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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    @Tash1 why don't you go ahead and ask for a celiac panel to be drawn before you get the endoscopy? That way you will have more information coming out of the EGD (endo). For example, if you test positive on the blood tests, but negative on the EGD, you will know that, more likely than not, you have celiac and you need to start eating gluten-free. If you are...
  2. plumbago
    When there are others in my household, everything's gluten free. I do both - hand wash and 3-4 times a week use the dishwasher. But at work, I sometimes eat in our dining room if the person cooking has assured me there are no gluten containing ingredients (this is about 2-3 times a month), and so while the occasional meal may be gluten-free, the kitchen...
  3. plumbago
    Yes, you can - but I would strongly encourage you to do so in a way that your name and date of birth (and any other identifying features) are omitted from the screen shot. Just copy and paste your results and save it to your desk top or something, then insert it into a reply here. But again, do it in a way so that your identity is hidden. From your original...
  4. plumbago
    Talk to your doctor about Paxlovid within five days, or Remdesivir. You would have to use google, or email the manufacturers (or call them) to find out if there is gluten in either of these medications. There are other treatments available, but we are not MDs here, and more specifically, not your MD, so as always, we advise that you talk to your doctor. ...
  5. plumbago
    While you're still symptomatic and hopefully while you're still eating gluten, go ahead and get the complete Celiac (blood test) panel, and then you can think about discontinuing gluten to resolve the diarrhea.
  6. plumbago
    Maybe someone can help me out here. The above article states, But my understanding is that "the density of intra-epithelial lymphocytes (IELS), which are white blood cells found in the immune system. More than 25 IELS per 100 epithelial cells is significant. Epithelial cells line your intestines and act as a barrier between the inside and the outside...
  7. plumbago
    Quite extraordinary @MarNar. I would have suggested you see a nephrologist, but quick. Glad things normalized for you. Celiac is an intolerance, not an allergy, to gluten, but your point admonishing doctors to test such things is well taken. Congratulations.
  8. plumbago
    FYI, I hear Grindstone Bakery (Calif) is opening back up / staying open. https://mailchi.mp/grindstonebakery/meet-the-new-owners?e=981f5db34a
  9. plumbago
    I think by "gluten challenge," you mean you are now eating gluten in preparation for another Celiac panel test (or was it the endoscopy)? In any case, make sure you get or got the full complement of Celiac serology tests, not just one or two. For me, it unquestionably has helped to receive an official diagnosis, it has simplified the plan for me...
  10. plumbago
    I meant to reply about that - I had both positive serology (celiac panel) and positive biopsy, so my situation is not exactly like yours. Were you eating sufficient gluten at least 2 weeks before the celiac panel test? There are other situations that can lead to degraded villi and IEL. Are you taking any medications - or, were you, prior to the EGD?
  11. plumbago
    I had this, minus the SIBO - that I know of. It's possible that my gastros at the time either didn't know much or think much about SIBO, I just don't know. How are your liver enzymes? Did the doctor palpate your abdomen? Can you get the complete report? If you are in the US, you are entitled to see exactly what the doctor wrote, with a new law passed in ...
  12. plumbago
    I don't know, and I've never heard of wheat-free rye bread. But if you are celiac, you shouldn't eat rye bread, even if it is wheat-free, I would guess. Plumbago
  13. plumbago
    I don't know @yuluyouyue, it seems fairly well-established that (untreated) celiac disease can predispose to infections. Take iron deficiency anemia. This is not as obvious and straightforward a cause of moderate disease resulting from infection as neutropenia (deficiency of white blood cells) is because it is both a cause of and result from infection, but...
  14. plumbago
    Yes it's possible, but I'm also thinking you already had Celiac and that could have pre-disposed you to so many infections and moderate disease. I also work in healthcare, I have controlled Celiac disease, and to my knowledge I have not been infected with the SARS 2 coronavirus. I do mask fairly diligently. Plumbago
  15. plumbago
    @herminia none whatsoever. The croissants were delicious. Would I do it again? If I verify that it's ok, but I need to learn more about it.
  16. plumbago
    Yeah, @RMJ it was quite shocking to read "wheat" as the first ingredient! I kind of couldn't believe it. Thanks for weighing in.
  17. plumbago
    I'm a little surprised I didn't read the back of the package until I had already consumed all the croissants, but for ingredients, it lists: Wheat* starch, water, vegetable palm of egg, and so on. The * has: The wheat has been processed to allow this food to meet the FDA requirements for gluten free food. What do people think of this? Plumbago
  18. plumbago
    I've gotten aptheous (spelling?) ulcers in my mouth - but it's been a while. It may have been due to tomatoes, sugar, or something viral. I was never really able to nail it down for sure. I did change to a toothpaste without SLS. For the most part, everything I did (new toothpaste, trying hard not always successfully to reduce sugar)
  19. plumbago
    I agree with Trents @MiahL, and you should probably proceed as if this is a clear cut case of celiac disease. I just can't believe the way things are done, sometimes. Maybe I've just gotten lucky with my 'scopes and biopsies. But because I'm a bit demanding and neurotically focused on details of my diagnoses, I would kindly request to see the actual biopsy...
  20. plumbago
    Not necessarily. Especially if we know that 1) blunting is not uniform; and 2) they only took one biopsy. I would like to know the language the pathologist wrote, @MiahL if you can find the report and then type those words in.
  21. plumbago
    I was a little confused about the villi blunting and then the biopsy being negative, like @trents. The only thing that occurred to me was that on visualization only, they could see blunting. If you have the biopsy report, can you type in the language they used? Because that's the missing key here.
  22. plumbago
    Thanks @Scott Adams. Yes, I have gone back and forth many times on this. Podiatrists I've consulted say I'm not there yet. And despite the complaint above, I am managing it pretty well. However, there are several complications that can happen, like in my case, my big toe not being able to function in its weight bearing capacity due to the bunion, so my weight...
  23. plumbago
    I wish my foot pain would go away since I'm on a gluten-free diet, but it hasn't. I have bilateral bunions and a neuroma on my right foot. I also can have foot pain on waking in the mornings, that goes away a bit (as someone upthread commented). Plantar fasciitis and tendonitis are not the same thing, btw. Plumbago
  24. plumbago
    I took thiamine somewhere in 2020 or 2021 but for a few months only. Then I stopped. I started a full face mask much later in December of 2022. Changing to it was mostly a matter of comfort. You wouldn't think so, but the full face mask is/was more comfortable than the nasal wisp. As luck (or something) would have it, my supplier called the other day and...
  25. plumbago
    @knitty kitty Thanks! I sort of suspected you would recommend thiamine, based on some of your experiences, which makes sense, and honestly, if that's what it is, I gladly say pass the bottle! But I'd like to know for sure I'm deficient, first. And IIRC, testing for that b vitamin isn't the easiest - most b vitamin tests are a bit complicated. Actually...
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