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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by plumbago
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My recovery from Coeliac Disease
plumbago replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
can I ask what is it you are expecting in terms of dialogue here? I don't mean to be overly direct, I apologize if it sounds harsh, but I'm not understanding the point you are trying to get across. I could guess, but for me, it'd be better to hear it from you. -
I know you asked about magnesium glycinate (and I'd love to hear from you the reasons you are choosing this form), but just putting in my experience here, I take mag citrate, and because I try not to buy too much plastic, I had to look for it in glass bottles and came across the brand Bluebonnet, which I'm generally impressed with. But again, would love to...
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Having a really hard time adjusting
plumbago replied to Natalie14's topic in Coping with Celiac Disease
@Natalie14 I'm so sorry you are suffering through this! The one suggestion that leapt out to me in bright neon lights was to offer either to go shopping for the entire family (depending on your age) or offering to accompany the adult who does the shopping. Then, at least at first, tape big marked cards on all the food in the house that is gluten free... -
Creatinine/BUN Ratio?
plumbago replied to xRavenHeartx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks! Yes, definitely get a Celiac panel. If your insurance won't cover it, you can order one yourself (and pay, of course). I haven't heard of a low BUN and (only) slightly low chloride being linked up to celiac disease, but I am not an expert. Low BUN may or may not be significant. Before making major clinical decisions, me myself - for sure I'd... -
Creatinine/BUN Ratio?
plumbago replied to xRavenHeartx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What is your creatinine? -
Creatinine/BUN Ratio?
plumbago replied to xRavenHeartx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't really understand what you're saying, except to say that on a population level, the incredible rise of added sugars in our diets are directly linked to the crazy rise in NAFLD. I have never heard of choline deficiency as the cause of the NAFLD epidemic. And, if you are avoiding (added) sugars, yes, your blood glucose could slowly rise due to... -
Creatinine/BUN Ratio?
plumbago replied to xRavenHeartx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have never heard of that @Wheatwacked. To clarify, I've never heard of someone eating low on the glycemic index and deficient in choline who has NAFLD. In my work and informal research, overwhelmingly implicated in NAFLD is the usual American (or increasingly Western) bugaboo: sedentary lifestyle and overconsumption of sugar. Risk factors are the usual... -
Creatinine/BUN Ratio?
plumbago replied to xRavenHeartx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi @xRavenHeartx, I have not had a low BUN/creatinine ratio, but on occasion my ratio has been high. I puzzled over it a while - the notes I took based on my research of this topic said 1) some labs do not do ratios if each component is within normal limits; 2) "high ratio could mean decreased blood flow to kidneys. If 30 (mine was 26 at the time), could... -
Semi Freaking Out NCGS
plumbago replied to MichaelH's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, What do you mean by blood sugar crashes? These usually occur with people taking certain medications for diabetes. Unless you are having hyperinsulemia, which precedes diabetes. How much less are you eating, do you think? Would that be enough to account for the weight loss? What are you eating exactly? You say you know why your guts blew... -
I'm jealous! I've been to Spain a couple of times and love it so very much (never been to Cataluna though). However, when I was there, I was pre-diagnosis. They do eat a lot of torta (spanish omlette sometimes called tortilla), so generally that should be ok, just make sure there's no "harina de trigo" (wheat flour) in it, likely not. In other parts...
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Test results?
plumbago replied to Andiecat46's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I once had a very high b12 result - this happened very shortly after I had given myself a B12 shot. It happened again, but I had been regularly supplementing orally with B12. It's very very likely not a cause for concern, unless you have not been supplementing regularly. What was the number, and what is the normal range? Good that you are going for an... -
Brain Aneurysm
plumbago replied to dustinwes's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow - thank you for sharing your amazing story! (When you say aneurysm, did it burst or were you taken care of before that happened?) I've had only one or two panic attacks, but I don't think they were precipitated by gluten, at least not that I know of. All I know is that I had to go out walking and burn off a lot of energy, which helped. I have heard of... -
Generally low FODMAP (fermentable oligosaccharides, disaccharides, monosaccharides and polyols), short-chain carbohydrates (sugars). Eggs and meat Certain cheeses such as brie, Camembert, cheddar and feta Almond milk Grains like rice, quinoa and oats Vegetables like eggplant, potatoes, tomatoes, cucumbers and zucchini Fruits such as grapes...
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Ok, @Salomon - one thing I've learned, is that doctors are not fond of ordering blood tests unless they know exactly why they are ordering them, so that may explain the lack of action on your doctor's part. (It may, not necessarily does.) There are good reasons for this. If you feel the high cortisol is significant, then I would do more research and...
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Cortisol is tricky to measure given how much it fluctuates. I've never seen it ordered on routine blood tests, which makes me wonder which doctor ordered it and the reason he/she gave you for ordering it. High cortisol may explain the lack of sleep which in turn can explain high cortisol and round and round we go in a vicious cycle. I'm so sorry. Curious...
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I commonly see high platelets in people who've recently had surgery - this is common. (I'm a nurse.) If you have rheumatoid arthritis, you can also have high platelets. And there are other conditions. Others on the forum may have heard of bowel inflammation leading to high platelets, but I haven't. Editing to add: Do you have any other abnormal...
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High platelets can be a sign of inflammation. There are many other reasons for a high platelet count. What other evidence have you found to attribute high platelets to the inflammation - of Celiac, I assume? And have you done a recent Celiac panel? I would be more secure in interpreting a high platelet count the way you do if at the same time something like...
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I would like to see the exact name of the test you refer to as "gliadin IgA and gliadin IgG" before commenting more. We would also need to see the references ranges for every test you reference. As for what you refer to as raised Ttg Iga, I think that might indicate short-term immune response, indicating ingestion of gluten 2-4 weeks preceding the test...
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In terms of the clubbing shape, how it happens is actually a complex process. But usually nail clubbing occurs as a result of deficiency of oxygen to the body's tissues.
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Endoscopy next week
plumbago replied to Tash1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Tash1 you are welcome! And good luck on Tuesday. It is worth a try to ask them to draw blood for the Celiac panel right before your procedure - they'll be putting in an IV anyway, might as well. (Honestly, it's almost irresponsible to go straight to an EGD for Celiac, without testing for antibodies first.) Alternatively, if you are really determined... -
I would try to eliminate shingles as a possibility. Likely it's not, since you said it's not just one leg, but both if I read correctly. Shingles doesn't often happen on the legs but it can. If you are in the US, and in a decently sized city, find out which group holds the Medicaid contract and go to them. They often will see people without insurance...