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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Thanks Jill! The ophtho did a huge range of tests and examinations. Meaning, my eyes were subjected to dilating drops many times as he looked at them through the "slit lamp" many times. He seemed like a knowledgeable professional so if I had uveitis, I feel like he would have spotted it and told me and/or included it on the discharge paperwork. He did mention...
  2. plumbago
    It was, but being in the ER esp for 12 hours is one circle of hell I do not wanna repeat any time soon. Props to staff there that still remain - real pros and am always appreciative of the polite ways they can find to ask people to wait, because that is what 95% of people do there, wait. You are so bored/frustrated - and it draaaaags out for so long, that...
  3. plumbago
    Hi all, Yesterday I spent about 12 hours mostly waiting in the ER for what turned out to be a hyphema. In my case, an arteriole in my left eye was leaking RBCs. It affected/diminshed my vision (cloudiness, fogginess - both of which were very annoying), there was some photophobia and mild discomfort. In terms of causes, I was asked about trauma (none...
  4. plumbago
    Sometimes we try to tease out associations or causes where there are none. Add in the fact that lab results can change a lot from one draw to the other. Were you perhaps a bit dehydrated before the blood draw? Did you have your 'scopes done yet?
  5. plumbago
    I'm so sorry, Libby. I hope you don't lose your teeth, and with some interventions, you should not. I used to have bleeding gums. I'm not sure of they relation if any to celiac disease, but once I started flossing regularly, the bleeding stopped for the most part. A rough floss can draw blood, for sure. Now I use the waterpik, because Glide dental floss...
  6. plumbago
    I would be very surprised if this were scurvy. The NHS web site says: But one never knows, I suppose. Gingivitis causes inflamed gums which can cause them to bleed.
  7. plumbago
    There may be a lot of contaminants and chemicals in the mixture that they use. I would be very careful.
  8. plumbago
    I'll try to answer one of the questions you asked which is, if I'm reading correctly, if you're getting a colonoscopy already, should you go ahead and get an endoscopy. Generally, people get a colo every 10 years. In my case, I did go ahead and get the endoscopy (and biopsies, IIRC) with the colo. You might as well, is my reasoning. It's a big deal to fast...
  9. plumbago
    With smoking it was (and still is) a massive publicly funded education campaign; regulation; withholding of federal funds to the states unless they enacted restrictions. It was massive federal involvement (including lawsuits) and it is working. You do not need to be wealthy to eat healthy. No. But it helps. And having a little bit more helps. Many came to...
  10. plumbago
    Of course I meant what I said: food deserts; 'deserts,' as in the Sahara. The spelling is correct 😀 What I mean is - and I'm not sure, but we may be talking about two different groups of people (those dx with Celiac, as in the participants here, and those suffering from metabolic diseases, the people I work with who are primarily on public health in...
  11. plumbago
    You cannot categorically say that with any accuracy, @trents I work day in and day out with people with metabolic disease. I've done education on this. There are truly things like food deserts. And there are things like government regulation. The celiac community is compared to the people I work with, very wealthy. People who have economic means...
  12. plumbago
    I'm actually not so sure I buy that last part. We are marinating in a soup of highly processed carbohydrates. They're plentiful and they're cheap and often the only thing people can afford. It's a mix, at best. But not all countries allow their food industries to get away with what we in the US allow ours to get away with.
  13. plumbago
    Hello, I also tend to think that given your positive blood tests and some flattened villi, that you more likely than not have Celiac. The only question I have is what is meant by no "increased IELs?" I know IEL is intraepithelial lymphocytes but where does the increased come from? Increased from what? Have you had biopsies done previously? Maybe I'm...
  14. plumbago
    Hello Laura, So sorry to hear about this. There's really no way for us to zone in on what your symptoms add up to with exactitude, but we can endeavor to ask questions and support you in other ways. I myself have recently experienced the feeling of having something stuck either in my throat or mid-chest/sternum (basically my "craw"). I am fairly...
  15. plumbago
    If you mean your very normal hemoglobin level - absolutely not. There's no way to tell, just looking at that, the first thing about cancer. The only abnormal reading is the IgA gliadin. Everything else is normal. I would keep eating gluten and then retest. They say only one negative test result indicates Celiac. But me in your shoes, I'd repeat the panel...
  16. plumbago
    Happy to help, but we need to see the reference ranges which should be in your report.
  17. plumbago
    Hi Max, In my research I have found that avoiding sugar is a fast-track way to improve health. And I've found this to be true for me personally. The key is staying away from it for the long term. I find I can do it for 2-3 months at a time. Which is not bad, and not to be dismissed. But then I will eat it (attempt moderation) for the next few months...
  18. plumbago
    Hi there, I'm a nurse, and not crazy about your handle! but let me offer you a few generalities that may or may not help. It sounds like you have a lot going on. The coldness could be thyroid issues - you would need to get lab tested for that. You should probably be checking your blood pressure every day or every other day. From what you describe, it could...
  19. plumbago
    It doesn't matter what caused it. If you are losing that much fluid and electrolytes, yes after a while it can be serious and you need to go to the emergency dept right away.
  20. plumbago
    Hi Everyone, I'm picking up a thread from a couple of years ago because I would love to hear from some of the participants here, specifically about symptoms of GERD. For the last 2-5 days, I have felt like something is sort of stuck in my throat (superficially, not in a major way, more of an annoyance) or lower down, in the esophagus (middle sternum...
  21. plumbago
    Most on here will say yes, to continue eating gluten containing foods. I would also advise that. There are links on this site advising you on pre-EGD prep, but there's also this. https://nationalceliac.org/celiac-disease-questions/diagnosing-celiac-disease-after-going-on-a-gluten-free-diet/ Good luck.
  22. plumbago
    Just youtubed it. LOL!
  23. plumbago
    Good article in today's NY Times about "shrinkflation." https://www.nytimes.com/2022/11/26/climate/fighting-shrinkflation-consumer-products.html
  24. plumbago
    Ok, so you've had an EGD and biopsy. You have every right to look at the pathologist's report - indeed that should have been handed to you, along with pictures. This is, in my experience, across the board standard. Get that report. It's yours.
  25. plumbago
    My bread options are not endless. My go-to was Canyon, but their price is now about $1.50 more than Udi's, so now I have to eat Udi's. But - has anyone checked out the size of their pieces of bread lately? Man, are they getting stingier.
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