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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. Would normal antibodies, then, exclude oats as a potential problem?
  2. Ok, thanks. I think it's standard practice that if any one of the tests on a celiac disease panel are positive, it's considered celiac, but check with your doctor. More than one test on my panel was positive, but before going gluten-free, I insisted on a repeat test a month later which showed more or less the same thing. Then I got the biopsy, which was positive...
  3. Do you know if there is a way to test for this?
  4. Renee, According to the notes I have taken since my diagnosis over 10 years ago, "if both DGP (IgA and IgG) are high, celiac disease is almost certain." In your case, only deamidated gliadin IgA was high. Your other tests were negative. Hopefully, others will weigh in with their good perspectives. Did you at any point, start going gluten free? How...
  5. Great, please do let us know. And yes, you certainly sound more diligent than I was, at your age. Last (ish) question - are your total IGA levels normal? Apologies if this has already been addressed.
  6. I am not an expert at all on celiac disease, and know just enough to manage my own condition. According to my book Recognizing Celiac Disase: signs, symptoms, associated disorders and complications, refractory "sprue" (celiac disease) is not responsive to a gluten-free diet. But yours was, at least for a number of years, right? Just so I understand your...
  7. Maybe not. How well has your diabetes been controlled?
  8. Yes, EMA-IgA is highly specific to GI damage. EMA stands for antiendomysial antibodies, which are antibodies produced by the body that attack the body's own tissue. When the EMA-IgA is positive, the patient almost certainly has celiac disease. Second, it's quite likely I'm not understanding something. In your response to me (above), you said your...
  9. @Anonym I should have been more precise. What I should have said is that ttg-iga is often elevated in cases of diabetes, not (necessarily) refractory celiac disease. Apologies.
  10. Also, do you know about allergies? Could you have a wheat allergy? Celiac is an intolerance to gluten. At least it's some good news from the scope and biopsy, but yes, as advised previously, get that blood test (the order actually is, blood test first). Get the complete Celiac panel, not just one or two. Good luck. Let us know.
  11. Your doc may be thinking the bloated stomach is related to SIBO (small intestine bacterial overgrowth), I don't know. That is likely what the xifaxan was prescribed for. Looks like you've gotten some good feedback. Best of luck.
  12. I have heard of it for sure Colleen! I know someone who has it. For a while, she went on the low FODMAPS plan/diet.
  13. Yes, as I say (re: Trents' comment), there are arguments about how much emphasis to put on the scopist's eye. If biopsies are taken from healthy tissue, but the gastro saw damage, the report from pathology could result in a false negative. But a gastro who sees damage will be taking biopsies from the tissue he/she sees as damaged. IMO, you need both the gastroenterologist...
  14. Yes, I should think so. We've had arguments on this forum before about doctors being able to tell if there's celiac disease before getting the biopsy back, so yes, you are correct. Hang tight.
  15. I would think (but, again, don't know for certain) that you could have cured your celiac disease, already. There may be no way for a gastro to know if someone has celiac disease by looking at a healed gut. You see the point I'm trying to make? You may want to get the blood test now (especially when still eating gluten). Your doctor should have, without...
  16. I can't really comment on much, but I was struck that although you've been gluten-free for 5 years (except for the past 3 weeks, eating gluten), you are anemic. Do you know more about that, why that is? At any rate, it could be that if indeed you do have celiac disease, the 5 years was good enough to heal your gut, and it could be (see? lots of maybes...
  17. A while back, I posted something on this forum about a conversation I had with someone at the farmers' market about cows eating wheat and then me eating the meat of that cow, and how she said technically that meat is not gluten free. I was corrected on here. At the time of the conversation at the FM, it struck me as odd and not quite right. It still doesn...
  18. I started hearing about that about 6 or so years ago. I don't know what to make of it.
  19. I work in healthcare and I was one of the first to line up for a vaccine! We were strongly strongly encouraged to get it, and hopefully you can see the sense it makes for those providing care to get the shot(s). While I did not have to get it, I was strongly encourage to do so, and there emerged a feeling in the air that we should do this to protect each...
  20. Hi there, you are such a good grandmother, first of all. I just google-imaged the nutrition label for velveeta and didn't see any gluten ingredients. However, I do not know the ins and outs of the many additives it appears to have. Other regular users in this forum are far more dedicated and knowledgeable about those than I am - perhaps they will chime in...
  21. It is always best to get a professional opinion before taking medications and supplements recommended on the Internet. We should be mindful of the things we put into our mouths, realizing there may be a cost that the kidneys or liver may (may) have to pay. Sound thinking, @Placey.
  22. But that's not keto. ?
  23. Hi @yogajc I hope some regular commenters reply to you. Having been intrigued, impressed by and interested in the success of the ketogenic diet, particularly as it pertains to metabolic and blood vessel health, I have not ever attempted to seriously maintain myself on it, having been daunted by many of the same issues you are. However, in my many forays...
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