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GFshay

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Everything posted by GFshay

  1. GFshay
    I also experienced accelerated hair loss after going gluten free and no one has any ideas. It's worth it to feel so much better, but it's annoying and frustrating. I went from the occasional spot or two to shaving my head and wearing a wig. All my nutrients are good so no one knows what's up. I'm thinking about starting some sort of vitamins but I haven't...
  2. GFshay
    I had alopecia in a mild form all my life, but within the first year of being gluten free I lost almost all my hair! It's been very concerning and doctors have no idea why it's gotten so much worse. I don't want to scare you because I think my case is very strange. I also have some slight elevations in TSH so my doc thinks maybe a little hypothyroidism might...
  3. GFshay
    Sorry you're not feeling well. Peppermint tea or Altoids could help with the "lumpy" sensation in your throat and also perk your brain up a bit. Aloe juice is a lifesaver to me for any stomach upsets (you can buy it at health food stores- just don't take too much at first- 1 tbsp or so). Sometimes getting out and moving a bit, like going for a walk, does...
  4. GFshay
    It sounds like your body is trying to tell you things aren't too good. If you were just feeling foggy, I'd suggest having more protein in your diet and being sure to exercise regularly (that helped me a lot). But if you're feeling a blockage or something, definitely time to go to the doctor. I wonder if that might be part of your fog-- it happens to some...
  5. GFshay
    I have had mild alopecia areata since I was about 6 years old and always dealt with it pretty well. I never had more than one or two quarter sized bald spots and they always grew back in after a couple months. Last October, I was officially diagnosed with Celiac and went gluten free. At my 3 month follow-up, we ran extensive bloodwork and I had no antibodies...
  6. GFshay
    I have had mild alopecia areata since I was about 6 years old and always dealt with it pretty well. I never had more than one or two quarter sized bald spots and they always grew back in after a couple months. Last October, I was officially diagnosed with Celiac and went gluten free. At my 3 month follow-up, we ran extensive bloodwork and I had no antibodies...
  7. GFshay
    I'm traveling to Montreal for a conference and need some help finding restaurants that are easy to order at (I'm going to be with coworkers who may not be planning far enough ahead for me to call and everything). I'm staying at the Hilton Bonaventure near the conference center downtown, and they were awesome on the phone and promised to have options for me...
  8. GFshay
    I am also curious how you all handle the FEAR of being glutened. I've been gluten-free for 4 months and feel generally great... but some days I get some stomach issues (probably nothing out of "normal" people's usual indigestion or something), but it makes me panic. When my celiac symptoms first got bad before being diagnosed a couple years ago, the first...
  9. GFshay
    It's so true that it sometimes seems amazing that the answer is so simple... even though it can be hard to stay safely gluten-free. I think a lot of us felt like hypochondriacs. Just to think about the fact that it wasn't all in my head makes me feel like crying out of relief. It's nice to feel justified.
  10. GFshay
    Has anyone found out about the gluten-free status of new Snickers Peanut Butter Squared? I'm dying to try it but haven't found any info yet.
  11. GFshay
    Did your box say "Gluten Free"? I bought a box of Cocoa Pebbles and it was clearly labeled on the side of the box. I'm pretty sure in order to label something gluten free a company needs to undergo significant testing and procedures. I would trust any that say "Gluten Free", barring any major mistake on their part. But I agree it could be the dyes or other...
  12. GFshay
    Yes I agree with gf_soph. I went gluten-free in October and I didn't start feeling significantly better until I finally went very simple and started reintroducing foods gradually. I was very very hesitant to cut out dairy, eggs, soy milk (other forms seem ok in small amts), coffee and black tea. But once I finally did, I started feeling amazingly better....
  13. GFshay
    5'7" and I was diagnosed just a few months ago. I was always a short child till about age 15. I would think bone loss/osteopenia/etc could be responsible for some people not reaching their full potential of height.
