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tiredofdoctors

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  1. Hey Patti . . . . went to that thread, then the site -- No, that wasn't it . . . I actually went to a site where you could purchase the things . . . they described in detail how they sterilize them (I think three times . . not sure . . . ), how they're packaged, etc. There's an entire site devoted to the information and purchase. It's kind of cool, really, that it can remove that much intestinal inflammation.

    FOUND IT!!!!! www.ovamed.de -- that will get you to their home site -- you can read from there . . ..

  2. I agree. Gluten actually affects only my brain (long story), but I can definitely tell a difference when I accidentally get "glutened". The thing about gluten-free is that it is all or nothing. You can't just do it "a little". I would recommend you get the book "Dangerous Grains" by Dr. Peter Greene. It has really GOOD information for someone newly diagnosed. The problem with continuing with gluten is that you don't know WHAT damage is being done . . . and WHERE in your body . . . If the doctor can tell prior to the biopsy that you're celiac, my advice is to go gluten-free, and the sooner, the better. It's a pain in the butt at first, but once you get used to it, and get your family and significant other on board, it's really not that hard. It just takes some work at first. Luckily, this forum is a WEALTH of people with experience, knowledge, and sometimes most importantly, compassion. Good luck to you, Lynne

  3. I got the travel kabuki brush last year with a set -- talk about a difference when you're applying the foundation -- MUCH better coverage. The brush I'm talking about is the smooth, flat one that is tapered . . . I think it might be called the "full coverage brush" -- in fact, I think that's what it is . . . I have trouble with word recall because of this stuff, and it takes 10 minutes sometimes before I get the word, unless someone tells it to me and I can say "Yes". Ugh. At any rate, it is the full coverage brush . . . it's REALLY good for your "nose pits" (creases) and the insides and under your eyes. Also, my cousin swears by "Well-rested" for her eyes . . . I haven't tried it, but she says it's great . . . .

    RE: QVC -- I'm just glad that my husband doesn't want to see the statement when it comes in . . . . . B)

  4. Oh, Patti -- I'm trying not to become a QVC junkie, but I'm telling you, it's getting bad . . . will have to get the lip venom, now!!!

    I use the Bisque before I use the foundation, too. My "nasolabial folds" (around my nose) are pretty bad, so I use the (can't think of the name, sorry) -- it's the brush that's flat and REALLY applies it to that area. But, do the same as you . . . .

    Have you seen the summer gift set at Ulta -- it's GREAT!! If you don't have one close, pm me, and I'll give you my #. I'll buy it for you and send it . . . you will LOVE it . . . it's not that expensive for all that you get, either!

    Yeah, the Cetaphil thing caught me off-guard . . . I just FORGOT that they said that about the lotion, and just slathered it all over my face -- including my mouth -- made me so mad at myself!

  5. I think that if you are diagnosed with a chemical imbalance in your brain, it is perfectly natural to take a medication that will help regulate that imbalance. If you were diabetic and the physician prescribed insulin, you would probably take it, right? Even if it's only for a temporary period of time (usually psychiatrists think of "temporary" as at least 9 months), medication is certainly a very good option.

    I think that therapy is also VERY helpful. I found two different therapists (insurance, you know . . . ) who were both excellent. One therapist did EMDR -- the eye movement thing -- I did have a panic attack during one of those sessions, but even though I thought of it as voo-doo therapy, it actually worked! I have had so many good suggestions made for controlling anxiety by these two women . . . I can't remember when my last panic attack WAS.

    Also, I agree with Susan -- returning to your faith, whatever it is/was, gives you a real sense of calm. I had really lost my faith -- and finding it was such a blessing for me. I was also VERY (lucky?), because I found my faith prior to getting sick. If I hadn't, I don't know that I wouldn't be a very, very bitter woman. And I know that I would certainly be a slave to panic attacks.

    Richard, after all this time, I still get very teary when I see Grace's picture. As I've told you before, I simply can't imagine . . . she was such a beautiful girl -- inside and out. You are my role model for knowing the strength that one human being can possess.

    Good luck to you finding help with your anxiety/panic attacks. I know that they can be so frightening. Know that you will get through this . . . and that you are CERTAINLY not alone. There are a lot of people who have panic disorders, and even if they won't admit it, they're out there. And if you need information from people who are compassionate, non-judgemental and knowledgeable . . . from my experience, they're in here.

  6. Hey Jen!

    You didn't notice my rosacea because of the Bare Minerals!!!!! It covers EVERYTHING!!

