Jump to content

Marlie

Advanced Members
 View Profile  See their activity

  • Posts

    132

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Marlie

  1. Marlie
    DGP IgA and IgG are the Deamidiated Gliadin Peptide Tests for Celiac. Thanks for your interpretation. I just find the results to be so strange compared to most others although Gluten Free is definitely helping. I am wondering if Strep in your body could do this.
  2. Marlie
    Okay I finally got all the labs for my teen after waiting 6 weeks. I'm really confused and I hope someone is more technical than me. 1) Total IgA 67 (normal range44-441). Is this number low enough to make it harder to fight infections? Is it of concern outside of effecting testing for Celiac? 2) I know other people on board have said my daughter...
  3. Marlie
    Ditto Divamomma. Doctor saw nothing with endoscopy but biopsy proved positive.
  4. Marlie
    More people who have Celiac Disease are IgA deficient than those who are not. My child's total IGA was in the 60's and tested negative on the tTG and EMA. The other tests you ran she did not have but rather the Deamidiated Glidian Peptide DGP IgA and IgG which both came out positive especially the IgG. So you got me interested in the IgA deficiency as...
  5. Marlie
    I like to saute green beans and spinach with a tablespoon or two of both butter and olive oil with some chopped up garlic and then add some salt and pepper. Another thing we especially like is Aspargus grilled with some sesame oil and soy sauce (gluten free) with minced garlic, salt and pepper.
  6. Marlie
    I would fill out the forms for your daughter to get her labs and have her sign it and then deliver it to the doctor. When you see your doctor ask to see the labs. If he hasn't done a whole panel which a number of doctors don't ask him to. I would wait on the gluten free business until you at least get a hold of the results. If it seems like they won't...
  7. Marlie
    Some people have problems with corn. You may try not using it and see how you feel. If you don't improve you know its something else.
  8. Marlie
    I read today that other causes for elevated tTG include liver disease, diabetes, Crohn's Disease,
  9. Marlie
    I presume the doctor tested for Total IgA, DGP IgA, DGP IgG, EMA Iga,,and tGG IgA that all came out negative. Some celiacs test negative but have a positive biopsy. There is also Gluten Intolerance whereby people have the same symptoms of Celiac. Did they check for any vitamin deficiencies like B12, Vitamin D, Folic Acid? Most doctors never check for...
  10. Marlie
    We're eating gluten free for our teen, and last night my husband ordered veal piccata. He hasn't eaten any wheat for two months and his throat became very sore and his nose completely congested. Anyway he won't be doing that again.
  11. Marlie
    You need to find out if the doctor took biopsys (about 6 of them of the small intestine) during the endoscopy because they only can see damage without sending it the lab if its really bad. A tTG test is just one test within a series for a full celiac panel test. You can be negative on the tTG and positive on another.
  12. Marlie
    In our case the results were back in 48 hours. I think it just depends on the lab and when the doctor's office has a chance to call you.
  13. Marlie
    I would definitely try going Gluten Free if you can't get anywhere with your doctor. Maybe you could convince your doctor to check your vitamin levels. I would definitely start taking multivitamins if you are not already. I can tell you my daughter who is a teen lost a bunch of her hair, had brown marks on her chest which now seem to be fading, acne that...
  14. Marlie
    My daughter's acne has been getting so much better gluten free but it flares up if she gets cross contaminated. Also, the brown spots on her chest/neck area are finally fading.
  15. Marlie
    My daughter's stomach pain is intense and she'll have her knees to her tummy. Glad it wasn't pregnancy related however feeling terrible on top of being pregnant is surely no fun. Hope you feel better soon.
  16. Marlie
    Another thing to try is going 100% gluten free for about 2-4 weeks than reintroduce Gluten where your child then is fed foods with alot of Gluten like pizza and see whether your child has any negative side effects over the next few days. Try this a few times and you may have your answer. Going Gluten Free will generally make your body more sensitive to gluten...
  17. Marlie
    Snacks made by major manufacturers that you can find Gluten Free at a regular grocer (but you always have to check): popcorn, applesauce, fruit cups, potato chips - (I know Lay's Barbecue and Pringles are not okay as of my last visit; we generally eat Cape Cod and Kettle Chips), tortilla chips (Multigrain are most definitely problematic), Fruit Roll ups,...
  18. Marlie
    I have not had any success with bobs red mill. If gives a very griitty taste. My personal preference for the rice flours is authentic foods which I mix with ENERG brand tapioca and potato starch. Authentic foods is not sold in many places. If I could only choose from my local grocer I would pick gluten free pantry flour before Bobs red Mill.
  19. Marlie
    My teen was diagnosed with celiac not long ago. She's had various ailments over the years and on a couple of occasions the doctors suspected appendicitis. The ultrasounds were always neg, the blood work pretty normal. Well the latest episode we hit bullseye. She landed in the hospital twice over the course of 48 hours, which means they can't dismiss you...
  20. Marlie
    I would ask your doctor for all the labs so you can review them and see what exactly they have tested and google those you don't know to see what they are indicative of if the numbers were too be out of range. I hope you figure out what is making him sick. It's so frustrating.
  21. Marlie
    The initial test done was only tTG Iga and EMA IgA which were both negative. To be honest I didn't even know they did it but the doc was looking for autoimmune diseases. Two months later she got really sick and by sheer luck the hospital ordered a celaic panel but never told me. I got a phone call a few weeks later stating she had positive labs for celiac...
  22. Marlie
    I'd ask him to also run the DGP igA and IgG as those were the only two tests that showed a positive with my child and was negative on the others.
  23. Marlie
    My daughter is negative on the genetic testing but had a positive biopsy and blood tests . She was diagnosed as celiac prior to the genetic testing. I don't know how she is diagnosed now. I guess I'll find out at the followup but she is gluten free and will remain so.
  24. Marlie
    You are definitely a candidate. I can tell you getting diagnosed is an expensive proposition even with insurance. The blood work I believe was in the hundreds and the biopsy my guess would be $1000-$2000. The GI fee approved by our insurance just to do a biopsy without the hospital bill or anestheia was $950. If you can't afford any of this go gluten...
  25. Marlie
    I personally would not go Gluten Free until you test further especially if you can get it all done within the month and he isn't showing many symptoms. The reason being is your child is quite young and having a confirmed diagnosis is going to make things easier in terms of dealing with schools and other doctors. This would prevent any doubt down the road...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.