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sreese68

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Everything posted by sreese68

  1. sreese68
    A friend of mine who's been gluten-free for 5 years says that she doesn't react as much to CC as she used to. I haven't been at it long enough to give any input.
  2. sreese68
    You need to be eating gluten for a celiac blood test to be accurate. Did you ask them to run a celiac panel? Might be a good idea before you try gluten free. Once you go gluten free, you'll react even worse to it when you reintroduce it into your diet if gluten really is causing your problems. Makes it hard for those who are gluten-free to eat it again...
  3. sreese68
    I did a gluten challenge after being gluten-free for 8 weeks. I had an obvious reaction to it. However, I was surprised that it was ALL neurological at first. Took 4 days for any GI involvement (I get C instead of D). Also took almost a week to feel better afterwards. I'd recommend trying gluten this weekend to see what happens. Then you'll have a better...
  4. sreese68
    My husband has chronic bronchitis, so the kids and I get the flu shot each year to protect him. He got the pneumonia one. And we both got the adult pertussis shot a few years ago since outbreaks happen here from time to time. If my husband didn't have issues, I'm not sure we'd get them
  5. sreese68
  6. sreese68
    We're going to London next week and renting a place near Regent's Park. The rental agency said they'd buy groceries for us when we first get there, or there's a Tesco Express close by. Do Tesco Expresses carry fresh produce and meat? Do they have a decent selection of gluten-free bread, pasta, etc? Or am I better off at the Whole Foods in Camden? Or someplace...
  7. sreese68

    ARCHIVED What Kind Of Doctor

    sreese68 replied to 3littlebears's topic in Doctors

    ***Oops! Just saw above me that this is an old thread! Sorry!!** If you suspect his rash is DH, you could schedule an appointment with a dermatologist. Then have your son eat gluten right before the appointment, so his rash will show up and it can get biopsied. That way, he'd only have to eat it a time or two instead of the 3 months it takes for a blood...
  8. sreese68
    This is more sandwich shop than restaurant, but Bee's Knees Bakeshop outside Austin is totally gluten-free: Open Original Shared Link They serve breakfast and lunch, and they sell baked goods and mixes. Food for Life Network (NOT the same company as the national one that makes food for grocery stores) also outside Austin: Open Original Shared Link Their...
  9. sreese68
    I wouldn't bother with the expense of Enterolab. Go gluten free for two months, then try it and see how your body reacts. (Make sure you eliminate all possibilities of cross contamination in your home and avoid eating out, so you're truly gluten free.) If you suspect other foods, this is a good time to eliminate them also. Oh, before you go gluten-free...
  10. sreese68
    Thanks everyone! I've had a migraine all weekend off and on, or I would have replied sooner. I just made an appointment with my dentist for next week. I discovered that I do clench my teeth, so tmj is a possibility. I discovered I have lines inside my cheeks and on my bottom inner lip that line up with where my teeth go together.
  11. sreese68
    We're going to a pot luck tomorrow, and I had thought of bringing some Annie's mac and cheese as one dish. There will be at least one other family there with family members who have celiacs (possibly 3 families). My boys eat pasta so fast it never sits out! Will it get too gummy if it sits on the counter for awhile? And yes, I'll keep it separate...
  12. sreese68
    I
  13. sreese68
    I found a way to test just gluten. I was afraid if I ate something with wheat flour, I wouldn't know if I was reacting to the fructans in wheat or the gluten. (I have fructose malabsorption, so fructans (chain of fructose) are an issue for me.) I bought vital wheat gluten flour, which is essentially a big bag of gluten. I cooked it in olive oil, kind of...
  14. sreese68
    Acne doesn't itch, so if your bumps are itching, it's something else. Ones that don't itch could be acne. (I've been fighting acne for 26 years, so lots of experience here!!) I found that when I first went gluten free, I had an acne breakout just as if I were starting a new acne medication (many of them cause an initial breakout before they start working...
  15. sreese68
    I would find a new doctor. I bet if he were the one to live with hives for 5 months, he wouldn't call it no big deal! And if you're feeling off, you should definitely get checked out. I would keep a record of what you eat (just in case it's food related) and any symptoms you have: fatigue, rash, even just not feeling right. Hard data like this helps a...
  16. sreese68
    My 13yo doesn't seem to have problems to gluten, but she does need to have things proven to her before she accepts them. If it were my daughter, I'd find a good book on celiacs and have her read it. Sometimes getting information from an expert vs mom makes all the difference in the world! Of course another choice is to have her look at websites and blogs...
  17. sreese68
    Unfortunately, the false negative rate for bloodwork is much higher than what a lot of doctors think. My own GI said it had an accuracy rate of 98%! (which is quite wrong! And he was wrong about other details of celiac.) Good thing my neurologist said that he sees false negatives all the time and to pursue things further. Anyway, I had negative bloodwork...
  18. sreese68
    I agree with this. However, I also think you should take your husband's feelings into consideration. Is this event really important to him? Does he want you to meet the people he spends all day with? Does he want to show you off (I mean that in a flattering way)? If it means a lot to him, you should just go. Sometimes we have to do things we don't like...
  19. sreese68
    I got a facial on Friday, and one of the tools she was using accidentally slid into my mouth. The tool had gotten some of the cosmetic products she was using on me onto it. My tongue swelled some. It looks like a holly leaf but not that extreme - the sides look like there are bumps placed at regular intervals. I think the bumps are where my tongue should...
  20. sreese68
    If sugary things bother you, you may have fructose malabsorption. Fructose is found in sugar, fruit, and veggies. It can get kind of complicated trying to figure out what fruits you can eat and how many. My nerves are acting up today, so I'm just going to paste this from a previous post of mine: I found IBS Free At Last to be a helpful book and a good...
  21. sreese68
    LOL! I'm not a fan of synthetic food either, I must admit! (And I thought it tasted terrible!) Thanks for letting me know it only took a few sips. I've never had D as a food reaction, so I'm kind of curious if I would happen again and what ingredients I could possibly be reacting to. I'm going to the place where I drank it next week, so I'll have to look...
  22. sreese68
    I had 3 tiny sips of Coffeemate in a coffee someone else made for me. (I always drink mine black.) I had D that evening. I normally have C, so I was shocked! I put it down to some hamburger meat I ate the night before that had had a buttery smell to it. BUT I had cooked it for the kids, and they didn't get sick. Their meal was cooked for 20 minutes and...
  23. sreese68
    I also malabsorb fructose. The embarrassing gas and the stomach pain was not fun!! I also found that it's one of the things behind the fatigue and lethargy I was having (gluten also does this to me). It's a pain figuring out what fruits and veggies you can eat because the amount of fructose in them varies by season, where they're grown, and variety...
  24. sreese68
    The problem is he may end up with a long and miserable life. I wish I had known that my neurological problems wouldn't have gotten this bad if I had been diagnosed a decade ago. I didn't have GI symptoms until a couple of years ago, and those actually come from fructose malabsorption. (People with celiac often develop secondary food intolerances.) I had...
  25. sreese68
    Is there a decent light cutting board on the market? I used to have some flexible ones by Progressive, but it always felt like my knife was going to slide off them when I used them, so I got rid of them. I'd like something a little lighter than my usual cutting board for my suitcase! LOL!
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