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Macbre

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Macbre

  1. Macbre
    I have been using a pocket size hand sanitizer from Bath & Body works since Oct. and did not realize that it has "wheat amino acids" in it. I happened to look at the inactive ingredients today just to show my mother that it was safe....and what do I find....WHEAT!! That definitly explains why I get CC and can't figure out what it's from. I only use...
  2. Macbre
    Yes, yes & yes.....that was one of my first symptoms that led me to the Dr. and then to a cardiologist. I was diagnosed with Veso Vegal Syncope about 6 months prior to being diagnosed with Celiac. Even now, I experience more heart related issues than GI issues when I get CC. I would lay on the couch at night and feel like my heart rate was dropping...
  3. Macbre
    I know you are frustrated....I think we've all been there at one point or another after being diagnosed. You will find that you will still be able to have most anything you want. You will just have to use gluten free products and I have to say that most of them are just as good if not better. I make the bobs red mill gluten free pizza mix and bake it on a...
  4. Macbre
    Is Klonopin the same as "colozapan" (not sure of spelling)? The reason I ask this is because my mother was on Colozapan for anxiety and she was recently diagnosed with early dementia, but it was being caused by her anxiety med. She was taken off gradually about 2 mths ago and she is back to normal again. Just wanted to give you an fyi just in case it was...
  5. Macbre
    One thing you need to consider about the endoscopy is that it may not be accurate since you have been 30 days gluten free. I chose not to have the endoscopy because my doctor told me to stop eating gluten immediatly when the blood test came back positive and they had me scheduled for the endoscopy for 3 weeks later, but after talking with "veteran celiacs...
  6. Macbre
    When I got diagnosed that was my main complaint. I didn't have any GI issues, it was a constant pain under my left ribcage. It did get better once I went gluten free, but it does come back when I get glutened. I do have heart palpations and chest pain on a regular basis, but I have POTS (postural ortostatic cardio syndrome)and it does get worse with glutening...
  7. Macbre
    I know this is a personal/disgusting question.....does anyone else experience rectal spasms after being glutened? I have had them several times, but I didn't relate it to glutening until last night. I got sick after Thanksgiving dinner and during the night I woke up with the worst rectal spasms. It lasted for 2 hours this time. I was wondering if this...
  8. Macbre
    I thought I was doing everything right by making my own food to take to my Mother-in-laws, but I ended up sick anyway. I'm thinking now maybe it was the sweetpotatoes or the carrot cake that I made. I'm not sure what would have had gluten in it, but my best guess would be the sweet potatoes. Does anyone know if Bruce's brand sweet potatoes in syrup are...
  9. Macbre

    ARCHIVED Depressed

    Macbre replied to DonnaMM's topic in Coping with Celiac Disease

    I know how you feel....it is hard adjusting to the fact that others can eat anything they want and you have to read a label before you even think about touching it. It does become depressing. My husband does most of the cooking in our home...and granted he has been wonderful....but I do get upset when he wants to try something new and he finds out I can...
  10. Macbre
    Nuts and seeds (trail mix) cause me more acid reflux then any other food. You might want to lay off those for a few days & see if that is the problem.
  11. Macbre
    I think I'll just make my kids start fixing their own food!! They have to learn sometime....right?
  12. Macbre
    I've always made homemade pizza for my kids.....bread maker & then I roll out the dough and put it in the pan. The past few times I've made it I noticed that I was sick that night and figured it was something I ate, but tonight I noticed that once I touched the flour I started itching on my arms and them my face. I'm wondering why this affects me, but...
  13. Macbre
    I was just wondering if anyone else has both Celiac's and POTS (Postural orthostatic tachycardia syndrome)......I don't think they are related. It seems you can get POTS from a viral infection, which I had approx 3 years ago, but I was wondering if anyone else has it. I'm just curious to know is if you have both if the symptoms are worse when you get glutened...
  14. Macbre
    I would highly recommend pro-biotics. I had terrible hearburn/indigestion before I was diganosed,and I started the Natren pro-biotics and now they help when I've been crossed contaminated. I don't go a day without them.
  15. Macbre
    I didn't have the endo or colonoscopy because my doctor wanted to schedule it 4 weeks after he had me go gluten free. I had read that the test could be negative if you didn't have it done right away and after a week of going gluten free I was feeling so much better that I decided not to have it done. It didn't help that I was going to have to pay out of...
  16. Macbre
    I don't know why it last so long either, but I did try something different the last time I was accidently glutened. Even though I felt horrible and had absolutely no energy and my joints ached...I made myself exercise....I have to say that I sweated more than usual but I felt better afterwards and my symptoms didn't last as long. I guess sweating is kind...
  17. Macbre
    Since I've been gluten free for 10 months I find that when I get glutened now my symptoms are worse than they were....guess I'm becoming more sensitive. My major sysmptoms (that last anywhere from 1 week to 3 weeks) are: Diarrhea Heart Palpations (major symptom) anxiety hives brain fog moodiness ears ringing (I know it's strange) achy joints (feels...
  18. Macbre
    I know this question has probably been answered a dozen times, but I didn't have the patience to look thru the topics....I got glutened over the weekend (still don't know what I ate). I always seem to have the GI issues @ first then a few days later have the anxiety, mood swings, joint pain and then I get the chest pains w/palpations (still dealing with...
  19. Macbre
    Does anyone know if Sweet Baby Ray's Honey Chipotle Barbecue Sauce is gluten free? I thought it was when I bought it, but now I can't find any information on their website and since it's the weekend I can't contact them. I ate it on chicken last night and this morning I have all the symptoms of being glutened. I was doing so good....haven't been glutened...
  20. Macbre
    Happy 4th to everyone!! I had a Mojito about an hour ago and I'm noticing I'm feeling very anxious. I tried to find out if the Myers white rum was gluten free, but I couldn't find a definite answer. I thought since it was clear in color that it was okay, but I'm thinking now that maybe I was wrong. Does anyone know??
  21. Macbre
    I am so frustrated and confused.... I have been gluten free since Dec. of this year and now I'm developing other food allergies, (ex. shellfish, spinach, almond milk, but not almonds). I also had a reaction similar to an asthma attack last night about 3 hours after I cut my grass. I was lying down watching TV and I started coughing because my throat felt...
  22. Macbre
    I buy the Enjoy Life products. They don't contain any soy. They taste really good too!
  23. Macbre
    I can't imagine being in your situation with only a few stores to choose from with such a small selection. There is a website called www.buythecase.net. They sell many items by the case and I looked to see it they had any of the gluten free items that I buy. They sell a variety of Amy's and Bob's Red Mill, but I didn't see any Pamela products. It is more...
  24. Macbre
    I know what you are going through. My main complaint when I was diagnosed was constipation. The dr. had me on Miralax, but it didn't always do the trick until 3-5 days later. I was miserable by then. My gynecologist told me about Magnesium. I now take 400mg 2x/day along with my probiotic, and I am much more regular.
  25. Macbre
    Since I'm new to this I have a question..... I have taken gluten completely out of my diet and I feel 90% better, but sometimes I get major D after I've eaten something that I know doesn't contain gluten so I'm thinking maybe I have an allergy to soy/soy lecithin. If I continue to eat those foods containing soy & I do have an allergy to it, will it still...
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