MoMof2Boyz

Any new meds or skincare products?

I was diagnosed with Barrett's four years ago and Hashimoto's 11 years ago. I don't know if there will be a separate charge or not but like you I'm due for an endoscopy for my Barrett's and I've just had negative blood test for Celiac but I intend to ask them to biopsy for Celiac just to either rule out or confirm. From what I've read I think you need to be eating gluten before you have the biopsy but probably somebody on the boards will be better able to advise you on that as I'm just learning about this disease. Hope you get the answers you're looking for and feel better soon.

Thank you, I think I will go ahead and ask the GI to do it, gonna be in that area anyway right? :)and I have been eating gluten 2 out of 3 meals(oh and snacks too) for awhile now but hopefully someone else can chime in.

How was your endoscopy and how did you feel after? I"ve never had one done or been "put out" Apparantly I have reaaaaaaaaally bad reflux and have to take nexium for the rest of my life. :'(

Hi, I am getting the endoscopy done because of really bad reflux and see on my info sheet that it will go through the esophagus, stomach and duodenum(first portion of the small intestine) is the duodenum the part of the intestine that is biopsied for celiac?

should I ask for a celiac biopsy at the same time? does anyone know if it would be a separate charge? my blood test was negative but I know from reading here that a lot of people have a negative blood test with a positive biopsy. I have Hashimoto's(autoimmune disease)which can increase the likelyhood of having it. for the record, the only things that have been helped with the gluten-free diet have been heartburn and some gas. I have been eating gluten for a few months now..mostly lunch and dinner, breakfast is gluten-free. Any advice is appreciated.

last monday my tummy felt bad, lots of rumbling, gas and a tight feeling..had to go the bathroom more than usual but it wasn't diarrhea. Felt the same all week but haven't had to run to the bathroom...this happens sometime after drinking milk...Inoticed that when I eat ice cream, I have a huge amount of pressure that builds up until I can burp.

I did the milk challenge and burped right away after drinking, and started getting gassy, however, it wasn't severe and I didn't have severe pain, cramping or diarreah...could this be lactose intolance even though my symptoms aren't severe?

you might want to give him half a dose...in my experince once I stopped giving the miralax the constipation started. the runny stage sucks, but that's the new poop that's getting pushed around the old poop that is stuck in his colon..I think he has alot more to get out! it will be runny for awhile, then might come out in chuncks, then finally will have the softer formed poop.

I've been diagnosed with Celiac and EE too. From what I read, it's more common in boys than girls. In a first attempt to solve the EE, I tried swallowing Flovent for 12 weeks and had some success with it but the symptoms came back almost immediately after stopping the med. But, I'd rather not take a med if I don't have to.

EE is essentially an allergy so I opted to try to find the trigger. I kept a food journal for most of the year so far to determine the trigger for my EE. I was somewhat stumbled onto the trigger - Rice! I read excerpts of several books on food allergies to help come to this conclusion, along with the food journal.

Having celiac and avoiding rice is a real pain but I haven't had any problems since I stopped eating rice and products with rice in them.

really? glad you figured it out! btw, do you happen to remember how high your eosinophils were?

what consistency are his stools? we were told to keep our kids on a full dose til their poop had a softer consistency then to back off to half a dose...we were never told to not give them anything to eat but they don't have the same problem as your child(dysmobility?) what about just giving him a small amount of something to eat?

does a negative DGP IgG indicate no celiac? all IgA tests are negative but a low total serum IgA which I know means a false negative on the IgA tests but what about the DGP IgG?

thanks!

I'm just wondering how many of you, who have had a positive blood test, or endoscopy have/had high eosinophils?

I know it can mean other things but I thought it'd be interesting to see how many have high eosinophils

I think the bowels are starting to move. He has been having accidents in his unders today (big set back, he was just starting to go on his own)

Here is the interesting thing, his poo today has that very distinct constipated smell, but the poo that comes out is a normal brown color and the consistancy of tar (except the first poo of the day, that was a 'rabbit turd'). When we put him on the pot, he says he can't go, "it is stuck". Then a little while later he has another small accident in his unders. He has done this about 4 times already today. I am glad things are moving, but not sure how to help him.

Why would it smell constipated, but be a tar consistancy? Would you still go with the Miralax? I do have some.

I think I'd go with the miralax, maybe half the dose, it will get things moving more, so if he has accidents, it's not his fault, he might have a lot poop stuck in his colon and the poop that does start to come out will be more liquidy and he might not be able to make it to the bathroom on time. I don't k now why it'd have the constipated smell but the tar consistancy(I think poop smells awful anyway but maybe someone else can chime in.

Yes, unfortunately, you do. I was gluten-free for 18 months quite successfully, but have been on gluten for two months now for testing. And you have to eat it for at least two months, preferably more. My blood tests were negative after one month, but positive after two. By the time my scheduled endoscopy/biopsy rolls around, I'll have been eating it for three.

