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saintmaybe

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by saintmaybe

  1. saintmaybe
    I just got dosed by CC last night, and am off work today. Nausea, massive headache, D last night though thank God not today. Sore, joint pain. Fun times had by all.
  2. saintmaybe

    We are going to show people that the way things are is not the way they have to be. #generodenberry

  3. saintmaybe

    Ugh. Severe glutening. #celiac #GlutenFree :(

  4. saintmaybe

    Got a UTI. =( Granted, it was my own damn fault for having sex for like an hour and a half straight last night.

  5. saintmaybe

    "Nothing would be all right, ever. Because no matter how much he did,it would never be enough." *sob sob sob* #JimKirk #academyverse

  6. saintmaybe

    Hehehe- I KNEW spock wasn't a virgin in #ThisSideofParadise. #Spock is such a lying liar who lies. #sneaky

  7. saintmaybe

    "All I ask for is a tall ship, and a star to steer her by." #Kirk #tos #startrek

  8. saintmaybe
    I figure just like you don't need a doctor's prescription for gluten free, you don't need a prescription for iron supplements. Everything I've read lately by *knowledgeable* specialists (read: hematologists) is that anything below 40 can cause serious side effects. 70is better, and 100 is ideal. Hair loss, extreme fatigue, dizziness, shortness of breath....
  9. saintmaybe
    It usually adds up over time. In my iron deficiency, it wasn't unmasked until I went gluten free and I felt better but not well, after my gluten detox. My anxiety was through the roof my first week, which wore off. But my iron deficiency showed up two or three months later when i was still sleeping like I was in a coma, 10-12 hrs per day.
  10. saintmaybe
    You might be iron deficient. Do you have severe fatigue? Sleeping a lot? Ask for hemoglobin, hematocrit, and a full iron panel, plus CBC. Post your numbers and let us know!
  11. saintmaybe
    I believe untreated celiac causes an inflammatory cascade, that can inflame the joints and cause damage. In my own case, I've recently been dealing with inflammation of the hip, specifically the bursa. I also have osteoarthritis of the spine, and possible very early stages of degenerative disc disease. Both of which had a familial history anyway, but when...
  12. saintmaybe
    Yes. In gluten ataxia, antibodies are attacking and destroying Purkinje cells, which are responsible for perception of space and your position in it. Celiac has also been known To cause severe MS like and RA like symtpto S, the damage of which is so similar to the real thing, they are Often clinically indistinguishable.
  13. saintmaybe
    I took it upon myself to do some at home glucose measurements, because I've had a candida infection that is basically unresponsive to treatment. The doctor has never looked for underlying causes-- the rheumatologist seemed to think I should bloody SUE for malpractice over this. Anyway, my fasting blood sugar has pretty reliably come up at 93-95. This...
  14. saintmaybe

    "It is customary to give one's constable a gift after each orbital cycle"

  15. saintmaybe
    It sounds like you've made up your mind already. You'll probably take him gluten free if his blood tests and/ or his endoscopy are positive, and you won't if his blood tests are negative. It sounds like you're hesitant to put him through a challenge. I...have no idea how a challenge would go on a non-celiac individual, since I was definitely celiac when I...
  16. saintmaybe

    You know that simpsons episode where sideshow bob is stepping on a bunch of rakes and grumbling? That's me today. Pissed off/ thwarted.

  17. saintmaybe

    ARCHIVED An Update

    saintmaybe replied to zus888's topic in Coping with Celiac Disease

    I think many of us are so happy to be feeling drastically better, losing out on gluten has not felt limiting, but freeing. That said, I saw enormous immediate benefits from going on the diet and have immediate dire consequences if I go off. It would be much more difficult if I was a silent celiac, or had refractory sprue. My health has finally started improving...
  18. saintmaybe
    Wow, such a useful discussion. Another piece of the puzzle. I can't figure out why I want to sleep 12 hours a day. I'm guessing 18 for ferritin is bad. And that was measured *before* my acute celiac really set in. Thanks guys!
  19. saintmaybe
    That's good to know that I should be keeping an eye on it. Maybe I'll get my PCP to throw in an ANA and RF next spring just for giggles.
  20. saintmaybe
    Yeah, the bursitis hurt quite a bit. I finally gave in and got the cortisone shot in my hip. I realize this is just a mask and the inflammation can come back, but I couldn't sleep and I couldn't work! Doctors might suck, and ordinarily I prefer natural, but meds are okay when the situation calls for it. The hypermobility clusters with celiac (which I...
  21. saintmaybe

    ARCHIVED Is It Worth Seeing A Gi?

    saintmaybe replied to saintmaybe's topic in Doctors

    Yeah, that's what I thought. I just wanted to confirm my suspicions with someone else.
  22. saintmaybe
    That was an old panel, run before I knew what to ask for. Next time, I'm going to ask for the full panel plus TPO.
  23. saintmaybe
    So I got a diagnosis of bursitis of the hip yesterday, as well as mild hypermobility. My question is, how did the doctor rule out RA if she didn't run any blood tests for at least ANA's when bursitis is a symptom of RA? Honest question here. Full disclosure, I have a heavily physical job so it can easily be an Overuse injury unrelated to celiac. She seemed...
  24. saintmaybe

    I will continue to rail against our stupid and backwards medical system. That said, cortisone shots for crap joints are the best thing ever.

  25. saintmaybe
    I'm a 27 year old female. My TSH last spring was 0.9 on a scale of 0-4. Is this normal, abnormal, and how do I interpret it? I didn't have a full thyroid panel run.
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