Kansas
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Latest Celiac Disease News & Research:
Everything posted by Kansas
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ARCHIVED Am I Doing Something Wrong? Can't Take This Anymore.
Kansas replied to GFreeMO's topic in Dermatitis Herpetiformis
Are you eating anything with vanilla in it? While I don't get sick like a real glutening, I itch! It is the kind of vanilla that is supposed to be safe for us. Dairy and soy also give me gluten like symptoms, itching, dry skin, hair loss, sleep problems, etc. So, no gluten, including vanilla and white vinegar, no soy and no dairy... skin and hair does... -
ARCHIVED Please Help (Elimination Diet)
Kansas replied to Mennoknight's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Everyone is different. If I get cc, I have different reactions everytime, plus some of the old ones as well. And the reaction/healing time is different everytime as well. I don't know what I think about being super sensitive, I react with joints hurting and skin problems when I try using things such as MacCormick's Vaniila that is labeled gluten free... -
ARCHIVED Looking For Some Advice Please
Kansas replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am gluten intolerant, my first symptoms were nerve related. Went to doctors, specialists, they ruled out everything, but couldn't tell me what was causing my problems. I went gluten free on the advice of a neighbor, and the nerve problems dissappeared along with about 300 other symptoms...well maybe not 300 but close. Took awhile but am feeling great... -
ARCHIVED My Son's Health Continues To Decline!
Kansas replied to CeliacDad55's topic in Parents, Friends and Loved Ones of Celiacs
If his health is still declining, I would go completely WHOLE foods, only. I would also suggest no dairy and no soy. I know how having a sick kid can make you feel, my prayers and thoughts are with you. -
I used a knife my husband had spread his jam with, I used it to cut a banana, was sick 20 minutes later. I also have been using Diamond brand walnuts in my muffins without any problems. One morning for breakfast, had my usual muffin and twenty minutes later I was sick. Read the label, "nuts are processed on same lines as wheat, other nuts etc. I get sick...
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ARCHIVED Confused Please Help
Kansas replied to suecosgrove's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I tested negative to the gene testing, but definitely am gluten intolerant. I agree with the others, if you feel better without gluten, stay on the diet. -
ARCHIVED Epic Story - Any Advice Appreciated
Kansas replied to kmccormick61583's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry you have had such a rough time. I think most of us have experienced the bad doctor part, and most of your symptoms fall right in line with being celaic/gluten intolerant. When I was the most ill, the only thing I could tolerate was Ensure, gradually got off of that and I eat only whole foods that I prepare myself. I can not tolerate any dairy or soy... -
ARCHIVED 5 Month Withdrawel Anyone Been Fatigued This Long?
Kansas replied to imthedude's topic in Coping with Celiac Disease
I felt like I was a "slow" in healing. Once I stopped dairy and soy,(as well as gluten)everything improved, including energy,sleep,skin,etc. I feel so much better. -
I think the whole world be better off gluten free. A long time ago we had hogs being produced on our farm. If we wanted a better price, we added wheat to their diet to fatten them out. I am sure the meat wasn't improved but it put more dollars in my pocket at sale time. We are an obese nation, I think gluten being in everything processed is the culprit...
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ARCHIVED Could It Be Celiacs?
Kansas replied to frustratedgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had many of your symptoms and your problems with doctors, only I was 58 years old. Symptoms kept mutlipling, with more weird things happening everyday. Neighbor kept telling me it was gluten. I am self diagnosed as I could not do any more doctors or specialists, I was literally dying. I tried the diet and have steadily improved and now 61 and healthy... -
I am trying to take probiotics, having heard they help. I am gluten,dairy, and soy intolerant. The first ones I purchased had dairy in them (Culterelle). I then read here on forum that they had a dairy/ gluten free probiotic. Second day of taking them, and my stomach and gut are upset. Is this normal? Do I dare continue, does anyone else react to probiotics...
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ARCHIVED Did Anyone See The Today Show This Morning?
Kansas replied to Macbre's topic in Coping with Celiac Disease
Do you suppose they are really that dumb, or they know the whole health industry would change, if we didn't have all autoimmune problems and symptoms related to gluten? Might take a nickle out of their pocket! -
ARCHIVED Remember Me? Look What I Found!