While it's fun to eat all the gluteny foods you normally can't, and REALLY nice to not constantly be checking ingredients, it's rough. I've been sick/getting sicker over the past two months and I'm so ready to be done. Good luck though!

did you eat foods with gluten for every meal?

If he is constipated, he isn't going to want to eat since he is "full" already. He may even vomit if he is constipated to the point things are at a stand-still.

I was going to say the same thing. When my kids get constipated they won't hardly eat anything. I can't remember if you said you were giving him anything for the constipation? might try some miralax just to help get things moving. Good luck with the allergist and definitely switch doctors.

only 3 things were tested, can't remember but I can post them later if needed...would a positive test result need to have the results higher than the range given? I was eating gluten several times a day for quite awhile..don't remember how long

is there a way to test for gluten intolerance? main symptom if not eating gluten-free is really bad heartburn. today, I just noticed what looked like horizontal ridges/wavy lines on my big toes and some on the rest..I don't think it's Beau's lines, mine aren't that deep.

I also have tremors in my legs when I stand..goes away if I walk or sit down.

any thoughts? thanks!!!!!

PNW Rick, where are you getting the MTHFR ultra folate? which MTHFR mutation do you have? just curious!

wasn't sure where to put this. I will be getting new b12 results this week..but for now the first time I had my b12 tested it was 338 did not eat gluten free when this was taken.

another test it had dropped to 302(this is when I was eating 100%gluten free) last test 274 eating a little gluten for celiac testing.

question is why would b12 decrease when I was eating gluten free? I took supplements off and on for maybe 2 weeks after the second test and haven't taken any for the other tests.

tests showed normal MMA and normal Homocysteine, negative for the intrinsic factor for pernicious anemia.

probably should have waited til I get my next b12 results but just curious if anyone has any thoughts?

Just wondering, just noticed ds has these all over the back of his arms. I"ll try to get a picture up tomorrow...I don't think it itches, I never see him scratch his arms(it's on the back of his arms) and never complains that it's itchy.

I've looked at lots of pictures and still can't tell what it is, I'll be making a derm appointment for him, but thought I"d check here.

Has he been checked for lyme disease?I *think* I've read about some people getting those electric shock feelings...just an idea!!

This is right up my alley...

Just got diagnosed yesterday but for years have had problems with calcium, magnesium, vitamin D, B vitamins and iron/ferritin. Have received many iron iv infusions and take daily mega-doses orally of the others. Low calcium landed me in the hospital years ago, and it appears that the cause was/is Celiac.

I can deal with the crazy low iron, low vit d etc, but when calcium gets too low it is really scary. (started as pins and needles over a couple of days but then had sudden tetany in hands and feet, couldn't move those muscles at all, heart palpitations etc, numbness in whole body). They kept me in the hospital for 5 or 6 days... I urge everyone to get their calcium checked.

wow that's scary!! I just checked my labs( I had a blood workup done a few months ago) my calcium is 8.9 and the range is 8-20 so I wonder if mine is considered really low, even though it's in range?? How low was your calcium?

I have only seen one record of T3 recently, taken on 8th June which was 7.2 normal range is (4-6.8). Last TSH was less than 0.03 (0.4 -3.8) and T4 was 25.3 (12.8-20.4) so I guess those T levels are not considered abnormal enough yet to address. I have to keep re-testing every fortnight . Thanks for responding. It's nice to not feel so alone with all this

your tsh is low and your t3 and t4 are high, everything is out of range. really what are they waiting for???

definitely see another doctor..I believe vomiting can be a sign of hyperthyroidism...and you definitely should be treated... untreated can lead to serious problems.

Seems Iron and Vit D are common or is it they are just more often tested??

I don't know...I've always had to request testing for iron and vitamins.

I haven't been diagnosed with Celiac(getting test done tomorrow) but I do have Hashimoto's ..my Vitamin D was really low 21 and my B12 is at 274 that's still in range but I believe that is still a low number

My labs showed that I was iron deficient but my iron level was ok...weird...

May I ask what 'eosinophils' is? I don't think my son had this checked, or at least I cannot see it mentioned on his blood tests. Is it something I should ask for?

My son supposedly has 'low allergies', however, his symptoms were chronic constipation, and always stuffy with swollen sinuses. When when we cut out dairy his constipation improved, but he started vomitting every night/early morning with no fever and acting fine all day. Occasionally during the vomitting bouts he would also have 'D'. After 21 days of daily vomitting, I insisted on testing. After gluten free for a few days, he had a McDonalds hamburger happy meal. Immediately after eating he had a very itchy rash on his face, his whole body itched, he complained that his hand hurt, and he crashed hard. He slept for a few hours (middle of the day and he does not usually take naps).

Hi, here is some good info Open Original Shared Link

ok, I"ll try cutting milk out first. and try almond milk

his eosinophils

range is 0-3% his is 9 and was flagged high

absolute eosinophils range is .00-.10 thous/UL and his is.35 again, flagged high.

yes ours is through my dh's work(USDA) and thanks for the info!