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plumbago

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Everything posted by plumbago

  1. plumbago
    I'm confused: is this an “open letter” that was penned in 2012? I wonder why it is being datelined this month? “I've already introduced the undernutrition topic, so let's throw in a few million people who are undernourished, and therefore may be immunocompromised but are not at the extremes of the age spectrum.” There are very few people, I woul...
  2. plumbago
    Here are my answers to your questions, based on my experience. YES Frequent diarrhoea (every 2-3 days) NOT REALLY Urgency to have a BM YES, somewhat frequently - abdominal pain and cramping frequently – my cramping occurred just before a BM. Relieved with BM. Happens less now, but still does occasionally and when it does, I tend to think this may b...
  3. plumbago
    It sounds like you do have it, but that you’ll just need to wait a little longer to get confirmation. Something similar happened to me - the gastro said that upon visualization it seemed that the diagnosis would come back as celiac disease, but that they’d wait for the biopsy for confirmation. As for why the GI didn’t reach out to dermatology, a couple of re...
  4. plumbago
    OMG. Just OMG.
  5. plumbago
    My guess is that there are precious few tests eligible on the formulary for Medicaid based insurances, unfortunately. Public health clinics don't have their own formularies, as far as I know, but deliver care based (usually) on what the patients' insurance covers. (Public health clinics do eat a large amount of costs not paid by either patient or insurance...
  6. plumbago
    Yes, I would appeal. I am trying to gauge how often those on Medicaid (and Medicare for that matter) are ordered Celiac tests, because my fear is, it's not often at all. I started a separate thread on the topic, but so far, no replies. I wonder if it's even covered. At any rate, I think it would be a great idea to get some kind of campaign started for...
  7. plumbago
    While I don't personally recognize your story, from what I understand about allergies, it usually takes a second exposure to an allergen to trigger a reaction such as anaphylaxis. I’m so sorry to hear of the recent news you are receiving. It’s likely that it’s beyond most of us on these boards to be able to contribute in a super meaningful way, but ...
  8. plumbago
    Hello, Do you know what the cause is of hyperparathyroidism? And, is your blood glucose ok?
  9. plumbago

    ARCHIVED Testing for Medicaid Patients

    plumbago posted a topic in Doctors

    Does anyone have any experience with or knowledge of how frequently/routinely/easily Medicaid patients (public health clinic patients) are tested for celiac disease? My suspicion is that this is a very rare event, but I just wanted to ask. Thanks. Plumbago
  10. plumbago
    Fortunately the liver is a forgiving organ, as organs go.
  11. plumbago
    Sort of a disappointing article.
  12. plumbago
    Hello, I can tell you a couple of things, the first of which is based on personal experience. I sometimes have an unsightly rough patch on my nose that I have been struggling with for a number of years. If I bring up the topic at the dermatologist, they tend to put me on either an anti-fungal or a steroid cream, both of which after a while I stop using...
  13. plumbago
    Having the endoscopy is the "gold standard" for Celiac diagnosis. If it shows villous damage, that means you have celiac disease. I had this done, and I'm glad I did because I'm the kind of person who needs that extra proof. Can you call your insurance to make extra sure that it is indeed not covered? If that is difficult, sometimes doctor's offices or clinics...
  14. plumbago
    Just a suggestion, not an answer, but I have heard that the body's difficulty breaking down certain proteins may contribute to a different sort of body odor. I'm surprised your doctor would not have suggested that (assuming he/she agreed it was a problem). Plumbago
  15. plumbago
    What an incredibly newsy and good article that is from NPR! A lot of useful things in there, including the urine and stool tests.
  16. plumbago
    I read that thread too and it struck me as a blanket assertion that was maybe wise to be skeptical about. Thank you for this post. "Advil. This ibuprofen-containing pain reliever comes in four varieties: Advil, Advil Film-Coated, Advil Liqui-Gels and Advil Migraine. According to the company, "Advil Liqui-Gels and Advil Migraine contain a wheat derivative...
  17. plumbago
    Before I started taking anything, such as lysine, I would want to know for sure that I had the condition (in this case, herpes) and that I was not pregnant. Medscape has lysine in the avoid category for pregnancy or lactation. But it does say -- "Possibly effective for herpes simplex labialis treatment" Medscape lists adverse effects of lysine as...
  18. plumbago
    I would not say to never take Tylenol, but I would recommend stopping by a pharmacy and speaking to the pharmacist about what you plan on taking. This is a most underutilized resource! And, they are most willing to help. Absent from the WJLA story - aside from the date! (Fox had it) - was the amount she was taking daily (even an estimate) and if she...
  19. plumbago
    Hi Cathy, Yes, I had aphthous ulcers in the summer of 2017. I wrote about it here: https://www.celiac.com/forums/topic/118602-aphthous-ulcers/?tab=comments#comment-977823 I did numerous things - mostly I gave up sugar, drank only water, stopped using toothpaste with SLS in it, I used listerine, and took a bit more B12. They went away and haven...
  20. plumbago
    If you do end up getting an endoscopy, since you are now gluten free, there is a good chance that a diagnosis of celiac disease will not be made based on the procedure. If they won't do an endoscopy, there's probably less of a chance they'd do a hepatobiliary (HIDA) scan, which I have just heard about. It is an imaging procedure used to diagnose problems...
  21. plumbago
    This is good to know. My issue is that I was getting into a rut (as you do) and then I found the NYT cooking site for $5 a month, which I did for one month, and let me just say it is FANTASTIC. Easy recipes, not too exotic ingredients. DELICIOUS MEALS. Plumbago
  22. plumbago
    Yes, I know what you mean about being able to anticipate things like having a good skin day. As you note, it’s being very in tune with your body. Who knows why that is - some complex interplay between organ and brain facilitated by one receptor or another. It’s for others to figure out, not me! As to figuring out whether or not your rash is DH, has any...
  23. plumbago
    You can be alert and still have a seizure. There are different types of seizures. I agree that there is often a neurological component to celiac. I wish you all the best in pursuing causes. Please keep us updated! Plumbago
  24. plumbago
    This is great. I appreciate your updating your original post, too. Is this the site? Open Original Shared Link One thing that I do/did to stave off hunger was drink either coffee or green tea (unsweetened naturally). Seemed to work/give my mouth something to do/distraction. Plumbago
  25. plumbago
    What a horrible experience, and I am so sorry that you went through it. Regarding the advice to go to your PCP, not a GI, I remembered how cursorily I was treated (on the whole) at my GI. They were very much oriented, at that time, to the scopes and not much else, though at the same time, it was a few years ago, and my memory might not be putting all the...
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