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Contact Canadian Karen. They have this white cake mix up there that is FANTASTIC!!!!!!!!!! Already used it, so I don't know what the name of it is!!
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Nightblindness can be caused by antigliadin antibodies destroying the perkinje cells in the retinas of your eyes. You can also develop colorblindness by this happening, as well. Ask my retinal opthmalogist! Who knew???????
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Jess, I am so sorry about your puppy. That had to be so hard. I am also so sorry about what is going on at work. What type of therapist are you? In what environment do you work?
Quite frankly, I'm in healthcare and I'm a germ-a-phobe! I was ALWAYS cleaning doorknobs, phones, light switches, keyboards . . . and on and on . . . . I don't want anyone else's garbage!
Using a child, in any situation, to pull a stunt like that is wrong, but if this is in a psychological therapy environment, teaching a child to do something like that is simply reprehensible. It sounds as if the person or persons who did this are ethically void. My heavens!
I certainly hope that things are starting to improve for you in the VERY near future. Please take care of yourself. (((((((((((Hugs)))))))))) Lynne
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Beverly -- that is NOT FAIR!!!!! You guys . . . . Jen will e-mail me the pictures, I WILL post one of them as my avatar. I am ALSO trying to get pics from Ashley's wedding from the friend of hers . . . . that way, you can actually see me with real make-up, my hair done (although it was VERY foo-foo -- and PUFFY) and dressed nicely!
Don't know what the interest is . . . I'm not anything spectacular. Kind of plain, overweight and not happy about it, but I am growing long luxurious blond hair (a goal since I was a kid). When I was little, I HAD blonde hair . . . . then it got darker and darker and darker. Then, what do you know? It got little white strands in it . . . and began to get lighter! So, I figured if it was going to get LIGHTER -- then it might as well be BLONDE lighter vs. SILVER lighter! Then, I really did myself in . . . I started growing it out so that I could wear it up for Ashley's wedding. Needless to say, Dave likes the long luxurious blonde hair!! (Although, he did think it was a little hot when I was a red-head!)
Talk to you guys soon, and maybe you'll SEE me (other than Jen & Armetta -- oh yeah, and Beverly with the picture).
You need to know . . . I tried to put my baby picture as my avatar, but it wouldn't re-size correctly. You didn't state AT WHAT AGE you wanted to see me!
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You're welcome -- good luck, and I hope you're feeling better. Hugs, Lynne
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Susie -- how are you?????? Lynnie
Before being diagnosed, we had all that deep-fried garbage at our State Fair. Deep fried snickers bars, twinkies, etc. Never tried them, because it just sounded WRONG!!!!! Also thought that it had to be a Kentucky redneck thing . . . . !!!!!
Didn't know that it would be anywhere else . . . We have a restaurant that sells deep-fried pickle chips . . . called "frickled pickles"
Need to go . . . . moment of silence is getting ready to begin
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Nancy -- you are so funny!!!!!
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I haven't had the procedure, but had to read . . . . Chelsea -- you crack me up!!!!
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My neurologist blames a really BAD endocrinologist that I changed to (insurance) who took me off the synthroid, and I developed full-blown Hashimoto's. He thinks that the gluten intolerance was a "watershed" effect of autoimmune diseases that I developed. Another doctor thinks that it was Coxsackie (sp?) virus that I caught from one of the kids I was treating . . . you normally don't get it as an adult, and I got REALLY sick --- pneumonia in both lungs upper & lower lobes, infection in both ears, maxillary and frontal sinuses on both sides, lymph nodes throughout . . . . but kept working long hours, not stopping . . . . that MD said that my body couldn't take the huge amount of illness I had plus the extreme hours I was working and decided to fight back!
Oooooooh, AutumnE -- 1,000 cc -- that's HUGE. That really is stretched out . . . . try to "re-train" your bladder by going every three hours -- after having kids, you can develop some real problems . . . . PM me if you want . . . . I am a PT who treated women's health and pediatrics (talk about a weird combo . . . ), but I can give you some pointers with regard to that . . . . .
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You guys are sneaky . . . .
Jen -- et tu, Brute???????
Okay, okay . . . . I'll put my picture up! This one will be temporary until I can find a decent one, though!
Oh, the presha!!
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Yep buying running shoes is a crap shoot.
I agree with everything here although I have found that out of the real running shoes some makes are consistently closer to the shape of your foot. Obviously decent makes like NB also come in width fittings as well.
I have a very high arch which doesn't help so if I buy the wrong shoe the "comfortable" size on my arch is often too large so I slip and end up with my toes taking the beating.
However you can also buy inserts which modify the shoeliner. (the sponge part that comes out in decent shoes) ... this might help out for a few bucks if you have already invested in expensive shoes.
Really severe cases you can even get custom made sorbothane (sp) inserts which replace the ones in the shoe... These are expensive and you need to see a specialist to get them because they are made for your feet...
However if you do they are transferable from running shoes to tennis shoes etc.
Im just really mentioning this if you have already invested in good running shoes.
A really good running shop will be able to help.... it doesn't need to be the one where you bought them and for people on a budget a good trick is to get fitted in an expensive place and buy exactly the same shoe somewhere cheaper.
