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tiredofdoctors

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tiredofdoctors

  1. tiredofdoctors

    Happy birthday and may God bless you today!

  2. tiredofdoctors
    OMG! I haven't visited the forum in SOOOOO long, and it is so good to see that this thread is still going strong!!!!! You guys rock! xoxoxoxoxo Lynne
  3. tiredofdoctors
    Welcome! I think you will find that this forum has some of the best, most kind, caring and knowledgeable people you will find. When I was in the process of being diagnosed, I honestly don't know what I would have done without them. I met my best friends through this forum. Please know that you are NOT alone . . . and that you are in glad company...
  4. tiredofdoctors
    As far as I know, everything else is fine, even the strips. It's just the smalls.
  5. tiredofdoctors
    Since a well-known friend of ours is having difficulty getting Altoids up in the North , I thought I would purchase some for her and send them there. PLEASE NOTE: The tins I purchased of Altoids Smalls specifically state that they contain Wheat Maltodextrin. The Altoids gum contains Isomalt -- I was a little concerned because I have been chewing...
  6. tiredofdoctors
    Angie, that is beautiful!! How cute is that?????
  7. tiredofdoctors
    I have been told by the GI and the neurologist that my inability to poop is DEFINITELY related to the neurological celiac. I have almost no motility without using the Miralax. Before that, I would do the same as you are doing -- LOTS of veggies, at least 12-15 prunes per day, what felt like gallons of water and . . . . . NOTHING. I would end up after ...
  8. tiredofdoctors
    Thanks, Andrea. I think I definitely am going to have the gene testing done. I am concerned with possible "glutening" -- my neurological symptoms are progressing, and my doctor would not test the antigliadin antibodies. He said I would ALWAYS have elevated antigliadin antibodies, and if I have been gluten-free, there's no point. My question was: What...
  9. tiredofdoctors
    I have a question about Enterolab. It's kind of grose, but hey -- on this board we talk about poop enough that everyone is pretty comfortable with the subject. I have neurological celiac. I have only elevated Antigliadin antibodies. My antitransglutaminase and antiendomysial antibodies were negative, and the biopsy(ies) on my small intestine were negative...
  10. tiredofdoctors
    Lisa -- My celiac neurological trouble started with my eyesight. Then I had the balance issues, then the tremors. I strongly recommend that you see a COMPETENT neurologist, and soon. I may even ask him/her if they have treated patients with neurological celiac. It's not an unreasonable question. Sounds like you're ingesting some type of gluten, and...
  11. tiredofdoctors
    I'll go with you, but you don't have to hire me!! I have gotten to the point that I can't stand when a professional demonstrates ignorance in his/her field. Given that I'm not even PRACTICING and I still read books, journals & trade publications, I find it INFURIATING that other professionals don't keep on top of their game. Plus, when I get angry...
  12. tiredofdoctors
    Metta -- I forgot about that! I was hacked off . . . you were sick and they were being idiots. So, "neice" Lynne made a little call . . . . Well, I never picked up my letter, and this weekend I received it through regular mail. Or actually, I DIDN'T receive it through regular mail Here is my letter to my doctor. Sorry it's so long . . . ...
  13. tiredofdoctors
    The person on this board that knows THE MOST about plants is Shirley! She can tell you about almost any plant there is. Jen and I depended upon her advice for the entire growing season two years ago!! I'll try to remember her board name -- will contact a few people to find out, and you can PM her. She is AMAZING!!
  14. tiredofdoctors
    Never underestimate the power of the combination of prayer and the human spirit!! Glad she's doing better, Lisa. Keep us posted. Love, Lynne
  15. tiredofdoctors
    It makes me wonder if it's something in the BBQ flavoring -- either that or do they use the chips from the first run for BBQ???
  16. tiredofdoctors

    ARCHIVED Gi Rant

    tiredofdoctors replied to DarkIvy's topic in Doctors

    You can sign a form that prevents the office staff or the doctor from disclosing information to your parents with regard to your condition. They mark the chart (usually) with some brightly colored sticker so that everyone will know that you have one of these papers on file. HIPAA makes it VERY clear that once you sign this, no one is allowed to discuss...
  17. tiredofdoctors
    Oh no . . . . . . I eat Lundberg chips all the time. Since I don't have GI celiac, the only way to know if I've been "glutened" is either 1) through bloodwork or 2) more neurological damage. My cranial reflexes are now GONE -- not only is it dangerous because they're protective, but it is indicative of a HUGE neurological problem. I just found that...
  18. tiredofdoctors
    You made me spit out Coke Zero all over my screen!!!!! That is SO funny! Amanda, I am so sorry your sister is going through this. My sister had a very similar situation, except she had been married to the jerk 4 years before their first, 7 before their second. He was doing that kind of garbage the whole time. We had some idea, but we finally caught...
  19. tiredofdoctors
    NoGluGirl: That is a GREAT list! And, those are fantastic ideas. I've been gluten-free almost two years, and I haven't used some of those ideas! Going to start immediately. Also, all Hunts tomato products are gluten-free. Softsoap antibacterial soap is gluten-free. Watch out for Worcestershire sauce, soy sauce, things like that. Those are sources...
  20. tiredofdoctors

    ARCHIVED Gi Rant

    tiredofdoctors replied to DarkIvy's topic in Doctors

    NOT HEREDITARY??????????? The first question my GI asked me was if I had other family members who have had ANY type of "irritable bowel, ulcerative colitis, chronic diarrhea" or any diagnosis like those. He asked about ALL of them -- including my kids. He asked about their feeding histories, GI symptoms since they've been grown . . . . . then said we should...
  21. tiredofdoctors
    I am SOOOOOOO sorry. It does seem that, when your body gets used to not being "poisoned" on a regular basis, when it happens, the least little amount seems to bring about a fast & furious reaction. I don't have GI celiac, but even I have those types of reactions. I'm sending you cyber (((hugs))) and hoping that all goes better for you this week.
  22. tiredofdoctors
    Don't know much about veterinary stuff, but, unfortunately am an EXPERT about our teacup poodle's anal sacs getting plugged. Oh, my goodness. YUCK. The vet says that the "musky" smell really bothers some people. MUSKY????? That's the last thing I call it. It is totally disgusting. I have had to learn to express them myself because it happens so often...
  23. tiredofdoctors
    hannasue: I'm not an M.D. -- need to state that up-front! I'm a PT, had to take lots of differential diagnosis during school and chose to take more after school. Guess I just thought that it is something that is REALLY important! It does sound as though it could be gallbladder related. Typically that kind of pain feels more "stabbing" in nature...
  24. tiredofdoctors
    That's pretty interesting . . . I have "neurological celiac" -- I had only elevated antigliadin antibodies, but it did a number on my cerebellum. My biopsy(ies) were negative, as well. That's a pretty interesting difference between the two. I still think that I have had celiac my entire life . . . was always diagnosed with "nervous stomach", "too many...
  25. tiredofdoctors
    hannasue . . . . I am sorry that you're feeling so AWFUL. I have some questions: 1) You said the pain gets worse if you move. When you go up and down stairs, does it hurt in your pubic bones as well? (I know that's weird, but it's a key factor in differential diagnosis) 2) You said it's 6" above your waist. Are you talking about the top of...
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