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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ianm
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ARCHIVED Finally I Have The Answer
ianm replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome. I don't have a formal diagnosis but it is quite obvious that gluten was the thing that made me so sick. I won't get a formal diagnosis because I refuse to eat anymore gluten. The disruption to my life would be too great that it is just not worth it. I've learned a lot from this group and hope you do too. -
ARCHIVED Attension Deficit Disorder And Celiac...?
ianm replied to Maso's topic in Related Issues & Disorders
It will take more than a month and cheating is not an option. You will be glad you did. -
ARCHIVED Our Journey's To Gluten Free
ianm replied to darlindeb25's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
All of my life I had felt different from everyone else but could never figure out why. I had very low levels of energy and had trouble concentrating. Because of this I was put into special education classes in school. The teachers would always say to me -
ARCHIVED Attension Deficit Disorder And Celiac...?
ianm replied to Maso's topic in Related Issues & Disorders
That "foggy head" got me put into special ed classes in school. I definitly think there is a very strong link to food allergies and ADD/ADHD and many learning disabilities. It would be like an out of body experience. I could see and hear what was going on around me but just could not connect with the real world. Frightening to think that I lived that way... -
A pill to reduce the problems caused by getting accidently nailed by gluten would be great. A pill just so I can eat crap is just plain stupid. I much prefer the lifestyle I am forced to live because of this disease. This disease took away so much from me but the lifestyle I am now forced to live has given me so much more. Doctors are so clueless about health...
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ARCHIVED Sick Since Going Gf
ianm replied to bklyn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Both of you are just going to have to give it more time. It seems that for a lot of us it took a year before we were "normal" and could say we felt healthy. It has taken a lifetime for your body to be damaged and it takes time for it to heal. Your body is also adjusting to a new diet and way of life. Keep at it because you will feel so much better in time... -
You're going to need at least three months before you start to feel better. That seems to be what most experienced. Your body is trying to heal and clean all of the poisons out of your body. It will be a good year before you can really say your healthy. There is no instant "cure" for this disease. Before going gluten-free I had all kinds of sleep problems...
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ARCHIVED My Dr. Says I'm Not Cd
ianm replied to motorchicked's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am another self diagnosed and there is no way in hell I will ingest gluten to get tested. I was so sick for 36 years before I found out what was wrong. I went to dozens of doctors and not one ever suggested celiac. They just wanted to write me lots of prescriptions which I refused or threw away. The past 14 months of no gluten have been the best of my life... -
As a former Catholic I am very dismayed at the approach the church has taken on communion. I inquired with several local Catholic churches about gluten free communion and there response was "No, that is not allowed." My response was "What do you think Jesus would do? Do you think that Jesus would force someone to eat something that would harm them?" When...
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ARCHIVED Had A Good Cry This Morning
ianm replied to CMWeaver's topic in Parents, Friends and Loved Ones of Celiacs
This disease is not the end of the world. It only means that they can't eat gluten. Be thankful that they found out at the age of 4 and not 36 like I did. By the time I found out this disease had nearly caused me to lose everything I had. I spent 36 years being sick everyday. I missed out on and lost so much because of it. Your children will not have to go... -
ARCHIVED Guess How Long I've Had It!
ianm replied to buluga's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome. I'm 37 and didn't find out what was wrong with me until I was 36. I knew something was wrong but the dozens of doctors I went to were useless and clueless. Since going gluten-free my life has never been the same. You will be glad you've come to this group and things will be so much better from here on out. Ianm -
I was so sick for so long that I just got sick and tired of being sick and tired. You have to really want to be healthy. I haven't had any real desire to eat gluten foods because I just don't want to be that sick again. You will find that the diet we have to follow is just not as difficult as it may seem at first. There are lots of good things to eat that...
