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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    Well, you know some of the stories I've told about her and yes, she's quite a character! If she can go gluten-free at her age and not think it such a "big damn deal" (her words) , anyone can.
  2. IrishHeart
    Thanks, Sylvia! My Mom will be happy to read it. BTW, she's 84 and since going gluten-free right after my DX and our gene testing, she feels great! Now, if her daughter could just catch up....
  3. IrishHeart
    She's DEAD WRONG. That is OLD school thinking---that it is a "childhood disease" . They also used to think people could recover and resume a gluten filled diet!!!--and now, there's a whole generation of us over 40 with celiac disease--suffering all our lives from various diseases and complications. For pete's sake what BS!! People are DXed in their 40s...
  4. IrishHeart
    I read a few of these studies and unfortunately, the results do not say that celiac is "cured"...please read the entire article...for example, the one that claims DH can be cured concludes with.... "There is concern, he added, that people who don't stick with the diet may have a higher risk of lymphoma and other complications. Consequently, Zone suggested...
  5. IrishHeart
    There is a major difference between a food sensitivity, a food intolerance and autoimmune celiac disease. Perhaps SOME people with sensitivities and intolerances can occasionally ingest gluten without a problem. And there is a difference between REMISSION and a CURE. Following a gluten-free diet is how to achieve remission. When there is a cure...
  6. IrishHeart
    Yeah, I am a big believer in probiotics for gut repair. I was a HUGE burning mess from mouth to you know where...and they did the trick. LUCK!! and have FUN!!! You may want to look at this guy's website about tips for traveling abroad ---and carry a few cards! Do you speak fluent Greek? If not, these may help..... Open Original Shared Link Please...
  7. IrishHeart
    There are no coincidences kiddo! Things happen as they are supposed to. It takes another person with this thing to see it in another. You know the little boy in the movie who "sees dead people" everywhere? well, "I see celiacs everywhere" --because I can recognize the "walking dead" from gluten intolerance. I educate anyone I can. It was my...
  8. IrishHeart
    Well, having battled serious depression myself (after years of multiple miscarriages and unsuccessful fertility treatments and a divorce) and then again in 2008, (my beloved Dad had died and I burst into burning nerve/joint pain and did not know why--and fell so ill & had to deal with this mystery THING that tried to kill me. Doctor after doctor, traditional...
  9. IrishHeart
    Suzanne, Her argument does not "hold some truth" as you say. While "everything in moderation" may be true for some things in life (a little wine, a little chocolate ), it simply does not apply to EVERYTHING. I can destroy that weak "argument" in two seconds....Is a moderate amount of rat poison okay to eat? How about a moderate amount of cyanide? ...
  10. IrishHeart
    DITTO! I was headed for (1) a wheelchair (2) a mental health ward or (3) a coffin if I had continued to listen to the doctors I was seeing. Even after my DX, not one apologized for missing it. And yes, I told them all...... SHUDDER...glad that's behind me now and we are, instead, chatting on here.... Just hang in there, everyone--it does...
  11. IrishHeart
    I learned the hard way about asking for test results and to ask WHY something was low or abnormal in the results. When I still naively trusted doctors and did not question anything, (dope that I was) I took every damn pill that was suggested and had whatever test they told me to take-- going on the premise that they knew best and whatever they gave me would...
  12. IrishHeart
    Rose--at 101, you are something!! Some days, I FEEL like 101... I took a look at the Dr. Christopher's formulas a while back--long before I knew I had celiac and was suffering from this pain. Interestingly, I had consulted a Naturopathic Doctor for help and she had me on just about ALL of those herbals at one point or another. It was crazy what I...
  13. IrishHeart
    That's the list I had read, too, Karen, so I have told Mom: NO CAMPBELL's
  14. IrishHeart
    1910... thanks for not editing that out when you could have...it made me giggle.... I hear light therapy works for some folks... and BTW, thanks for your post about 2 months ago regarding Curaphen (it's new name---it was Curamen) it really DOES help a bit with the inflammation. I had taken Turmeric/curcumin for many months pre-Dx and the...
  15. IrishHeart
    It depends on if you are deficient or not.
  16. IrishHeart
    Me too. I thought maybe it was because nearly every one I tried had soy lecithin in it (damn soy--arrgh!), So, for 10 months, I skipped the multi and recently, I took one and ...no problem. I wonder if it is the COMBO of vits/minerals, rather than the product?...not sure. Everything I ingest is an experiment with me, anyway...geesh.
  17. IrishHeart
    I would humbly suggest that you have your vitamin and mineral levels checked before you start massive dosing with vitamins and minerals you may not need. Have a doctor or naturopathic doctor monitor your progress. Contrary to popular belief, you CAN take too much of some supplements/herbals and create more digestive issues and an imbalance of vitamins...
  18. IrishHeart
    Thanks very much---I'll pass it on to Mom!
  19. IrishHeart
    Anxiety is understandable, given the fact that many of us have been ill for so long, sometimes having our symptoms scoffed at --or worse, ignored--by doctors. Getting a handle on the anxiety is a good idea because stress only causes wear and tear on the adrenal glands and digestive tract. I was in stress-mode from gluten for 4 years pre-diagnosis and I tried...
  20. IrishHeart
    You cannot imagine how many times I have to tell myself this, too.."baby steps". My doctor was emphatic about how long it took me to get this way and how it will take to reverse it...yah, yah, I get it; I just do not like it! ...I told myself that I am not unlike someone who has been imprisoned and starved and it will take years to recover. There is no magic...
  21. IrishHeart
    Hi and welcome!! It is recommended by most doctors (and those of us who have been there/done that )that you give up dairy for the first 6 months. Lactase, which is the enzyme that breaks down the sugar lactose, is produced in the tip of the villi. When the villi get blunted in celiac disease, sometimes the ability to digest lactose is decreased and...
  22. IrishHeart
    Been there /done that Because it takes so long for some of us to start responding to the gluten-free diet, it is frustrating and often, we think "Oh I must be reacting to this food, that lotion, this toothpaste.... or the air...." You are still healing. Things will be up, down and all-around for months. Sorry. It is what it is. I'm nearly 1...
  23. IrishHeart
    Hi Babs, I used Enzymedica Digest Gold, after talking with several people on here about them. I spoke with a rep from the company who told me they do not use barley malt in their product, they are gluten free and produced in a gluten-free facility. I have used them for 9 months. They helped me immensely with digestion, alternating D and C, and repairing...
  24. IrishHeart
    This is what my husband does...carries it JIC (just in case). He takes a low dose of metoprolal (My Mom does, too) and that seems to get the rhythm back to normal. There's nothing quite like seeing your husband hooked up to machines in the ER, all red-faced and sweating, heart rate at 226 ....MY heart almost stopped that day! He was working out at the gym...
  25. IrishHeart
    I suffer from horrible, SEVERE burning, tingling, parasthesia--ever since the celiac was triggered in me for good in Feb. 2008. Agonizing pain. Many tests, EMGs, examinations, blood work...NO explanation for it. Some suggested small fiber neuropathy and two doctors suggest it will resolve in a few years (hopefully)as I remain gluten free. I had hoped it...
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