Jump to content

GlutenDude

Advanced Members
 View Profile  See their activity

  • Posts

    53

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by GlutenDude

  1. GlutenDude
    Celiac diagnosis in Fall of 2007. Massive pulmonary embolism in fall of 2008. The ironic thing is that I just asked a similar question on my blog today about other diseases of celiacs and a few people came back with blood clots. We have a lot to learn about celiac still.
  2. GlutenDude
    Hang in there Lincoln. I think we all go through stretches like the one you're going through. It passes. I've been a celiac for five years and the first three years were hell. But it does get easier and before you know it, it becomes...normal. Yeah, it's a pain in the neck still and yeah I wish I didn't have celiac, but at the end of the day, there are worse...
  3. GlutenDude
    I always tell people not to worry about me. Simply because even though their intentions are good, it is much better when I'm in control. I actually hate all the attention that celiac brings. Honestly, we can talk about other things then what I can and can't eat.
  4. GlutenDude
    Bad news first: no beer. Yep...that hurts. Though some decent gluten free beers are coming to the market. And I would avoid most liqueurs. Good news: most liquors are safe (vodka, rum, gin, tequila, scotch, etc). And wine is also safe.
  5. GlutenDude
    This frustrates me to no end! Does he not understand the seriousness of the disease? I wrote a post on my blog on the lack of spousal support and how it makes things so much more difficult. You need to change his way of thinking immediately or your daughter will suffer. Arghhh!
  6. GlutenDude
    Tried a new stuffing recipe. The flavor was great. The consistency was a whole different story. Used Udi's bread and it just didn't hold together. Felt like I was eating a rice stuffing. But all in all...a great day.
  7. GlutenDude
    The death of spontaneity when it comes to eating.
  8. GlutenDude
    Laziness. That's what I attribute it mostly to. I was unbelievably lucky to have a GI that diagnosed me immediately. It helped that I kept a food journal for a few weeks beforehand (pasta, bagels, pasta, bagels, LOL). But the more I go see doctors, the more I'm convinced the majority of them (not all) are too dang lazy to put the effort in to get an accurate...
  9. GlutenDude
    Hi Bella. It sounds familar, but one thing about celiac...there are no "standard" symptoms. Everyone seems to have their own story. Please get yourself to a qualified GI (who is familiar with celiac) as soon as possible. And keep eating gluten until you get tested. Good luck.
  10. GlutenDude
    Yes...your doctor messed up. You cannot be gluten free prior to the blood work or the results will not be accurate. You need to make sure you have gluten in your system. It is amazing to me the number of horrendous doctors out there. What is the "gluten challenge"? Do you mean just staying off gluten?
  11. GlutenDude
    Hi Rachel. So sorry to hear what you are going thru. Not sure what your doctors are doing. If they suspect celiac, they need to get you in for an endoscopy and blood work immediately. Those are the ONLY two methods to diagnose celiac disease. If you don't have celiac, then you will obviously need more testing. If you do have it, then you need to stop eating...
  12. GlutenDude

    ARCHIVED New

    GlutenDude replied to a*lone*star's topic in Coping with Celiac Disease

    Patience. Patience. Patience. When I was first diagnosed, I read all the stories how people stopped eating gluten and felt better immediately. So I expected it to happen to me. But, alas, it took me a few years to really start to improve. Just keep being extra careful about what you eat, exercise when you can and in time, your body will begin to heal.
  13. GlutenDude
    I would stay away from anything with the word "bar" in it unless it's serving alcohol. Way too much risk of cross contamination. Too many hands in all of the items if you know what I mean.
  14. GlutenDude
    That's good advice and I certainly didn't try to minimize it. As a matter of fact, I'm one of those who is out of commission for some time if I get glutened so I hope I didn't come across flippant. Always err on the side of caution, but don't become a hermit for fear of getting glutened.
  15. GlutenDude
    I agree! I've been with celiac for five years and in the last month I've given up both dairy and soy. Definitely feel a bounce back in my step.
  16. GlutenDude
    I'll pass you a few truths. Truth #1: You have little control over what happens behind the scenes when you go out to eat. Truth #2: You will get glutened once in awhile if you eat out. Truth #3: Don't let it stop you from going out. I am as diligent as they come. And yes, I eat out less often than I used to. And there are only a handful of restaurants...
  17. GlutenDude
    I get fatigue and brain fog like you wouldn't believe. I've tried everything under the sun (including the sun!) and what works best for me, believe it or not, is exercise. I know it's the last thing you feel like doing, but getting moving and getting the endorphins going seems to be a real quick fix for me. Does it last? No...but it's a good short term solution...
  18. GlutenDude
    I know this is the last thing you want to hear...but you have to be patient. It took me a few years to start feeling better and five years later, still struggle. And I am as careful as they come. I would get another endoscopy and see if your intestines have healed at all. Good luck and keep us posted. Gluten Dude
  19. GlutenDude
    Hi Cameron. Welcome...and I'm sorry you have to be here. Here are some thoughts to help you out: 1) Always, always, always, err on the side of caution. I cannot emphasize this enough. 2) Make sure your wife is 100% on board and is your biggest advocate. 3) Buy separate utensils for yourself. Everything we bought was red to make it easier to differentiate...
  20. GlutenDude
    Naturally, if the doctors can't find a cause, it must be the patient's fault. This kind of thinking infuriates me. I'm five years in, and still have more bad days than good. And while it's possible I've gotten cross contaminated here and there, I can't tell you how ridiculously careful I am. My own silverware, counter top, etc. To insinuate that it must be...
  21. GlutenDude
    You've got to give yourself some time. Don't be too hard on yourself and on those around you. I'm five years in and honestly have just recently 100% come to terms with the disease and the limitations it imposes. And the fact that gluten-free has gone mainstream and idiot celebrities are endorsing it is just making our journey more difficult. Hang in there...
  22. GlutenDude
    Education is key. Make sure he knows how sick you can get if you have even the smallest bit of gluten. And it's not just a short-term thing. You are damaging your body, which could lead to cancer, etc. Sometimes celiac gets stuck with the "food allergy" label, even though we know it's not. Frustrating indeed.
  23. GlutenDude
    I'm not sure I understand. Instead of guessing, why don't you just get tested for celiac?
  24. GlutenDude
    Again, physical reaction does not equal bodily damage. There is no acceptable amount of gluten if you have celiac. I know it's hard to hear this. It took me a long time to accept it. But please do not fall to temptation. It's not worth it.
  25. GlutenDude
    Not to get off topic, but curious. How did you trace it to the flour?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.