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Sarah Alli

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Sarah Alli

  1. Sarah Alli
    I'm going home to visit my family for Christmas- it's my second Christmas gluten free. My father and sister are both apparently gluten-sensitive although they won't completely switch over. So we're obviously doing a full gluten-free-only holidays. I am a good baker and a competent cook, perhaps that's why I never found being gluten free terribly daunting...
  2. Sarah Alli
    I am definitely going to try altering the recipe next time. I also might just be eating too many, since when I eat chocolate chips I also drink milk... and I'm mildly lactose intolerant. However this morning I got my period so I am thinking that it might be that, and was gastroenteritis last time. My abdominal pain from my gluten intolerance is typically...
  3. Sarah Alli
    Your eyes require lutein to function properly. Go on a lutein free diet and you are shooting yourself in the foot- not to mention you will probably starve since it is in nearly everything from leafy vegetables to animal fats. There isn't really any actual scientific evidence that *-free diets are useful in reducing the symptoms of autism anyway, and this...
  4. Sarah Alli
    I tried a new recipe for chocolate chip cookies about a week ago (Open Original Shared Link quite good, by the way). I had never had amaranth before but I noticed that I felt kind of sick after I ate them. There's a stomach virus going around, though, and I work in a hospital where I'm exposed to every crud and crap that passes through the community. I figured...
  5. Sarah Alli
    This has happened to me too! I am not as careful about iodine as I maybe should be- it's very difficult for me to avoid seafood. But I almost never add salt to anything, except when I'm making peanut butter and I rarely eat highly processed foods- organic cheeses and jams are usually the most processed I get. And yeah, things I never thought of as salty...
  6. Sarah Alli
    I don't really know why someone would miss gluten. I bake and everything I've made tastes as good or better (I love the almondy flavor Pamela's has) as gluteny things. I've made banana bread, oatmeal muffins, coconut cupcakes, cheesecake, chocolate chip cookies, snickerdoodles, on and on. All gluten free, and nobody can tell the difference. I have recipes...
  7. Sarah Alli
    Heck yeah. I'd enjoy my delicious pain au chocolat (that's what I'd eat for sure), earn enough to pay for any further schooling I want to pursue, and they'd get... a six or seven hour video of me passed out, probably snoring. Sounds fair to me!!
  8. Sarah Alli
    No idea where you live, but in the US you have a legal right to a copy of your lab results- something to keep in mind if for some bizarre reason your doctor pushes back. The medical group I use has their own online database, and I can log in and view all my test results at any time. When I have more tests they are automatically uploaded and I am sent an...
  9. Sarah Alli
    Ew, get a new doctor asap. Seriously- to refuse to test someone with an extensive family history? That's bordering on malpractice. That said, if you've been gluten free for three months, you're probably going to get a false negative on a test. You have to be eating gluten for those things to come back positive. Maybe take another look at your diet. How...
  10. Sarah Alli
    For the sake of exploring every possible solution- you're absolutely sure you're not actually being bitten by something, right? Especially on your lower legs, I'd be concerned about ticks and mites from walking through tall grass, but spiders also can leave nasty welts and if you find that they're appearing overnight it might not be a bad idea to wash all...
  11. Sarah Alli
    How much saltwater are you really drinking while you're swimming?
  12. Sarah Alli
    Here's one of my patches (this is my left shin): I wish I had taken a picture last night instead- I got glutened a few days ago and my whole right hand was just totally red and bumpy. Anyway, I haven't been officially diagnosed. I have asthma and allergies so I sort of thought it was just contact dermatitis, but a doctor told me she didn't think...
  13. Sarah Alli
    Oh, I've gone mad all right. Not because of being gluten free though.
  14. Sarah Alli
    Yikes. Take your temperature- if you have anything resembling a fever go straight back to the hospital and this time demand a CT scan. More than likely it is just the celiac, but you really don't want to take any chances if there's a possibility of ruptured appendix or (if you're a lady) ovarian torsion.
  15. Sarah Alli
    Yesterday, my sweetie and I went to Five Guys, this burger joint that is supposedly really good with gluten stuff. Their fries are supposed to be safe because they only put potatoes in the fryer, nothing else. I did lots of research in advance, and when we went in I ordered my burger without a bun and asked the lady to have the person who makes my burger...
  16. Sarah Alli
    Elimination diets tend to be more accurate than testing, as long as you are strict and stick with them long enough to reasonably see results (or no results, as the case may be). Another reason to not put too much faith in the tests is that other conditions can cause you to feel nasty when you consume gluteny/dairy things. While celiac disease, which is...
  17. Sarah Alli
    I had pretty severe asthma- unquestionably a disease- growing up. It never bothered me or made me feel inferior, it was almost a badge of pride for some reason. I had my special inhalers and breathing machines and could leave class to go to the nurse whenever I wanted! I think you underestimate your daughter. She'll do just fine. After all, a disease is...
  18. Sarah Alli
    It doesn't seem to complicated to me. It's been my experience that radiologists, pathologists, etc only report what they see, they don't diagnose. So... This is not a diagnosis in the normal sense. This is a description of the damage to your intestine. Seems straightforward. This was a duodenal endoscopy. This is what your doctor suspected...
  19. Sarah Alli
    I find tramadol helps a little for the pain. It's prescription, though and when I'm gluten free I don't generally need it. I'm not super sensitive. I use triamcinolone acetonide ointment when my rashes flare up. It doesn't get rid of them but at least makes them itch less for a while. Your mileage may totally vary as I have not been diagnosed with DH. Just...
  20. Sarah Alli
    I was tested for vitamin D deficiency when all this first started, it was quite low. But everyone that I know that's been tested was low- I think it's baseline, especially in Alaska where I was living at the time. I was retested about two months after gluten-free, now within normal limits! Still on the low end, but it's a victory for sure. Just need to get...
  21. Sarah Alli
    I like to use this: Open Original Shared Link to replace the Onion Soup Mix. It tastes basically the same and, possible gluten issues aside, it's not chock full of artificial flavorings, colors, or preservatives.
  22. Sarah Alli
    Basically normal for me these days is low grade fever and significant fatigue, it's a bit hard for me to tell sometimes if I'm ok or not. I did some research and found that a WBC <1.0 is considered acutely dangerous, so I won't keel over and die, but I am concerned about getting an infection. I'm going to make an appointment tomorrow to actually get in...
  23. Sarah Alli
    Well, I highlighted the ones that were out of normal range. Everything else (red blood cells, etc) were all apparently normal. Some of the liver function ones had also changed significantly since my last test but were still within normal. I am hoping she will call me back. It is actually my psychiatrist that ordered these tests- but my GP seems to always...
  24. Sarah Alli
    My doctor ordered a second cbc/metabolic panel for me about a week ago. When it came back, she told me it was normal. I asked for a copy of it, which I got today. My last cbc, four months ago, was totally normal, with all my values square in the middle of the normal range. Not this time. These were off: White Blood Cell Count Current test: 2.2 ...
  25. Sarah Alli
    I think I know what you're talking about. Those kind of things are usually caused by injuries to the nail matrix, but that sort of thing can actually still fall under koilonychia especially if you're sure you haven't been injured. Here's another pic that might be closer to what you're talking about. I get deep vertical ridges in my big toenails, too...
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