krystynycole

Two other things to consider:

1) Autism was not even included in the DMS until 1980 as a diagnosis itself. Before that it was classified as under childhood schizophrenia if it was diagnosed at all.

2) Aspergers Syndrome, Retts and PDD-NOS where not included in the DMS until 1994.

Considering those 2 things alone, is it any wonder the diagnosis rate is on the rise?

Totally agree!!!

It's not really as frightening as it sounds...I teach students with autism and my take on it is that they are finally giving students the correct diagnosis (sounds like many people with ceilac!). Many, many people were diagnosed with ADD or ADHD and/or OCD that sound have been autism. Doctors are now realizing that this. I feel like there is a greater awareness of what the disorder is and the numbers are rising only because there is greater knowledge.

My withdrawals to gluten were 10x worse than my caffeine addition...both I stopped cold turkey! Yeah they are bad but they will get better.

A food log with symptoms (no matter what time they appear!) is an excellent idea. I have caffeine and msg intolerances and found out this way. If that doesn't do anything, then you can consider an allergy test from the doctor for other foods.

Also, think about how this is helping you heal. If you are just dealing with it and keep eating things that are bothering you, then the damage from your gluten cannot heal because well, if at all, because there are other problems complicating the healing process.

I get this same reaction when I eat gluten...breaking out, itching on my stomach, dry skin, and increased psoriasis. However, I do not have DH. From what I've read, you typically do not have DH AND psoriasis, but it is possible none the less. I could just be your body's reaction to eating gluten.

As you heal, new symptoms can show that you did not know or feel before because of all the complications of the gluten. Its not uncommon for this to effect people later.

Another one I love is Wildfire...more expensive, but GREAT! They make you FRESH gluten free biscuts and will bring you as many as you want They had a gluten free event a while back to high light their gluten free menu.

Have you checked into other food allerigies/interolances? Some people on gluten free can't handle rice...what about corn? many fruits are covered in a substance containing corn for peticides...what about lactos?

Like Skylark, I also stick to things like rice and broth for a few days day and increase my water intake. Also, I have a gluten enzyme from the health food store. It works just like the lactose pills do, but on gluten. It basically helps break it down the gluten. While I still have all the nasty symptoms, it seems to help the gluten run it's course quicker and my symptoms be gone faster.

I go to this on in the suburbs and it is fabulous! I can't speak of the downtown locations, but in the suburbs, they can turn most of their dishes into gluten free upon request and I've never had cc issues.

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Peter you read my mind! I was thinking the same thing while reading the post. I have never seen gluten free cornflakes or crumbs that was not made specially for gluten free. Gluten has many, may hidden names because of all the derivatives/forms it can take on.

I'm one of them super sensitives and that's the kind I eat because I hate the texture of corn pasta. I have no issues with Tinkyada pasta.

I was carb addicted and wanted to eat anything and everything when I went gluten free. While I will still admit that I miss it, lessens over time and you get used to it because you feel better. I used to fill up on bread and not eat much of my entree when I went out to eat. It's like weening yourself off of anything you are addicted to like people who stop drinking caffeine. Your body wants one thing and one thing only. I know that's not any consolation now but I can promise you my love of bread is something I will long for forever.

I know we eat healthier so my husband feels better because he's not eating as much crap as before and now more natural foods without all that processing. He really only eats it when we got out which isn't often at all.

I will have to look at a health food or vitatim store for the D3 by Vitafusion. I buy that brand for Calcium and Multivitamin and they are wonders for my terrible tummy but have never seen the D3 where I shop, but that's only at Target/Walmart. Thanks!

Hi all. So I recently have run into several people who have out of no where told me about vitamin D3 helping with auto immune disorders and also healing guts--something I feel I'm struggling with. Also I read that people with celiac can below on magnesium causing leg spasms. This is the only thing about my health not improving. I assumed it was just a weird quirk I'd always have until I read about it. (Everything is connected to the stinking thing!)

At the same time I have a REALLY, REALLY hard time digesting vitamins...even the easy on the tummy kind. The only kind I've ever been able to tolerate outside of my probiotic is the gummy kind. Anyone have any suggestions for super sensitive stomachs for both vitamin d3 and magnesium?