    Anything that is going to make you vasodilate (heat, alcohol, spicy foods), is going to make you flush . . . Not going any further than that, because I don't want to get in trouble . . . as you know, I'm trying to be on my best behavior.

    So, after a workout, it's perfectly reasonable for you to have the flushing. I have the problem occasionally with the breakout part, too. It is the PITS. In fact, I'm having it now, so I'm going to find a dermatologist who can help me before the wedding! I still say, "BISQUE"!!! We have this guy here at ULTA, he's a make-up artist there, and he taught me the most awesome way to apply my Bare Minerals -- all my flaws were covered. I was really happy with it . . . and it's easy for me to replicate. I'm tellin' ya . . . the stuff is great!

    I would watch the Bare Essentials cleansers and the lotions, though . . . even one or two lipsticks contain gluten. I was kind of surprised. I KNOW that two lotions contain it. I also found out (the hard way), that Cetaphil LOTION DOES contain gluten . . . the company said that the Cleanser didn't, but they couldn't guarantee that the Lotion doesn't . . . got glutened BIG TIME after using the lotion.

    I'm looking for the stuff that you use with the eye-liner to make it permanent. They had it with a kit, but I had seen it last year at Ulta, and just didn't want to buy the whole thing . . . didn't need all the colors (one was AZURE -- my party days are long gone!) I did want the stuff that makes the eyeliner waterproof, though. Our Ulta doesn't carry it. Do you know where I can get it??? It's just in a bottle. Also, while we're on the subject of make-up (good segue, huh?), do you know about any lip plumpers that are gluten-free? Don't necessarily want to look like Angelina Jolie, but would like to have a little more "fill" to my lips for the wedding . . . If I'm going to be the biggest and gimpy, I want to look the youngest!!!!!

  7. I had hypothyroidism for years . . . I started with a goiter when I was 13, but no one did the testing for Hashimoto's until I was 42, because my levels were Okay as a teen, but started with hypothyroidism in my 30's. I had to change endocrinologists because of insurance . . . he told me that you don't take thyroid medication to control the size of a goiter -- he was a little "off" -- I ended up SOOOO depressed, couldn't move, blood pressure 89/40 and heart rate of 45. My thyroid stimulating hormone level was 11.5 (the maximum is 5.5 and the endocrinologists want it under 3, ideally). The goiter (enlarged thyroid) ended up growing BACKWARD, so that you couldn't see it. It wrapped around my trachea and went under my breastbone. I went back to my old endocrinologist, she tried to control it for several months with thyroid replacement again, but the levels just kept getting worse, despite increasing the dosages. Then, without much notice, one time during a check up (she made me come in every 8-10 weeks), she said, "how do you feel about having your thyroid out?" We knew that I had a multinodular goiter -- I had had that for YEARS, but then found out that it was cystic as well. Also, when she did the ultrasound, she found areas of hemorrhage . . . those are the ones that can lead to thyroid cancer. I was of the opinon, "How fast can we get it out???"

    When you are asking for your bloodwork, make sure that you ask for thyroid ANTIBODY tests . . . I know that one is thyroglobulin, and I can't remember what the other one is . . I'm sorry. You endocrinologist will know, though.

    What I would recommend, above all, is that you go to an endocrinologist who is compassionate, who LISTENS to you, and who appreciates that you have knowledge of your body and of the tests/treatments which are available. My endocrinologist is like that --she is wonderful. The one that I had to switch to before . . . he was terrible. I was told by another doctor, when my BP, heart rate, and TSH levels were so bad that it was worth paying CASH to go back to the endocrinologist that I have now. It was.

    I hope I haven't scared you . . . but it is important to get the antibody levels drawn. Celiac is an autoimmune disease . . . and for whatever reason, it means that your body may be prone to other autoimmune diseases as well. That's why you want to be sure that the antibody tests are drawn for WHATEVER condition you are exploring. Hope this helps.

  8. I don't know where it was, but I read a much larger article on that . . . they don't actually give you the worms . . they give you the eggs. They eggs have some effect on the gut that they reduce the inflammation. I can't remember where I saw it -- I know it was on the web, but it was the entire study. It actually made sense. You purchase the eggs, keep them refrigerated, and take them, I believe, as a capsule. They don't "hatch" in your digestive system, so you don't end up having the actual worms in your system -- the eggs simply do their thing and reduce the inflammation -- it's just I can't remember what "their thing" was. At one point, I was talking with my neurologist about trying this.

  9. You go girl!!! That Iron Fist comes in handy when it has to do with keeping your kids well!!! :D I thought the same thing about the endoscopy since my bloodwork was negative, but if I had to do it again, I would STILL have it done . . . it is the definitive test. And yet, I still think that if you FEEL better gluten-free, that is more of an indicator than any test . . . but after the things that I've been through because of gluten -- I'm a little biased.