Kansas replied to IcookForYou's topic in Dermatitis Herpetiformis
You can also use applesauce for a very moist nice cake, chocolate or vanilla or ?. I susbstitute it for any cake recipe that calls for milk, since I am dairy, soy, & gluten intolerant, and use olive oil for butter or shortening (usually less than it calls for) without any problems. -
If I were you I would go completely unprocessed, whole foods. That way you know what you are putting in your mouth. Wholes foods means the potato, not the tots,or the chips. It means, make your own ketchup not buy a bottle, etc. And it is not that hard to do. When I am hungry for a particular item, I can adjust a recipe or find one that works. I would...
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ARCHIVED My Husband Doesn't Get It
Kansas replied to eborzecki's topic in Coping with Celiac Disease
Please don't let this disease rob you of any more than it already has. I think what you are feeling is part of the recovery, most of us have been there. It does get better, I felt like you for awhile, now that I am healthy again, it doesn't bother me a bit when I take my own food or have to explain why I can't have most items served. I keep it short and... -
ARCHIVED Sooo Tired, Hair Loss, No Stamina
Kansas replied to ravenwoodglass's topic in Related Issues & Disorders
Hey...you are my "go to gal" when I need advice, so I hate you not feeling well! I would guess vitamin deficiency and the fact that your body needs food more often than when you are eating. Your body is going way too long between bedtime snack and dinner the next day. Is there anyway you could drink Ensure or make a nutritional something for breakfast... -
ARCHIVED Are You "self Diagnosed"?
Kansas replied to BrittLoves2Run's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am untested as well. Numerous doctors and specialists tested me for so many things, started losing over a pound a day, neighbor kept telling me to try the diet because her husband is gluten intolerant, I didn't have any of his symptoms. Surgery doc (that was going to perform endoscope) told me to drink Ensure, of course she didn't do any testing for gluten... -
Like other posters have written, it is tough at first. Super tough and sometimes very frustrating! But it is so worth it! And you will probably find a lot of little other symptoms that you blame on age or something else will dissappear. Your attitude about what you can't eat will be a complete opposite. I lost a good 40 pounds as a plus. I now maintain...
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ARCHIVED What Is Your Worst Symptom When Glutened?
Kansas replied to Googles's topic in Coping with Celiac Disease
The neuro symptoms I experience are the worst with the GI running a close second, Then knowing it will take a month to 6 weeks before I feel super again really hits hard, because every time I have been glutened is when I decide I can try something labeled gluten free. I have now decided that the only things I eat will be certified gluten free and whole... -
I am not sure I have the typical DH skin problems. Had no problems with skin until going gluten free. Gluten free for three years with only the crusty/cracky finger problem that resolved once I cut out dairy. I was glutened about a month ago and became extremely itchy with a rash on arms, lower legs and stomach. I used Vapor Rub on the rash, and it felt...
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ARCHIVED I Don't Know What's Wrong
Kansas replied to Black Jax's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Everything you "give up" will certainly be worth it. The girlfriend can still use her cookbooks and continue to cook, she will just become more creative. I just had a lovely Thansgiving with all the tradional foods and served 16 people, everyone loving what was served. The pay off of being gluten free and regaining your health is so worth it! You probably... -
ARCHIVED I'm Getting Worse!?
Kansas replied to cruzewkr's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would almost guess you are still getting gluten. I have about decided to eat all unprocessed food,(no dairy or gluten of course) as everything out there with a gluten free label stuck on it makes me sick. I get to feeling really healthy, then get dumb and try something that is labeled gluten free and then go through weeks of feeling like crap, every part... -
ARCHIVED How Do You Forgive Yourself?
Kansas replied to newmom07's topic in Parents, Friends and Loved Ones of Celiacs
So sorry about your little one, it is a learning process, so don't be so hard on yourself. I have learned, still learning, that about the only gluten free labels that I can trust are the certiflied gluten free items. I was eating Endangered Spieces Chocolate candy bars until I went dairy free, and now to satisfy that craving I eat the Enjoy Life chocolate... -
ARCHIVED Why Did You Suspect You Were Super-Sensitive?
Kansas replied to T.H.'s topic in Super Sensitive People
No,the ham was ok. I have had the same experience with Snickers, UTZ Potato Stix, and Baby Ruth.