If you can afford it then a second different pair of shoes is nice... and alternate the shoes..... in reality its not more expensive since they will last twice as long... if you live in a rainy/muddy place probably more than twice as long...if you take care and wash them off after and let them dry naturally. Either way if you run regularly its nice putting on dry shoes, even if you are going out to run in the rain!
Good point . . . . forgot to mention the inserts. If you do have a high arch, particularly if it collapses, you'll need an insert such as a Spenco Cross Training insert or Power Steps. There is one out there . . . can't think of it's name, but it's black and says it's mold-able to your foot --- it's expensive, flattens out in no time and is NOT worth the money. Power Steps (if you need much more support) are the best way to go.
If you're going to get two pair of shoes and alternate (which is the best way to do that . . . they last much longer), it may be best to get two of the same type . . . your body has to adjust each time you change the dynamics of the shoe. You get about 500 hours per pair of shoes . . .
Also, when you clean your shoes, don't put them in the washer -- often times the heel counter of the shoe (the back portion which holds your heel firmly) is very firm cardboard . . . if you put it in the machine, you've washed away most of what you paid the high price for!!
Thanks for adding what I missed, GFP -- you're right on target!!
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I think I understand how you're feeling . . . at times it does get overwhelming. It is hard not to be defined by this disease when it encompasses so much of your world. While several different diseases force you to watch your diet rigorously, I don't know of any that requires such investigation into what is or is not safe to eat. It gets frustrating and often infuriating.
I agree -- don't let this disease define who you are. You are so many things more than just a Celiac patient. I hated it when I heard doctors during rounds say "this is the right knee osteotomy" -- NO. This is a patient, an actual human being who had an osteotomy on the right knee.
In my case, I'm a physical therapist, I'm a wife, a mother, a daughter, a sister, an aunt, a daughter-in-law, a sister-in-law, a friend, a goofball, and a person who happens to be in a wheelchair because of Gluten intolerance. But I refuse to let this disease define who I am. Then it wins.
Please take care of you . . . . .
xoxoxoxox
Lynne
aka "Wheelie" by Armetta --- Mouse
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I agree with everything posted! Keeping toenails trimmed is actually pretty important for serious runners. But, MORE IMPORTANTLY -- go to a shoe store that specializes in fitting people for running shoes. It sounds like you have what's commonly referred to (at least here) as "runner's toe" . . . it's from ill-fitting shoes. We have two shoe stores here that specifically fit you for the size, shape and type for the activity that you are pursuing.
One store, oddly, consistently fits shoes too small -- but then again the owner is a runner, likes his shoes short, and had his toenails removed on his big toes so that he wouldn't get exactly what you have! The other store, however, is owned by a woman whose father is a podiatrist . . . she is OBSESSIVE about the exact right shoe . . . I have been in there and had to try on 10-12 pair of shoes because she "just didn't like the fit" of the shoes! Each time I've been in there, though, I've come out with the best pair of shoes for what I need. Now that I'm in a wheelchair, and particularly given the way that I walk when I'm NOT, I am so thankful for her knowledge.
Each successive year, a particular "name" of a shoe, or a model may not have the same fit, last or qualities of the previous years. It's important that you get someone who knows what's going on with each type. Also, if you look for a store that is something like a "premium New Balance Dealer" (not necessarily a New Balance store), they are usually the type of store of which I'm speaking. In order to carry the higher-end, more responsive, more supportive shoes, New Balance mandates that they are these types of stores.
Good luck . . . and don't be surprised if you lose those toenails . . . if they're not damaged far back at the matrix, they'll grow back in. If they start separating from the nail bed and DON'T grow back in correctly, consult a podiatrist ASAP.
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Hey Hi-Tech -- It feels kind of funny to say "I'm so happy that you have gallstones"!!!!!
I am SO glad that you got that ultrasound done . . . I'm tellin' ya . . . I can't begin to count the pregnant women I treated that their gallbladder trouble inevitably kicked in during their pregnancy. Sounds bizarre, but it happens.
Have they talked to you about your diet? Fatty foods are an ABSOLUTE no-no. At this point, I would SERIOUSLY entertain the idea of consulting a dietician, preferably one that is very well-versed in celiac. I was fortunate enough to find one here -- she was a WEALTH of information. If you find one like that, not only will she/he be able to give you guidance with regard to the gallbladder, but you might also get some additional celiac info -- bonus!
I am so sorry that you had to suffer through three (now) pregnancies before someone took you seriously. That is unacceptable. It makes me furious that healthcare is where it is today. I was fortunate enough to work with some physicians who would take me seriously and listen to what I had to say -- even though I had a "lesser" degree than them. I also had some that thought if I had an independent thought that I was overstepping my boundaries -- despite the fact that our Practice Act in Kentucky allows for us to give a "Physical Therapy Diagnosis".
I would guess that if you have that many stones, they may want to remove your gallbladder after the baby is born. Not a bad idea, really . . . . you would be surprised how much better IN GENERAL you'll feel afterward . . . those stones can be real stinkers -- and you don't even realize it, because it's not as bad as it is right now.