  10. Hey Jen -- I have it . . . that's what they make "Bisque" for!!!!! It's the best! I've had rosacea for about 16 years now, I think? I've tried all the stuff . . . the PA that I saw started telling me that my skin was getting dangerously thin from the topical steriods I was using . . . some of the other prescription stuff was just too harsh for my skin, so I just started using Cetaphil cleanser and gave up on the medications!

    What is REALLY funny is when I have a glass of wine, or the occasional (only) shot of tequila! My face lights up, and I more than closely resemble Rudolph!!! It's actually pretty funny to watch! Also, these Wasabi rice crackers I love are a big trigger, too, so I'm REALLY rosey-cheeked right now!

    Again, unless you get the break-out portion of the rosacea (which can be a pain to get rid of), I'd stick with Bisque!

    Love & Hugs,

    Lynne

  11. I am negative for everything Celiac except for Antigliadin antibodies . . . those bad babies are destroying the cerebellum of my brain, so I choose to be gluten free -- forever! I had a wheat allergy as a kid, but it wasn't that severe, and we had never heard of Celiac . . . and, as an adult, didn't know that I could develop antibodies only to gliadin WITHOUT having Celiac. I'd go ahead and have the testing done . . . but, if your daughter and you both do better WITHOUT gluten, I'd stay gluten-free. Can't hurt . . . will probably help. Good luck to you . . . . Lynne

  12. You guys . . . wow . . . your strength is amazing. Ravenwoodglass -- you amaze me. What strength of character you have. I had no idea that you had struggled the way in which you had. Isn't it AWFUL what gluten can do to you???

    With regard to the neurological manifestations: Those are the only ones that I have. I don't have the big D, in fact, I have the opposite. I had trouble with IBS my entire life until the neurological condition kicked in, but I'm HLA DQ1 and DQ2 negative, negative antiendomysial and negative antitransglutaminase. Also, I have really healthy intestinal villi. Gluten just destroys the Perkinje cells in my brain.

    The doctor in the United Kingdom was considered a "quack" and a "weirdo" five years ago . . . my, how times change, huh? He is also doing MRS -- Magnetic Resonance Spectroscopy -- and is finding that there are actual areas in the cerebellum that have no areas of neurotransmitter activity. And we wonder why we have brain fog? The cerebellum controls much more than just balance and motor skills. Every function of your body, essentially, filters through the cerebellum at one point or another. It's kind of the "regulator" of your nervous system, in a sense.

    I grew up with ADHD, still have it -- my Reticular Activating System in my brain never kicked in. The latest research indicates that if children are given Ritalin at an early age (I know I said the "R" word!), that it actually "jump starts" the RAS and they won't need medications as they grow older. I will say that my medication is MUCH more effective since being gluten-free -- and that's WITH all the other brain problems.

    I also have had depression and anxiety throughout my life . . . I can remember going to the family doctor at age 12 because I was exhausted and crying all the time . . . they didn't diagnose kids with depression then, though.

    Also, with regard to the elevated Prolactin levels . . . they can also be due to hypothyroidism . . . and that runs rampant with Celiac, particularly with a predominance to developing Hashimoto's thyroiditis . . . something you might want to check if your CT is negative. That happened to me several years ago, and a doctor who will go unnamed chose to ignore it . . . . . hmmmmmm.......

    It amazes me the strength that people possess. Everyone has gone through trials and tribulations that we may not even know about . . . and yet, here they are, helping each other. Speaks a lot for the human race, and the compassion that each of us is capable of posssessing. Wow.

  13. Okay -- 3 replies:

    1) Kabowman -- those nitrates are bad babies. I'm telling you what -- we avoid them at all costs. with regard to the squirrels, believe it or not, we can't even hit the stupid things with pellet guns -- not even PAINTBALLS! I asked my son if I could borrow his pellet gun or paintball gun, and he said that if I hit one and killed it, I could get arrested! Is that a crock, or what?????

    2) Lollie -- same with my kids -- they grew up eating anything and everything. My daughter had to have her tonsils out at age 2 (she had strep throat every three weeks for 16 months). It was at Derby time, and my parents always had a party with their friends, where they boiled lobsters. Ashley was discharged from the hospital on Derby Day, and my dad asked his "sweetie pie" if she needed anything special. She shook her head "yes", and he said, "What do you need?" She said "Yobster and bascaragus." My dad howled! Of course, she got her own ENTIRE lobster and a full plate of asparagus!

