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lemontree1

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lemontree1

  1. Personally, I would start by going refined-sugar free. Sugar can do so much damage and it is addictive. When I first cut out all sugars, I had a headache for two days as a side effect, but my blood sugar swings stabilized and it gave me more energy. There are other autoimmune diseases that could be considered. Have you been tested for the antibodies to...
  2. Those things are definitely gluten related for me. I've been gluten-free for about 3 1/2 months now, and I still have itchy skin. I test high for Chronic Urticaria, which for me is itchy skin (and scalp) and wheals-- what look like little mosquito bites mostly on my arms and legs. Anyway-- many of your symptoms are gluten related. Be really strict with the...
  3. At 2 yrs old, you are still pretty in tune with her body. She can't tell you if she feels "off", but you can observe changes in bowel movements and temperament. My children are a bit older than yours, but I asked the older two (8 and 11) if they wanted to try going gluten free to see if they notice a difference. I'm anxious that my children don't go through...
  4. I can't give any advice concerning the pill, but still wanted to put in my 2 cents. I used to have very painful periods every month. Curled up in pain kind of stuff. I missed a lot of school and work from it. It wasn't until I started messing with my diet that I figured out the cause of my pain. I'm lactose intolerant, and my only symptom is painful periods...
  5. I get a similar looking rash on my elbows and knees. It comes and goes, and while I've found a few things that seem to trigger it (vitamin supplements), I don't know for sure what it is or what causes it.
  6. As much as I really wanted to do some experimenting, it turns out I'm actually sensitive to all grains at the moment. So, no bread for me.
  7. I'm going through much the same thing as you. I feel like I have been glutened even when it is highly unlikely. I think I have been reacting to rice, oats and corn. I'm currently eating grain free-- just started yesterday in fact, to see if it reduces the inflammation, heart palpitations, nausea, tight chest, etc. I think it is helping, at least I slept through...
  8. If I use chia seeds, do I need to grind them?
  9. I'm going to do some experimenting soon to see how much gum and starches really are necessary in bread. Is there anybody who has already experimented in this area? What were your results? I don't use gum in my cookies or pancakes, and they turn out fine. I'm just not comfortable adding things to my food that may not contribute to my health.
  10. You are probably still getting bits of wheat/gluten through contamination. Being highly allergic, I am betting you are also very sensitive. You have to look at the labels for everything, avoid oats as well because they are highly contaminated, don't buy anything from bins at bulk food stores, even check your spices. Then look at what you are using to prepare...
  11. Correct me if I'm wrong, but I've never heard of a false positive for a Celiac blood test. False negatives abound, but not false positives.
  12. Celiac does not show up on ANA. My ANA was negative. All the Celiac tests were positive.
  13. I've only tried a couple flour blends. I can't stand Bob's Red Mill, and neither can the rest of the family. However, we really like Open Original Shared Link All Purpose Flour. They seem to be a pretty new company, and local to the Pacific Northwest. Their mix makes an excellent bread.
  14. Yes to all of those. Now with regards to anxiety and depression. My depression almost completely disappeared after a few weeks gluten free. It's only been a couple months for me so far, with only a couple episodes of depression (I think I got some cross contamination in there). Anxiety improved when I took zyrtec for my hives. It didn't help the hives...
  15. There has been a time or two that I felt exactly like this while eating something.
  16. Are you sure what you are experiencing is acid reflux? I ask because that's what my doctor's keep telling me is my problem, but I'm beginning to believe it isn't. I have chronic urticaria (mostly just itchy skin), but I think I also experience it in my tongue/throat, and I believe it is irritated and flares every time I eat or drink anything. My tongue feels...
  17. My 11 year old sometimes has horrible outbursts, screaming and yelling and sometimes even banging her head against things. A year ago I thought it was part of her growing up, and felt sorry she had to go through such a horrible trial. Now I'm thinking this really is her reaction to gluten. I was diagnosed with Celiac Disease and a wheat allergy about...
  18. Here's my blend-- and it makes delicious bread: 4 cups brown rice 4 cups sorghum 3 cups teff 3 cups arrowroot Bread: 3 cups of the above mix 1 Tbs xantham gum 1 Tbs yeast 1 1/2 tsp salt 2 Tbs honey 2 eggs 1 Tbs oil 1 Tbs vinegar 1 1/2 cups warm water Mix up well, put in a greased bread pan, let rise until doubled. Bake at 350 for 40 minutes...
  19. 4. Lost count 5. 4-6 weeks
  20. From my personal experience: False UTI: caused from medications/supplements. I can't tolerate some of the meds & supplements. I didn't get the false UTI until I started taking Levothyroxine, Vit. D, Multi vitamin, and b-complex. Something in these preparations really messes with my system. I also don't tolerate natural dessicated thyroid or cod liver...
  21. Why are you worried about getting a confirmation for Celiac Disease when you know you are allergic to gluten? The treatment for either is the same: stay away from gluten. It seems you are splitting hairs in your attempts for both diagnoses.
  22. I did this for a while. My husband really hated the vinegar smell, so we compromised with lemon juice instead.
  23. Have you had your vitamin and mineral levels checked? Low iron can cause heart problems, as can low amounts of many other nutrients (B12, etc). My nutrient levels (iron, B12, & Vit. D) are all in the low normal range. The gluten-free diet has helped me with the heart pounding and tachycardia, though I have episodes once in a while. I had really high...
  24. To add-- You can have an allergy to wheat and not be celiac, and you can be celiac and not have an allergy to wheat. You could also be gluten intolerant and neither celiac nor an allergy to wheat, and it would not show up on a blood test. So-- even if you did the allergy tests, they could still be negative, even though you have a problem with wheat. ...
  25. 2 things come to mind that you can test for. One would be the prick test and the other would be a blood allergy test. Maybe you can find anther doctor that will diagnose you just by your symptoms? Even a diagnosis of gluten intolerance should help.
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