
ms-sillyak-screwed replied to MallysMama's topic in Coping with Celiac Disease
I miss Italian food and my family! Never liked Krispy Kreme donuts hard-like-rock. Yuck! Give me a cannolli and capuccino anyday! Just not today... -
ARCHIVED Smithfield Smoked Pork Chops
ms-sillyak-screwed replied to Lisa's topic in Gluten-Free Foods, Products, Shopping & Medications
Call the company and ask questions. Ask if they use gluten in there other products? Because you can be cross contaminated with what they are running in the lines to produce the foods. I had the same thing happen another company. I called and found out what was in the ingredients and if it had natural ingredients or natural flavoring it will pose a problem... -
ARCHIVED Dairy/casein Intolerance
ms-sillyak-screwed replied to BamBam's topic in Gluten-Free Foods, Products, Shopping & Medications
I'd beware of SOY. All the non-dairy alternative with SOY caused me a huge problem with my thyroid. I was living gluten and dairy free for 5 years but ate lots of soy. It's in everything and you have no idea. There are many threats here pro / con on soy. I believe it's poison. Watch out for those flavored soy creamers they have hidden things in "natural... -
ARCHIVED Flavors + Coffee
ms-sillyak-screwed replied to Elizabeth-Elindel's topic in Gluten-Free Foods, Products, Shopping & Medications
Anyone have any secrets how to flavor their coffee the natural way? I have been making my flavored coffee from scratch. What I have been doing is adding things to the coffee grounds before I brew the coffee. Like I have been adding a few (3 or 4) of the little star anise to it. You can use fennel too. Its so so good. You can use cin·na·mon too. And I...