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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by plumbago
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My guess is that there are precious few tests eligible on the formulary for Medicaid based insurances, unfortunately. Public health clinics don't have their own formularies, as far as I know, but deliver care based (usually) on what the patients' insurance covers. (Public health clinics do eat a large amount of costs not paid by either patient or insurance...
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Yes, I would appeal. I am trying to gauge how often those on Medicaid (and Medicare for that matter) are ordered Celiac tests, because my fear is, it's not often at all. I started a separate thread on the topic, but so far, no replies. I wonder if it's even covered. At any rate, I think it would be a great idea to get some kind of campaign started for...
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Anaphylaxis due to celiac disease?
plumbago replied to Tash18's topic in Food Intolerance & Leaky Gut
While I don't personally recognize your story, from what I understand about allergies, it usually takes a second exposure to an allergen to trigger a reaction such as anaphylaxis. I’m so sorry to hear of the recent news you are receiving. It’s likely that it’s beyond most of us on these boards to be able to contribute in a super meaningful way, but ... -
Weight loss concern
plumbago replied to manaja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, Do you know what the cause is of hyperparathyroidism? And, is your blood glucose ok? -
Does anyone have any experience with or knowledge of how frequently/routinely/easily Medicaid patients (public health clinic patients) are tested for celiac disease? My suspicion is that this is a very rare event, but I just wanted to ask. Thanks. Plumbago
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Fortunately the liver is a forgiving organ, as organs go.
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Do you Have Your Gluten Free Emergency Food Bag Ready to Grab and Go?
plumbago commented on Tammy Rhodes's article in Spring 2018 Issue
Sort of a disappointing article.- 3 comments
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- emergency food kit
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Hello, I can tell you a couple of things, the first of which is based on personal experience. I sometimes have an unsightly rough patch on my nose that I have been struggling with for a number of years. If I bring up the topic at the dermatologist, they tend to put me on either an anti-fungal or a steroid cream, both of which after a while I stop using...
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Having the endoscopy is the "gold standard" for Celiac diagnosis. If it shows villous damage, that means you have celiac disease. I had this done, and I'm glad I did because I'm the kind of person who needs that extra proof. Can you call your insurance to make extra sure that it is indeed not covered? If that is difficult, sometimes doctor's offices or clinics...
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Just a suggestion, not an answer, but I have heard that the body's difficulty breaking down certain proteins may contribute to a different sort of body odor. I'm surprised your doctor would not have suggested that (assuming he/she agreed it was a problem). Plumbago
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I read that thread too and it struck me as a blanket assertion that was maybe wise to be skeptical about. Thank you for this post. "Advil. This ibuprofen-containing pain reliever comes in four varieties: Advil, Advil Film-Coated, Advil Liqui-Gels and Advil Migraine. According to the company, "Advil Liqui-Gels and Advil Migraine contain a wheat derivative...
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Before I started taking anything, such as lysine, I would want to know for sure that I had the condition (in this case, herpes) and that I was not pregnant. Medscape has lysine in the avoid category for pregnancy or lactation. But it does say -- "Possibly effective for herpes simplex labialis treatment" Medscape lists adverse effects of lysine as...
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I would not say to never take Tylenol, but I would recommend stopping by a pharmacy and speaking to the pharmacist about what you plan on taking. This is a most underutilized resource! And, they are most willing to help. Absent from the WJLA story - aside from the date! (Fox had it) - was the amount she was taking daily (even an estimate) and if she...
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mouth and tongue sores
plumbago replied to seameruok's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Cathy, Yes, I had aphthous ulcers in the summer of 2017. I wrote about it here: https://www.celiac.com/forums/topic/118602-aphthous-ulcers/?tab=comments#comment-977823 I did numerous things - mostly I gave up sugar, drank only water, stopped using toothpaste with SLS in it, I used listerine, and took a bit more B12. They went away and haven... -
If you do end up getting an endoscopy, since you are now gluten free, there is a good chance that a diagnosis of celiac disease will not be made based on the procedure. If they won't do an endoscopy, there's probably less of a chance they'd do a hepatobiliary (HIDA) scan, which I have just heard about. It is an imaging procedure used to diagnose problems...
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Yes, I know what you mean about being able to anticipate things like having a good skin day. As you note, it’s being very in tune with your body. Who knows why that is - some complex interplay between organ and brain facilitated by one receptor or another. It’s for others to figure out, not me! As to figuring out whether or not your rash is DH, has any...
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Syncope, Convulsions. I'm not Crazy.
plumbago replied to jetplanelovers's topic in Related Issues & Disorders
You can be alert and still have a seizure. There are different types of seizures. I agree that there is often a neurological component to celiac. I wish you all the best in pursuing causes. Please keep us updated! Plumbago- 17 replies
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What a horrible experience, and I am so sorry that you went through it. Regarding the advice to go to your PCP, not a GI, I remembered how cursorily I was treated (on the whole) at my GI. They were very much oriented, at that time, to the scopes and not much else, though at the same time, it was a few years ago, and my memory might not be putting all the...
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Does Anyone Else Have Dysphagia?
plumbago replied to Demetria77's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dysphagia (difficulty swallowing) is serious and you should be attended to as soon as you can. I would first rule out that it's not something mechanical. There are congenital conditions that can cause a narrowing of the esophagus. And Celiac can too (esophageal web). Then, if that's not it, I would second the recommendation to see a neurologist. Additionally...- 20 replies
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Low alkaline phosphatase
plumbago replied to TXgirl7707's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I admit to not understanding the ins and outs of how this enzyme works and how its functioning gives meaning to a lab test, in this case a low reading, but I can type words out of a book. "Although ALP is found in many tissues, the highest concentrations are found in the liver, biliary tract epithelium, and bone. Detection of this enzyme is important... -
Confused about Endoscopy Results
plumbago replied to lilly rose's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Lilly, This is still confusing. Have you had two endoscopies? Your narrative about the second one is what's confusing. Perhaps if you could clear up the timeline we can respond better. Plumbago -
Symptoms of celiac or something else?
plumbago replied to Platinum's topic in Related Issues & Disorders
I love pharmacists!