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saintmaybe

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by saintmaybe

  1. saintmaybe
    From what I've read, the highest associated risk understood AT THIS TIME in western medicine is with two copies of DQ2. In genetic parlance, this would make you homozygous for DQ2. Homozygotes for DQ2 who continue to eat wheat have a 30-40% chance of developing celiac disease over the course of their entire life. DQ8 is the second most common allele associated...
  2. saintmaybe

    People: Read "Wheat Belly" It will change your life for the better, I promise.

  3. saintmaybe
    I haven't been gluten free that long, but like you GlutenDude, I've lost nearly everything important to me as a result of gluten side effects. I really can't see wanting it-- I've been reading excerpts from "Wheat Belly," and there are such profound(ly bad) health consequences from eating wheat, aside from celiac disease....Why would you want to? The...
  4. saintmaybe
    Yep, your Mom is what's called a super-celiac. She's a heterodimer for the two most commonly associated celiac alleles. You have either 2 or 8 and whatever you got from your Dad. It may be worth testing in yourself, because celiac genes are at a high rate of prevalence in the general population as well. Meaning, there's nothing that says you couldn't have...
  5. saintmaybe
    What are the reference ranges for your tests?
  6. saintmaybe
    The fastest reactions I have are from things like mexican food, where the combination is flour + grease. I had On the Border a few weeks ago, and ordered from their gluten free menu. Still got sick as a dog, because I believe they forgot to switch out the flour tortilla for a corn one. That, or they cooked all the fixins' in the same oil as everyone else...
  7. saintmaybe

    guys, guys, there is going to be a live action captain planet movie! I can't even! I am so excite!

  8. saintmaybe
    So I was one of the lucky duckies that got one of the seasonal changeover colds (or flu), not sure which. And I'm reminded once again of how much *fun* it is to be dealing with residual gluten ataxia on top of crazy cold medication highness. A sample phone call in to work: Me: "Hi. Hank? It's ____. I can't come in to work today. I have a cold...
  9. saintmaybe

    Arrrrrrhhhghhh, #Haven. How am I going to wait until christmas? The same way I waited a year for new TWood, and multiple years for XFiles

  10. saintmaybe
    First, let me say that I am sorry you're so sick. Many people on the board have been there, so I think you will find good company here if you just need to vent. If you need practical advice...are you sure you're completely gluten free? Once I was, my digestive system stabilized almost immediately, and I stopped dropping weight almost instantly. That said...
  11. saintmaybe

    People are already divided. All that's left now is for you to choose a side.

  12. saintmaybe

    Me: I'm eating all the supercookies. Which are way better than the supercommittee. My supercookie can't fail me. Jay: They won't deadlock.

  13. saintmaybe

    Chocolate chip!

  14. saintmaybe
    Oh my lord, I am SO HAPPY and relieved you told your fiance about your celiac. It's such a huge, life changing diagnosis, I can't see how a marriage would work trying to hide that for any length of time. Plus why would you want to? I told my fiance right away, when I was diagnosed. In fact, he was the one who initially suggested Celiac (because he's a ridiculous...
  15. saintmaybe
    My mom is coming to visit tomorrow, and initially I was really excited because this is the first time post-diagnosis I've seen her. I haven't been feeling *great,* but certainly a lot better, and I was looking forward to this as an opportunity to reconnect. Lo and behold, she calls tonight, jazzed about a work reunion she went to. As she's talking...
  16. saintmaybe

    Amazing. My mom has a new record of making me cry before we even see each other in person. She must have secret powers. #evilsheis

  17. saintmaybe
  18. saintmaybe
    Hooray! I have people talking about celiac disease at work. One of my most recalcitrant employees who DOES NOT LIKE ME nonetheless came in and told me about the Wild Harvest monthlong specials in honor of celiac disease awareness. It was the first thing he told me about when he came in! Also, I have a friend who's gone to the store twice to buy me...
  19. saintmaybe
    I second, third, and fourth all the responses. I think it's extremely nice when people accommodate my celiac, but...But. The fact is, we celiacs have a pretty rare autoimmune disorder. The MOST GENEROUS estimates put us at about 1 in 135. That's a lot, but it's it's still a little, ya dig? I neither need nor expect the world to revolve around my disease...
  20. saintmaybe
    Yes, dqa1*0501/dqb1*0201 combine to make HLA-DQ2.5, which confers the highest genetic risk for celiac disease. I believe if I am interpreting your results correctly, you are homozygous for DQ2.5, not at all uncommon as I said. This means that you were lucky enough to inherit a copy of a celiac gene from both of your parents, ducky. Are you by chance of Western...
  21. saintmaybe

    This guy is a blue collar mechanic who hates hippies and is otherwise allergic to everything whole foods. Angry little italian man.

  22. saintmaybe

    Young Orlando has bit the dust in Midsomer Murders, in quite the nasty way.

  23. saintmaybe
    You share genetic results with 95% of confirmed celiac patients, according to a lit review I read. You are also very low in D (fat soluble vitamin, an indicator of malabsorption), and Iron (Iron deficiency anemia being super common in celiac as well). It's not a DIAGNOSIS per se, but a VERY STRONG INDICATION that you are celiac.
  24. saintmaybe
    Absolutely! People always act like I'm trying to poison them when I ask them to try gluten-free anything. I'd find it amusing if I didn't also find it ignorant as ****. These are the same people who will moan for hours about being on restricted diabetic diets (much worse IMHO) or about their multiple unexplained health issues. I've learned to just keep...
  25. saintmaybe

    Cooking the back on the heating pad with menthol and topical aspirin. Stick a fork in me, I'm done!

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