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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago
    Yeah, but the point of the video was that sugar alcohols are often hidden. I know little about erythriol, and as far as I can tell, that's not what the video was talking about - ie, two different things? Editing to add to my reply here...So erythritol is actually a polyol, which is a sugar alcohol, the topic of her video, though she does not specifically...
  2. plumbago
    Sabine Hassenfelder is a German science writer who has worked in the US and Sweden, among other places. She posts entertaining, funny videos about science, but recently did one on sugar alcohols, which I think is worth viewing. In it, she talks some about autoimmunity in general, and why symptoms often show up later in life (30s -40s, eg). ("I've probably...
  3. plumbago
    I'm so sorry you are going through this @Dave Neff. Do you think it has anything to do with Celiac? You deserve answers, that is for sure! Insist upon a conversation with a vascular specialist, and perhaps suggest an abdominal scan. I do not have any personal experience with this, but yes, I have cared for patients who have needed transfusions for various...
  4. plumbago
    There are other causes of a positive test, including diabetes, heart failure, Crohn’s and others.
  5. plumbago
    I'm confused about what exactly the topic is. Slightly above or below normal is usually nothing to be concerned about. The hematocrit (percentage by volume of red blood cells in your blood) range for males is 42-52% (generally) and 37-47% for females. Hemoglobin 14-18 g/dL males and 12-16 g/dL for females (generally speaking). One or two percentage points...
  6. plumbago
    Hi again, the source of the blood is different in your case with that point of care test (capillary vs venous), but I'm not sure that makes that much of a difference. I think what you need to find out is the specificity and sensitivity of that brand of test. I got on the actual test site, not just the amazon site (which is loaded with messages for me to accept...
  7. plumbago
    Help us know more about your at home test kit with either a link or in depth description. Personally, I'd want a lab test. To buy on your own they are at least $150, maybe more. But if you have insurance and your doctor orders it, obviously it would be free. Depending where you are, you might be able to have a case manager get you signed up for a cheap or...
  8. plumbago
    @HilaryM No, you likely don't need a colo. I was the exact same way about wanting a positive biopsy result. As for vitamins, for B12, I don't take cyanocobalimine, but rather methylcobalamin because it's more bioavailable. You will learn a lot about what works as you start trying different things. Just keep us posted on what you're doing, what's working...
  9. plumbago
    First of all, your tests indicate positivity for Celiac. Second, you should know that you need to keep eating gluten before the EGD (are you also getting a colonoscopy?). Third, may as well as for a B12 test just to see if you are absorbing that vitamin and to establish a baseline. You may also ask for a test of Vitamin D, again to establish baseline. Four...
  10. plumbago
    The child needs to be continuing to consume gluten at least 4-6 weeks prior to the test. USA-based information here, but should be helpful, generally.
  11. plumbago
    That's not good!
  12. plumbago
    If a hospital has coke machines/fountains or the cafeteria has a ton of processed carbohydrates, you can be fairly certain they don't care about nutrition. I would be satisfied if they first started to cut down on the amount of nutrition-poor food, and then moved on to gluten.
  13. plumbago
    You posted results of two blood tests for Celiac disease. One is negative and one is positive. Generally, it only takes one positive result to diagnose Celiac. It is highly likely that you have Celiac disease. The two tests you posted measure the amounts of immunoglobulin A and not the more numerous immunoglobulin G. It's complicated, but generally,...
  14. plumbago
    @Always-Hungry-Kate For me, it took maybe a year or so to feel somewhat normalized in terms of my particular symptoms. In general, I did feel better going without gluten (socially, it's still not fun). For me, it was good not to have D every morning. Where I work (in healthcare) we've stopped the protein shakes as they are simply loaded with sugar. I wish...
  15. plumbago
    Yes, that was what I was trying to get at, partially, with my questioning: what has changed in terms of what the OP is eating. I agree that maybe eating more protein could help. Also, others have pointed out that oftentimes people with celiac disease also cross-react with dairy. No idea if that's happening in this case though.
  16. plumbago
    Sorry @Always-Hungry-Kate to hear this. Tell us how it goes: do you eat a lot, then feel nauseous and then you are hungry? When you are nauseous, do you ever vomit? Did you have these same issues before you went gluten-free? Do you think you are eating less now than you were before because of the restrictions? IOW, is it a matter of learning to substitute...
  17. plumbago
    This resonates with me, sometimes not always. Perhaps it relates to how much good sleep we are getting, as well.
  18. plumbago
    I think given what the OP has stated, she likely has some form of gluten intolerance, but given her symptoms after eating a high carb meal or snack, the OGTT and fasting insulin tests are likely more useful than a fasting blood glucose in terms of checking out problems with blood glucose regulation. The OGTT used to be done much more frequently than now.
  19. plumbago
    I'm sorry for all you're going through and thanks for keeping on posting here, hopefully you will get some resolution soon. Concurrent with my celiac diagnosis upon endoscopy, I was told I had a hiatal hernia, which is extremely common. My personal feeling is that this is partially what contributes to my occasional GERD. Re-reading your original post...
  20. plumbago
    @KSMarcuson yes, further testing. A fasting blood glucose test is among the least useful tests that exist! This is why I suggest the oral glucose tolerance test. Among a couple of other things, it will tell you about insulin release. (Also why I suggest a fasting insulin test.)
  21. plumbago
    Good, you will want to try to narrow down the origin of the problem (celiac or diabetes or pre-diabetes). I would also ask your medical provider if they can order you an oral glucose tolerance test and/or a fasting insulin test. Good luck and keep us posted. I see a moderator split your postings for some reason, so I'm not sure if you will get this. Plumbago
  22. plumbago
    Your detailed posting reminds us all how complicated the road can be towards diagnosis. You have also absorbed much learning - it's evident from what you wrote. For sure you should ask a doctor for a celiac panel of tests, however, you will need to be consuming gluten for some time beforehand. Reading over your post, I'm not sure my experience completely...
  23. plumbago
    These are the inactive ingredients of Robitussin: anhydrous citric acid, carboxymethylcellulose sodium, FD&C blue no. 1, FD&C red no. 40, glycerin, liquid glucose, menthol, natural and artificial flavors, polyethylene glycol, propylene glycol, purified water, sodium benzoate, sodium citrate, sucralose, triacetin, xanthan gum Does anyone...
  24. plumbago
    Your pain and other sensations sound like it could be a neuropathy and/or paresthesias. Yes, get them checked out. I would recommend tests for vitamin deficiencies, like B12 especially (unless you've already had those?). If you are known to have anemia, is your medical provider putting you on a supplement to get your iron and/or red blood cell count back...
  25. plumbago
    Yes indeed! Healing is possible. Most of the people on this thread have healed from celiac disease. I think the difference is that you say you can go back to eating gluten. I just wanted to have that clarified so we all know what the conversation is about. Most if not all of the people on here, as you may guess, would disagree. (And there are testimonials...
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