    3) Shirley -- thanks for the canning info -- I'm going to do it this year -- It's going to be a leap, but I'm going to do it! Hope I don't blow up the house! Thanks for the info about the dog judging. I was wondering about that whole thing. Ron Reagan always says, "Well, as you know, "such and such" is the judge's favorite breed . . . . " -- then lo and behold, that breed wins best of show. What a coincidence!

  14. I used to give myself injections. I started with having to have one every day for a month, then down to every other day, then down to once a week. Once my levels straightened out, they've done pretty well. You can also take B12 by mouth, but it has to be done under your tongue. B12 is pretty much completely destroyed by the acid in your stomach. If you put it under your tongue, however, it will be absorbed by your bloodstream by the mucous membranes there. (That's why nitroglycerin works for heart attack patients) You can buy it, I know, at GNC, but I DON'T know if it's gluten-free. Any type of B12 vitamin that you buy, if you're going to take it by mouth, you want it to say "Sublingual" (it means, "under the tongue"). It's not quite as efficient as taking the injections, and may take more/or longer to work, but is still the same stuff. Good luck to you!

    P.S. Jabbing yourself in the leg gets pretty easy after a few times! The first time, you think, "I'm going to do WHAT?????" But then it gets better . . . . . ! Lynne

  15. Lollie -- I have that Red Checkered cookbook, too!!!! Have several cookbooks from different 'local' areas in different states -- I like to pick up cookbooks from the smaller area gift shops when we are travelling (the kind that are off the road and very quaint -- not the big-time, sell you anything, gift shops!) I'll bet the older cookbooks are GREAT! My best recipe I ever got was in the original "Fannie Farmer's Junior Cookbook" that they had in my gradeschool library when I was in the 3rd grade!

    Your garden sounds GREAT!!!!! Since I've been the Bulb Princess this year, including planting them this spring, we've decided to cut back on the veggies. I still have my herbs, and I did get raspberries, strawberries & blackberries, and tomatoes, but not going to do the things that I did last year.

    I would really like to see a picture of the white squash when it comes in. It sounds really cool. Does it have the same flavor as most squashes, or do you know yet? My kids love squash and eggplant -- actually, the reason they love eggplant is because of that Checkered cookbook! They have a recipe for stuffed eggplant, and my kids thought it was dressing (stuffing) -- they ate it and ate it -- then asked how I made it. When I told them, they said, I didn't even know I LIKED eggplant! This is good. Worked for me! . . .

    I can't wait to see your garden in full bloom -- please take pictures -- I'll bet it's going to be great! ((((hugs)))) to you, Lynne

  16. On some thread, somewhere, someone wanted to know about vitamins and supplements. My dietician gave me information on these vitamains:

    Freeda Vitamins -- evidently owned by Dr. & Mrs. Philip Zimmerman

    "Seficially formulated by pharmacists, chemists, and nutritionists to avoid irritating additives often foundin many nutritional supplements"

    "Freeda does not allow yeast, gluten, salt, sugar or animal derivatives in any of our products. All of our products are suitable for vegetarians"

    "Suitable for most allergic and sensitie individuals[All Freeda products are on the Feingold approved food list]"

    Their Address/Phone/website/e-mail is this:

    Freeda Vitamins & Freeda Pharmacy

    36 East 41 Street

    New York, NY 10017

    212-685-4980 800-777-3737 fax 212-685-7297

    www.freedavitamins.com

    freedavitamins@aol.com

    I had said that I would get back with the information, and I felt guilty for not being able to find it -- so I hope this helps!!!!! . . . . Lynne

  17. I'm just basically sticking with neutrogena. I did contact L'oreal -- endless COMFORT lipstick is gluten-free. I just sent a REALLY scathing letter to Covergirl, because I tried to find out about their newest lipstick. Got the same old CYA letter that you usually get. Tried to save the letter to post, but I'll get it back, I'm sure. UGGGGGHHHHHHHH it's seems impossible to get something that is TRULY "gluten-free" -- and no company wants to take responsibility for finding out what they're purching from "their distributors". Just makes me mad.

  18. Oh -- I forgot -- I also see a registered dietician -- she specializes in Celiac Disease -- and she is helping me to coordinate my new Celiac diet with a weight lost regime -- not an easy task, considering that I can't walk straight, have no muscular coordination (my brain just doesn't tell my muscles the right thing to do anymore!) and haven't figured out how to BURN the calories that I intake. She is FANTASTIC. I would recommend her to anyone, and I would recommend to anyone that they find a registered dietician in their area that specializes in celiac. Hard to find, but worth the effort.

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