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WinterSong

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  • celia-with-celiac
  • manitourose
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  • Gender
    Female
  • Interests
    Theatre, cooking, singing, dance, yoga, fitness, gluten free baking, eating chocolate

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About Me

My recipe blog "Tasty Meditation: Tales from a Gluten Free Kitchen" can be found at www.TastyMeditation.blogspot.com

 

 

Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test - March 18th, 2011
tTG-IgA >300 Positive
EMA-IgA >1:320 Positive
Gliadin >400 (high)

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

  1. Because I think the moral thing to do is inform the parents that quotes from their kids will be posted online. I include the option to message me because some parents prefer to not post about their children publicly. I’m pretty sure it doesn’t violate any self promotion since my blog’s name/my full name isn’t stated. Like if someone mentions they wo...
  2. I'm not religious at all, but I was really upset when the pope totally rejected gluten free wafers. I love what is written above - God/Jesus would not want anyone to get sick. I hope more churches offer totally gluten free options for those who need it.
  3. Hi! I want to make sure I don't break any self promotion rules. Is this an acceptable post since I do not mention my blog's name and do not include any links? I've been a member of this forum for years. "Hey parents - I'd like to put together a list of positive quotes from kids with Celiac. Quotes will be posted on my blog anonymously (I'm not including...
  4. I don't think there is anything to stop an autoimmune reaction. However, I would try meditating. The stress of knowing when we are going to get sick does not help us.
  5. What are your symptoms? Do you know your reaction time? Unfortunately, I don't think there is a way to immediately stop a gluten reaction. Drink lots of water, rest, and be kind to yourself. Sorry to hear that you got glutened!
  6. Thank you so much for your advice! I'll try some of your suggestions. Unfortunately, I think I'll be skipping the dermatologist if I can manage. Super high deducible means i'd be paying out of pocket
  7. This is the second time this has happened over the past 2 months. I've developed some very dry skin that starts at the base of one ear and wraps down/under/around my entire jawline. It's not my entire neck - it mostly wraps in a line around my face. My makeup/brushes never touch that area and I haven't changed facial products recently, so I'm totally puzzled...
  8. I made an informative video for Celiac Awareness Month that demonstrates how small 20ppm is. Am I allowed to post a vimeo link? Thanks!
  9. Open Original Shared Link This was on last Tuesday. So happy that a popular national news program is spreading good information!
  10. I am so angry. I am all about universal screening for Celiac Disease. It is a tricky disease to diagnose. Your only symptoms may be joint pain, depression, or weak nails, which people will try to cure with medication or a good manicure. With roughly 80% of the Celiac population remaining undiagnosed, universal screening could save thousands of lives. This...
  11. Well, that is just wheat. Their bars/squares might be wheat free, as well, but the culprit there is barley. Also I just got this reply: For legal reasons the information that has been provided is the only information we are authorized to provide you with. To reiterate, our products are not certified as being gluten free. FDA requires...
  12. Hey guys, I emailed Ghirardelli to ask about their updated allergen information because I had heard that people stopped recommending most of their products. I was specifically asking about their chocolate chips because my understanding is that they are free of gluten and not made on the same lines as that one bar/square that contains barley. This is...
  13. From Mom (she doesn't have a computer at the moment, so thank you for being patient as I post for her): Gemini, Do you take the chewable product as recommended. It appears to only have 300mg of calcium per day? That seems to be to little for someone with osteoporosis? I also saw a product they sell that is extra strength but not chewable which...
  14. From the mom: Dear Gemini, thank you for your response. I have been to a bone specialist and he said I was loosing bone due to medication I was on. 2 years later with out the medication, following a strict diet, weight training and walking and taking supplements I lost more bone than with out the big push to stop the loss of bone. I would be...
  15. And yes, she is very strictly gluten free
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