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ARCHIVED Newly Diagnosed And Clueless
ianm replied to adorrell's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Before going gluten-free I was about 80lbs overweight, high blood pressure and was on the verge of diabetes. Since going gluten-free I am down to a healthy weight, normal blood pressure and no problems with diabetes. I was 36 when I found out what the problem was. At about the age of 30 is when I really started to feel sick. It was always a problem before... -
ARCHIVED Help! My Daughter Will Not Eat Fruit
ianm replied to lbsteenwyk's topic in Parents, Friends and Loved Ones of Celiacs
Certain high-fructose fruits do not agree with me. Any tree fruit like apples, pears, oranges, grapefruits, plums tend to come out as soon as they come in. Berries and grapes have less fructose and don't bother me in small quantities. You might want to try some different kinds of fruits. My son (9) is a very picky eater and will only eat 2-3 different... -
ARCHIVED Always Confused
ianm replied to christicrete's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The Atkins diet is what led me to discover my gluten intolerance. You will find that there are plenty of good things to eat when you go gluten-free. It is not nearly as limiting or as restrictive as it seems at first. I was so sick for so long that I gladly gave up the foods that were poison to me and I don't miss them. Keep at it because it is worth it.... -
ARCHIVED Depressed
ianm replied to paulwwww's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome aboard. Six months may not be enough time for you to really be fully healthy. Are you lacking in energy or is it just motivation? I have a very demanding job also and once I started to get healthy for the first time in 36 years I found that I wasn't as motivated in some areas as I was before. I had more energy than ever had before but for me it was... -
I used to have fainting spells that mimiced siezures. It was vaso vagal (I think that's the correct spelling) syndrome. It was an abnormal adrenalin response that would cause my heart to beat so hard that it became inefficient. This would then cause oxygen deprivation to the brain. Once I went gluten-free it has only happened once in the last 14 months. ...
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Welcome aboard. It takes more than six days but you seem to have the right attitude. It takes time but it is worth it. A lot of people recommend liquid vitamins and I also suggest liquid minerals. I take the New Vision brand and they really help. They're kind of pricey but I found I only need an ounce every three days. these have helped me more than the vitamins...
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ARCHIVED How Long
ianm replied to zoommedix's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It depends on how much you ate. I get some pretty clear warning signs when I eat hidden gluten. My lips get a prickly/tingling sensation and I start to feel a little foggy with two minutes or so. I can then stop before things go to far. By the next day I am usually OK. In the past , before I learned to recognize my warning signs it could take up to a week... -
You say this is your sons second marriage. If it was the first I could understand his point of view a little. For the second one I would say he's on his own with planning and food especially if he isn't willing to understand your condition. Ianm
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ARCHIVED Newly Diagnosed And Clueless
ianm replied to adorrell's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You didn't say your age and for how long you've felt sick. I didn't find out what was wrong with me until I was 36. It took 3 months to start feeling better and a full year before I could say I was healthy. It seems from most of the postings from older members that it takes longer to get better but it does get better. One day is not enough time for anybody... -
All I can say is that I was so sick for so long that I never want to be "normal" again. The gluten-free lifestyle has just simply become a habit but one that I eagerly embrace. Yes I have setbacks but if it wasn't gluten it would just be something else, maybe something even worse. To me the gluten-free way is the healthy way. I can't eat processed crap anymore...
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ARCHIVED Think I May Be In The Same Boat
ianm replied to zoommedix's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds like all of the symptoms I had. Seems like there are new people coming aboard everyday. That can only be considered a good thing. When I ingest gluten it takes about two minutes and my lips start to get a tingling/prickly sensation. I then start to feel some fatigue. At that point I stop eating to avoid further contamination. I alway take small... -
By the end of the year you should be feeling better than you ever have before. The first three months you won't feel that much better because you body is trying to heal and clean the poisons out. In another three months you should really start feeling different. Patience is required but it will be worth the wait. Ianm
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ARCHIVED Late Diagnosis?
ianm replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Your story has a lot of similarities to mine. High school was a nightmare. I was put into special ed classes because the brain fog and fatigue was so bad. I didn't even have a clue that I had a food allergy until I was 36. I also had weight problems and was on the verge of diabetes. I lost some much and missed out on so many things because of this disease...