  14. GFshay
    Thanks so much for your responses. If anyone else has info on newly discovered sensitivities, please share! I do like Vanilla Almond milk... although I almost put it in mashed potatoes the other day before realizing that would probably be terrible. Maybe I'll need to keep some original on hand for cooking etc. I tried Aloe Vera Juice recently and found...
  15. GFshay
    There are lots of good resources out there for people coping with health problems, who might also have trouble feeling "in control" of their thoughts and feelings. It sounds like you think you are doing it on purpose, but it's also scary to be in that bad place when you get sick. If you really think you want to hurt yourself, I would look up a local crisis...
  16. GFshay
    I've been using Nasonex for my bad sinus allergies and it's a dream. However, my insurance doesn't cover prescriptions and it costs about $90 even with discounts and coupons from the pharmacy & manufacturer. So my doctor said we can try Flonase instead. Without thinking, my pharmacy gave me the generic: Fluticasone Propionate by Roxane. The pharmacist...
  17. GFshay
    I'm nearly at my 3 month mark of the gluten-free diet and have ended up cutting out all the predictable foods because I realized I was more sensitive to them too: dairy, eggs, coffee & black tea, some soy. My question is this: Why is it so common that we end up realizing we have sensitivities to other foods after taking out gluten? Is it because the...
  18. GFshay
    So sorry to hear you had an issue! Maybe the grill used to smoke the pork had some gluten? Or maybe it wasn't gluten at all and was just one of those bouts of bad indigestion? I've started to wonder if I'll ever know when I've been glutened vs. just got a bug or other "normal" issue. Hope you recover quickly!
  19. GFshay
    Yes, I'm sympathetic. You're right to appreciate everyone's thoughtfulness, at least! I got a handmade packet of amaretto hot cocoa and asked the person what ingredients were in it because I have food allergies. She told me ingredients like "milk powder, creamer, almond flavoring, cocoa poweder, etc". I realized after I asked her that I would have needed...
  20. GFshay
    So I finally sucked it up and started taking common problem foods out of my already-gluten free diet about 3 weeks ago. I cut out dairy, soy, and sort of by accident realized I needed to stop eggs and coffee (and now black tea too!!?). I've been making most of my food and having plenty of meat, nuts, veggies (cooked, mostly, since raw can be too tough on...
  21. GFshay
    I'm about 2 months in too and hit that same wall as you. I'm starting to finally come out of that depressed haze and seeing some light at the end of the tunnel. I was feeling alone, sick, undernourished, and generally bitter since I was trying so hard. That, after a month-long "honeymoon" period that made me think I might soon be able to fly. Well, that...
  22. GFshay
    I used to live in DC and my friend sent me this for next time I visit: Open Original Shared Link Looks pretty informative. I took my first trip over Thanksgiving and had a hard time feeling full and nourished when I didn't want to deal with a meal in a restaurant. I got glutened early in my trip and ended up eating in the room (with just a fridge and...
  23. GFshay
    I just gave up dairy (for now) and have lost weight with the gluten-free diet too (9 lb in 2 months...not good). I finally found a nutritionist who knew Celiac well, that is making a big difference. She said to focus on lots of protein and good fats, and to avoid soy if I'm still having GI distress. I'm basically pushing myself to eat meat, nut butter, and...
  24. GFshay
    I think it's good to allow yourself to feel the loss and stress that come with this disease. (I should preface this by saying that I'm a clinical psychology PhD student, so I'm biased...but somewhat informed). But I found I had a 1 month or so "Honeymoon Period", where I thought I was coping and felt good just to have something to help me feel better. But...
  25. GFshay
    Do they sell GI Revive in small amounts, or samples? I am curious to try it but worry I might have a negative experience and then will be stuck with a bunch. Has anyone had problems with GI Revive? I went into a Hi Health (vitamin/supplement store) and was completely overwhelmed by various enzymes, probiotics and different L-glutamine powders...
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