I'm sorry I was right, but I'm glad you got an answer . . . how's that??? Please take care of you . . . .
xoxoxoxoxox
Lynne
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That is AWESOME!!!! Can't wait to send it out -- my friends are going to bust-a-gut. Then send an e-mail to me chewing my *ss out for getting them!
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Lisa, you are Baaaaaaaad! Yes, I have shown my *ss!
Will have to consider showing my face . . . .
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That is bust-a-gut funny!!!!!
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Check with Broncobux on this one . . . he can explain it MUCH better than I can . . . but he will tell you that MOST bleu cheese made now is safe . . . as I said, in a MUCH better way that I could possibly do it!
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I definitely think this is a violation of the Americans with Disabilities Act. Hmmm.... certainly garnered some press, but should garner much more... I wonder if anyone else with restricted diets was turned away or forced to discard their food? Could get interesting. Anyone know media persons in the area? Attornies? (not that I'm a huge fan of litigation, but I'm getting there . . . . ) Anything that would hit them in their pocket-books . . . that would do it.
This past year, at one of our festivals, I broke a caster to my wheelchair on a power-cord that was poorly placed, HUGE, and not covered. It is covered under the ADA. I informed the festival chair -- he was a little "antsy" about if I was O.K., etc, but I told him that I would be back again this year, and if it wasn't taken care of, I would be filing an official report with the Civil Liberties Union. A first time fine of up to $100,000 and a second one up to $500,000 is nothing to be taken lightly.
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Have suffered from boils, as well -- since my teens. No miracle cures for me, either.
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Hi Eileen . . . . welcome to the forum. . . . I would just like to say that, if you are finding that you're making improvement, please make sure that you stay gluten free. It's really important for your neurological health. I'm so glad that you're getting better, and I wish you the BEST of luck. Congratulations, too, on the birth of your baby!!
xoxoxo
Lynne
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My mother first took me to a naturopathic doctor when I was six weeks old and had a sinus infection -- and I kept it for six weeks. He kept telling her to do saline rinses of my nasal passages and it would go away. Finally, my grandmother convinced her to bring me into Louisville to our family doctor -- who diagnosed me with every type of infection available for a three month old infant. I was VERY VERY sick.
As an adult, I decided to go to a naturopathic doctor -- she prescribed vitamins that I was to take 6 times per day . . . I ended up with lupus-like symptoms -- hot swollen joints which were completely immobile, etc. etc. She also prescribed colloidal silver for my ears . . it burned the living daylights out of them, and I noticed no particular improvement.
As for silver nitrate . . . that is used for cauterization, as well. Silver nitrate sticks are used to coagulate the blood to stop bleeding in a wound. It was also used when my son's nose would NOT stop bleeding after several hours during one particularly bad nosebleed. It is some strong stuff. Both my kids had it put in their eyes (they're 20 and 24) -- is it any wonder that their eyes were swollen closed for the pictures the next day?????
I was going to a doctor who was a very good combination of Eastern and Western medicine. Unfortunately, his practice policies got him into some ummmm......hot water, and I can't seem to locate him. I've switched to a traditional Western MD who recognizes that I do appreciate some of the Eastern traditions . . . so far, we haven't butted heads very much!
As a PT, we are supposed to (evidently by Doctrine -- just a joke) supposed to be HIGHLY against chiropractors. Phooey. I have met some of the BEST chiropractors . . . that's what they're TRAINED to do --manipulate the spine -- and they do it WELL. Conversely, I have met some of the WORST Physical Therapists -- actually graduated with a couple of 'em!! Each specialty has good and bad. Take what you can from the good ones, dismiss what you know is bologna from the bad ones, and find a happy medium.
But the colloidal silver? I really had a BAD experience with it . . . .
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Hi Tech -- gluten-free Betsy is right .. . . you CAN find a doctor who will listen to you. I hope your family doc will listen -- if he/she doesn't, keep going . . . even if you have to see a GI doctor during your pregnancy. I would keep pressing . . . SOMEONE NEEDS TO LISTEN TO YOU!!!!! Good luck to you . . . I wish you the best and will say a little prayer for you . . . . Lynne
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You are, of course, quite right about this. And that is the reason for an increase for most people of course. The first couple paragraphs had to make me smile, true though they are. I also have Ehlers Danlos Syndrome and the mental picture I got from your description was quite vivid. I could still bend into pretzel shapes with ease at 9 months along.
You'd better believe you could! Probably still can now . . . !!!!!
I have the "cigarette paper" skin and the hyperextensibility of the forearm skin which are pretty much hallmark of Ehrler's-Danlos, severe hypermobility along with some highly personal aspects as well, but I have so daggoned many diagnoses there's no way I'm going to press the issue!
Columbus Conference, Ohio, Nov 4,2006
in Publications & Publicity
Posted
Hey -- I live in Louisville, KY AND the Eddie Bauer outlet (the real one, not like the ones in the outlet malls!) is there, isn't it?????? MY DH wants to take a visit there, so perhaps he would enjoy hearing much, much more about this disease which has us eating strangely
