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Jill0711

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  1. Prior to diagnosis, I had this exact symptom...along with many others. It would feel like someone was stabbing me in between my ribcage. The only thing that would even provide some relief was a heating pad and as much pressure I could manage on the exact spot. I did end up in the ER once. The GI cocktail did nothing for me. They called it gastritis. Within...
  2. I was starving for about a month after going gluten-free. I think your body has essentially been starving for so long that when that is no longer the case, it just wants you to eat and eat. It does settle down after being gluten-free for awhile.
  3. I'm still eating skittles as a food group I think it is a normal thing for our bodies to crave the things it is used to and needs. Personally, I'm hoping that once the B12 kicks in I will no longer eat them so often. I know that my body wants them for energy and sugar is always a quick energy thing...of course, the crash comes later.
  4. First of all, you will not get better until you eliminate gluten completely. I found that when I went back on gluten for testing (per doctors orders) that my body got mad at me and went a little crazy and I ended up in the ER twice before I decided that I didn't care about the testing anymore. Second, even when you eliminate gluten completely, it takes the...
  5. Thank you for your input. The only meds I take are synthroid and birth control bills. I know that I can't take vitamins within 2 hours of the synthroid, but the synthroid shouldn't effect the vitamin levels. What is the difference between Methylcobalamin and the B12 that starts with a C? I didn't know which to get in the store. In your opinion, are there...
  6. I recently received the results from some bloodwork. I had the bloodwork taken because I have been exhausted and have had some peripheral neuropathy. I need some help interpreting the results as the doctor was less than helpful. Vitamin B12 195 (221-700) Transferrin Saturation 19 (20-55) Zinc 45 (55-150) There were also a few borderline...
  7. I know that peripherial neuropathy can be related to Celiac; however, in my case, the numbness and tingling didn't start until after I was gluten-free. I have no history of having it except about two years ago I had it as a side effect of a medication. My next thought was vitamin or nutrient difficiency. I thought it was B-12 related so I started eating...
  8. I understand your frustration and everyone has that moment where they freak out at never eating gluten again. I definitely went through that. If you can't wrap your mind around the all or nothing thing, then create a plan where you eliminate more and more until it is gone. Ideally you want to stop consuming it immediately, but it is better to take a month...
  9. It must be very shocking to hear that diagnosis. Make sure that you are not making your decision in a moment of panic rather than really thinking it through. First, there are people who simply ignore the diagnosis and go on with their lives; however, know that your body is still being damaged in some way if you continue to consume gluten. You may not see...
  10. You also need to remember that damage in the small intestine can be splotchy so, even if multiple biopsies are taken, it can be missed. I say that you need to base it on how you feel because testing is still so unreliable. I know that it is frustrating, but trust your instincts.
  11. I can tell you from recent experience, it does get better. For me it took about six weeks for things to calm down. There is definitely some withdrawal symptoms which sometimes feel worse than just eating gluten. If you stick it out, it will go away. Hang in there, take each day as it comes. Your body has a lot of healing to do.
  12. In some ways, you can have issues from the diet alone and it is usually from lack of fiber. A lot of the gluten-filled products are enriched while the gluten-free versions are not. The other consideration is dairy. I was still having D after going gluten-free and I tracked it down to a dairy intolerance. Having a milk intolerance is actually very common for...
  13. Thanks for all of the advice and sharing my misery It is nice to know that I am not the only one dealing with all of this. Starting Monday (because I have to grocery shop tomorrow first ), I am commited to a minimum of 2 weeks on a whole foods diet. Part of my energy issue is that I am craving sweets because my body is still malabsorbing fats. I think...
  14. I'm only a month and a half into this journey. I just wanted you to know that I felt exactly like you are describing when I eliminated gluten. It didn't help that because I was malabsorbing fat that my body craved it...and not the good kind. I will second the Snickers. They did help me get through that time. I will tell you that it does get better. I'm just...
  15. Another option would be to find out the name of the person or place catering it and speak with them directly. You can ask how things are prepared ahead of time. This way your friend doesn't have to worry about handling it. I have a friend with celiac disease and the one time we went to a wedding together, the caterer even made her a special plate and brought...
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