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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by plumbago
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Biopsy results over the phone
plumbago replied to Kelly1920's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"Did you see anything on endoscopy that could explain my symptoms?" "How did my esophagus look?" Also there's something called the Marsh scale which you may want to familiarize yourself with to see if where the results fall on that scale (if they do). Generally I would surmise that because it's a phone appt that does mean your results are likely... -
scalp folliculitis/DH
plumbago replied to kpool's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for posting the pics. Is that your finger in the second photo? I sometimes have atopic dermatitis (aka eczema) and it occasionally has those things that look like blistery vesicules, like that. I think biopsy is the only way to know for sure that it is DH. My biopsy was negative for DH. As for your scalp, also thanks for posting that photo and... -
scalp folliculitis/DH
plumbago replied to kpool's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hopefully you have more choices than that. DH (if it was DH, which it sounds like it probably was) and the folliculitis may not be related. Or, you could be right, and it just takes more time. Check back in with the doctor. Let her/him know exactly which medications you are on, some can induce folliculitis. Let the doc know if it runs in your family... -
2 year old possibly having celiac
plumbago replied to Kayrod12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ok, good luck, and please SD and wear a mask! I still don't have a good sense of the total time on and off gluten your son has experienced. Not that having that info will be determinative, as I've said, but I can possibly offer an education guess. This is a very common question on this site. The standard advice (granted, advice given to adults... -
2 year old possibly having celiac
plumbago replied to Kayrod12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My question would be for how long your son has been back on gluten? But even knowing the answer to that question, it may still be difficult for us to know or say whether (resumption of) villi damage would occur in time to be detected upon re-scoping. I'm so sorry you're going through this, gosh, I can't imagine the anguish. These are tough questions... -
Candida infection or something else?
plumbago replied to Ferguston's topic in Related Issues & Disorders
You have deleted your posting with the video (I think you have - at least I can't find it any longer) so my comment doesn't really make sense without it, in terms of flow, ease of reading and sense. Was my comment ad hominen? It's a close call, I can see why you thought so. However, calling someone immature thereby seeking to invalidate their argument... -
Candida infection or something else?
plumbago replied to Ferguston's topic in Related Issues & Disorders
Vitamin complexity is a boon to those wanting a presence on the Internet. It is an endless giving well. Throw in a little criminally preventable and horrible national diet and there you have a fairly captive audience. Your opinion may vary, I realize. But I believe I am allowed to push back on the linked video’s web site, which I intend to do. I s... -
Candida infection or something else?
plumbago replied to Ferguston's topic in Related Issues & Disorders
@Ferguston What is your Vitamin D level? What are the levels of your B vitamins? It would be good to know before you start experimenting, but be careful going to enclosed offices, obviously. In one of your posts you said you are overweight. Refeeding syndrome is even rarer than SIBO, even among celiacs, and I imagine among the overweight, rarer... -
Candida infection or something else?
plumbago replied to Ferguston's topic in Related Issues & Disorders
I am still trying to figure out my post-breakfast fatigue, which usually coincides with eating toast, butter and jam. (When I'm not eating over 8 g of added sugar, I still may be eating toast and butter but not the jam.) It just happened after eating Udi's Millet Chia bread. It has only 3g of sugar of which 2 g are added. 300 mg of sodium. Ingredients are... -
Candida infection or something else?
plumbago replied to Ferguston's topic in Related Issues & Disorders
@Ferguston .....unless by "the rare cases that you should avoid them is when they damage you, but those are a small number of people only." you meant carbohydrates as a general category of nutrients and not processed carbohydrates. If so, my humble apologies. I often race to post things without stopping long enough to consider context. -
Candida infection or something else?
plumbago replied to Ferguston's topic in Related Issues & Disorders
You got it! 100% agree. I could not disagree more! We are learning, every day, how ultra processed food damages us. Look at what Covid is doing to our inflamed bodies. Ultra processed foods are among the most addictive things on earth, right up there with heroin and nicotine. Sounds like hyperbole, but it's truly not. I'm saying to do a bit... -
Candida infection or something else?