Thanks!!

And do keep eating gluten until all your testing is finished, which may include an endoscopy if your blood tests are positive.

No other way?? You HAVE to keep eating gluten? I so want my daughter to get tested but no way would she

eat gluten!? She would have to take a week off work to even begin that. It makes her feel so bad....

Unfortunately it's true. This is why I consider myself non-confirmed celiac because I didn't know this until a month later and didn't care to go back on gluten and all the baggage for just a label. But that's my personal feeling in my situation. Some people psychologically need the confirmation and there is nothing wrong with that. Others may need it for school accommodations under ADA (Americans with Disabilities Act).

Welcome fellow Chicagoan! (If that's what we are called???) Glad to hear things are going good so far.

Blood tests are not always 100% so you may consider a biopsy. However, if you do this do not go off gluten. You must have it in your system to have a accurate result. You blood test could be low and/or show a false negative if you were previously avoiding some forms of wheat because of the eczema. I tested negative but consider myself gluten intolerant because going off of it I feel fantastic and all my symptoms have gone away including explainable migraines and hard to get rid of yeast infections.

I haven't been able to loose what I gained before I was diagnosed but in great pain. I still have not been able to loose it and am overweight, but I also have pain exercising in cardio. I just bought some weights this week hoping to see if I can do it without pain.

It's very possible you have celiac. You may also just be gluten intolerant. I teach students with autism and have a nephew with autism. Over the years I have seen many people with autism feel MUCH, MUCH better going off gluten even if they aren't celiac. If your tests are negative, it might be worth a shot to go off and see if it helps. Doctor's really can't explain the connection to autism and gluten, but I've seen it myself it can make a big difference.

dilettantesteph--I was previously thinking I may be super sensitive. Maybe this is the tip that's showing me. Thanks for assuring me I'm not alone though...sometimes I feel my adventures are odd in this gluten free venture!

deinanthe--interesting, I've never thought of that, however I'm working out at home. *sign* another thing to worry about in public! I have little motivation to work out let alone leave the house to do so! I record stuff on the dvr and save my favorite shows for the treadmill.

Hi all! So I finally got the courage up to exercise again after a long time of not because of pain. I haven't exercised like I should in a long time because it took me five years to be diagnosed and I'm now a year and two months into recovery. However, I tried to start exercising again a few weeks ago and my first week I did 4 times of fast, but not power walking for 20 minutes. The second week I went up to power walking, but had to stop after three times (I did every other day) because of the terrible pain I was in. Now I played basketball in school so I'm familiar with all the stretching and normal "over doing it" pain. I did stretch, I drank extra water, all of that, but I had terrible pain that felt like I was being glutened. All my symptoms I have when I am glutened came back...terrible intestinal pain, fatigue, join pain, brain fog--however I did not change introduce any other new foods so I know I'm not glutened. The worst part is The pain is still lingering now two weeks later just as strong as it was right after I exercised.

Anyone have any ideas or solutions to help my pain? I'd really like to get back to exercising because six years and counting is too long not to exercise!

Thanks!!

Interesting...I did not care for the cookies, but loved the cake! I totally agree with Sylvia. Check out those sites! My mom makes things from the Cake Mix Doctor gluten-free all the time for me and keeps some of it for her because she thinks they taste so good! If your into baking, she gives a ton of tips on how to make gluten-free cakes and other baked goods. I'm also on Betty Crocker.com all the time. They have great ideas for baking, but all for appetizers and meals!

I am self diagnosed for the sole reason I was not aware of how the blood test having false negative issues and also that I needed to be on gluten for good biopsy/blood work results. My GI was not very help with this information. My general practitioner was more informative when I went to him still complaining of issues and said it was worth a shot to stay gluten free (as I already started for two weeks at that point) as people can be gluten intolerant and test negative for Celiac or just have false negative blood work. So on his advice I stayed with it. He also talked to me and asked me if I needed a diagnosis for my own sake. Now he said this very kindly and was willing send me to another GI and get proper testing done if I wanted to get a label of Celiac because that's how confident he was in the fact I have it. However, since it will only get me a label, I didn't feel the need to go back on gluten and feel terrible again. Though in the back of my mind it would be nice to know.