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Marlie

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Everything posted by Marlie

  1. Marlie
    I second potato flour. Used that before I ever heard of celiac/gluten intolerance. I made pie crust recently which everyone liked. Do not over mix. You want pea sized lumps of butter and it must be very cold. Used cup for cup flour.
  2. Marlie
    I do not like bob's red mill. It's too gritty. Tried king Arthur and did not like that either. Tried mixing flours but got bored. So far Jules or cup for cup we like best. Better batter I have not tried yet.
  3. Marlie
    Refluxing does not necessarily have to be acidic based. There is no acid reflux as well. My child had both reflexes and MEDS did not stop the refluxing. Might want to google that.
  4. Marlie
    Since you have positive results for reflux, do you follow a GERD diet? You don't mention if you take any medications for GERD. These things may help you. You can also try a gluten-free diet to see if that helps. If none of these things help I would do further investigate your reflux.
  5. Marlie
    You can also have non acidic reflux which does not react to medications well. The only way to really know is to have a 24 hour PH impedence probe. This is how they differentiate between acid and nonacid and this is fairly new to the medical world.
  6. Marlie
    You might try getting a 24 hour PH impendence probe to check your refluxing. Medications did not work for my child.
  7. Marlie
    I would recommend you stay away from all foods that are known to trigger GERD. Have you tried any medications for GERD? There are two main types of meds to treat GERD. Then I would go for further testing such as the 24 Hour PH impedence probes and a Barium Study. A really good ENT should be able to see signs of GERD in the rear of the throat. Also, does...
  8. Marlie
    Have you had 24 hour impedence ph probe or a barium study? These tests will tell you alot about your GERD. My daughter had a Nissen and its a good thing she did. She was refluxing all the time and it wasn't just acidic on all medications used to control GERD. At the time she was Gluten free, Grain Free, and Dairy Free. She only ate about five foods...
  9. Marlie
    My daughter suffered from terrible neck pain and headaches and it was the sinuses. You might consider looking into a sinus infection. We suspect that was all caused by reflux in hindsight. Good luck!
  10. Marlie
    Hi! My daughter has been sick a long time. Initially thought it was Celiac, but I have been questioning that and may in fact be but I thought I would share what we learned. The gluten-free diet worked for a while, but became sicker with time including her asthma. About seven months ago we got lucky and an ENT probed her and found she had acid reflux...
  11. Marlie
    If you are not getting better on a gluten-free diet and you have symptoms of GERD try antacids or a proton pump inhibitor which you can buy over the counter. An ENT can also look to see if you are suffering from reflux. Reflux can make it very difficult to sleep, cause terrible chest pain, asthma, sinus infections hence sinus headaches. My child went gluten...
  12. Marlie
    My child had severe stomach pain about a year and a half ago and everyone thought it was appendicitis so was sent to ER. After 2nd trip to ER in 24 hours they did an xray and found a clog in her intestines. Fortunately they did Celiac testing while she was admitted and the DGP IGA and DGP IGG tests were positive. About a month later they did an endoscopy...
  13. Marlie
    Is it possible the birth control pills change dosages each week? Some Birth Control Pills do not give a consistent dose through the month but change weekly. Just a thought.
  14. Marlie
    It's difficult to remain gluten free as we all know and I don't think it is unusual to experiment with gluten to see h ow gluten does effect our bodies. We did. I am the mom of a teen who had positive DGP IGA and IGG but neg biopsy and genes. Initially I was told celiac and immediately had her gluten free. However, she was still sick and we found a...
  15. Marlie
    I'm with you that doctors ignore labs all too much and I sometimes why they even bother to order them. A doctor the other day mentioned to methe adrenal glands specifically cortisol production.
  16. Marlie

    ARCHIVED Hair Loss!

    Marlie replied to Asshhh's topic in Related Issues & Disorders

    To make a long story short my teen was diagnosed with celiac and then undiagnosed with celiac because her endoscopy was negative for damage and genes but has pos DGP iga and DGP igg. Prior to that she lost a clump of hair at her crown. We were both freaking out about it. I took her to dermatologist and without any testing said it was alopecia. Didnt...
  17. Marlie
    She's had many CBC's and has had many steroids over the years for headaches and sinus issues but only once had an elevated WBC when she had RMSF. A sinus infection requiring surgery never raised the WBC. Never have been dizzy from steroids and we had two oral doses several days later after lightheaded feeling.
  18. Marlie
    This is the deal. My daughter is completley gluten free. Most recently she suffered from allergies and had cluster shots. On third shot in series began to feel dizzy which has now been a week ago. Short story is she is still dizzy 24/7. She's had two steriods to counteract. They thought she might be dehydrated but she is not, urine is clear outside...
  19. Marlie
    I have so far had the best success with Jules flour. It has no weird taste and is closer in consistency to flour. Recipes still need to be altered but its night and day what I have come up with using this flour. My second choice would be a mixture of super finely ground white rice flour, potato starch and tapioca. I forewarn you that the Bob Red Mill...
  20. Marlie
    To me they taste the same. However, since you are not baking them you can up the butter to the normal amount and cut the flour back to the original recipe. We eat half of these as dough. We haven't yet but will make our own cookie dough ice cream. And by the way I am an extremely picky eater and extremely picky CCC person.
  21. Marlie
    Have only thus far tried only cookies and brownies. I'm trying to nail one thing at a time before I move to the next. I did nail Pumpkin Bread with the Authentic Food Flours. I've only accomplished brownies, chocolate chip cookies, snickerdoodles, Peanut Butter Blossoms, Pumpkin Bread and Waffles. Lemon Bars are my next challenge. I'm finding I don't...
  22. Marlie
    If you were to use 3 cups of confectioner's sugar use about 1/2 cup boiling water and whip until smooth. Then add about 1 3/4 cup of shortening/butter combo and whip for a long time until smooth. Add a little vanilla extract.
  23. Marlie
    Most icing recipes call for confectioners sugar, shortening/butter and vanilla. The trick is to whip the confectioners sugar with hot water to melt the sugar to get rid of the grittiness. Then whip the sugar/water with the shortening for a long time. I prefer a ratio of 50/50 butter/shortening.
  24. Marlie
    After dozens of batches of chocolate chip cookies I have finally found a way to make CCC that look like their non gluten-free version and taste like them without grittiness or a cake like texture that do not require the dough to be refrigerated. Follow original toll house recipe but make the following changes. Reduce oven temperature to 350 if cookies...
  25. Marlie
    11/4cups Jules flour 4 large eggs 1 teaspoon vanilla 4 unsweetened bakers chocolate squares 1/2stick of butter 2cups granulated sugar Heat oven325 Melt chocolate and butter over very low heat. Beat eggs with sugar. Add melted chocolate and butter. Add flour and vanilla. Mix. Line 13 by 9 inch Pyrex dish with wax paper and spread out mixture...
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