plumbago replied to Ferguston's topic in Related Issues & Disorders
Hi, I have had similar heart symptoms and documented it here and also here in case you’re interested in reading about the cardiac symptoms I have had recently. Long and short of it is, I have these SVTs that really disturb me, but for now cardiologists say are “benign.” I won’t repeat what I’ve said in those posts, except in my cas... -
Heart Palpitations
plumbago replied to Raphael's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you checked to see if you have a hiatal hernia? Two days ago, I related in a long post here the saga of my "heart palpitations" which actually is in my case supraventricular tachycardia (SVT). I go on and on about it, but basically I think I'm concluding it happens after I eat and especially after I eat processed carbohydrates too quickly... -
Thanks - yes, I already do most of this as well (time-restricted eating and checking blood glucose), pretty religiously in fact. When I fast for >1 day, I go into ketosis very very easily, it's weird. My fasting insulin is pretty good.
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I'm providing this update mostly to those other readers who may have SVTs like me. For the last three weeks, I have given up caffeine and added sugar, and I have added mag citrate. Here’s what I think may be a big contributing factor to SVT. I notice that the SVTs happen after I eat, usually breakfast. Today, I ate my usual veggie-heavy breakfast, ...
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I'm NOT an alcoholic.
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Egads! The study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6683263/#sec5-nutrients-11-01588title is about children. I'm an adult. Who is not malnourished. As I said. But listen? Why do it?
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Doesn't sound that nutz to me! It just means (I think) you were not in a deep wave sleep but a more "superficial" type, as it were. And I'm no expert. Seems like you may need to sleep more deeply to get the rest you're after. I know that when I work overnights, the sleep I get the next morning until about 1 pm is among the best I ever have! (And I dislike...
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Average intake of thiamin in the US is sufficient and meets or exceeds recommendations.
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I hesitated joining the thread because in my recent experience here (last two years), I’ve encountered responses that tend to reflect that the readers have simply not fully read, heard and appreciated the original commenters’ messages. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3829244/ I know a little about Wernicke's, have treated patients wit...
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I don't have Wernickes. I'm not malnourished, I'm an alcoholic, I don't even drink, mentioned nothing about alcohol, or even stomach/gastro issues, but it seems you truly want to talk about thiamine deficiency, this is very important to you - I suggest perhaps opening a more relevant thread. Thanks.
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A couple of months ago, there was a related thread - https://www.celiac.com/forums/topic/122992-diagnosed-with-sleep-apnea/ - in which I was encouraged again, again, and again to take magnesium, and in which I protested again and again (etc) that my levels were normal, even, I believe, posting lab results! And, deep breath in, here’s what I have t...
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Trouble swallowing choking on my own saliva?
plumbago replied to CottenCandyDream's topic in Related Issues & Disorders
If you are waking up choking on your saliva, you might consider getting evaluated for sleep apnea (when the pandemic subsides a bit). -
Trouble swallowing choking on my own saliva?
plumbago replied to CottenCandyDream's topic in Related Issues & Disorders
If you are curious to know your levels, you can order the test and pay for it yourself. It should be between $75 and $99. Not cheap, but it may give you piece of mind. I would think that if you were ever deficient, your doctor would order at least an annual D level, and if she or he did, then insurance would pay for it. Just request your doctor to order it... -
Smarties
plumbago replied to plumbago's topic in Gluten-Free Foods, Products, Shopping & Medications
I didn't even know they were available in the US. I wouldn't have made such a big deal asking a friend to bring me some back from England, if I did. But interesting they are gluten free in the US but not England. I wonder why that is. I also never stop wondering just what exactly wheat adds to a candy that makes it so necessary. Oh well. I shouldn't be eating...- 4 replies
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- britain
- british sweets
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