
squirmingitch
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Everything posted by squirmingitch
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ARCHIVED Relief! And it isn't Dapsone!
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
Posterboy, Let me make myself perfectly clear. I don't give one fig what you think about taking Niacinimide for itch relief of dh. I will not explain to you exactly what strength's, brands, flushing or non flushing kind, or how many times per day that I took Niacinimide when I tried it early on. You did not read my posts; you skimmed my posts. Then...- 47 replies
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- dermatitis herpetiformis
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ARCHIVED Relief! And it isn't Dapsone!
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
No Posterboy. I did not use Niacinamide. Read my post again. And you keep posting this same thing over & over & over again. I know you're only trying to help people but Niacinamide is not the answer for everyone & it's not a cure all for everyone & everything. FYI, early on I did take it in hopes of helping or resolving my rash or the...- 47 replies
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- dermatitis herpetiformis
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ARCHIVED Relief! And it isn't Dapsone!
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
Thanks Eastie! My rash is dermatitis herpetiformis aka the celiac rash. Celiac that manifests in the skin so to speak. The antibodies get deposited under the skin.- 47 replies
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- dermatitis herpetiformis
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Thanks for the link. Yes, I recall reading about him. Amazing right?
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The minute you said "banana doctor" it rang a bell with me. I recall having read about that. Yes, he saved many, many children's lives. Ah, ha! So you have had dermatitis herpetiformis also? Since you said you know the feeling........ BTW, that is why I was on the doxycycline for so long. Here, you can read the thread which will explain:
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Eastie, I'm so sorry the antibiotic is hitting you so hard! I have no "body part replacements" nor screws unless you count the loose ones in my head. Having said that, I am also allergic to penicillin - I'll die even with an epi-pen - and allergic to sulfa drugs. I did rather recently take doxycycline and had no problems with it for several weeks. I was...
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ARCHIVED How much is too much gluten?
squirmingitch replied to jkittyberry's topic in Coping with Celiac Disease
I also leave those "may contain wheat" items on the shelf. Really, my advice to you would be to continue as you had been before this "cheat day" and be very strict. I feel this is especially important for the very reason that you don't have reactions so you don't know when you've even been cross contaminated. Please don't take any chances! I would say... -
ARCHIVED Thanksgiving in Jacksonville
squirmingitch replied to ChrystalC's topic in Traveling with Celiac Disease
Well, there are several Jacksonville's in the US but I'm assuming you mean Jacksonville, FL. Here's a link for that city on Find Me Gluten Free. There's a phone app available too. Look for places where actual celiacs ate & recommend. BTW, whatever you do, don't head west from there to Lake City b/c there are NO places I would consider safe in Lake City... -
ARCHIVED Celiac/Wheat/Dairy/Oats/ - Breakfast Nightmare
squirmingitch replied to MsIbiza's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I do a lot of non traditional breakfasts. Butternut squash apple soup, black bean soup with pork or ham, beef stew, pork patty or sausage and sliced sweet potato, re-fried beans & a pork patty bacon or sausage. These are the things that keep me from starving by 10am. If I drank a smoothie I would be ravenous in 45 minutes! Don't get me wrong because I... -
ARCHIVED Impatiently waiting for scope results
squirmingitch replied to blueeyedapple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree about encouraging daughter to get scoped. Yes, since she had 2 positives, the doc needs come up with a really good answer.- 33 replies
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- blood work
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ARCHIVED Impatiently waiting for scope results
squirmingitch replied to blueeyedapple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Like cyclinglady said & I ditto; you need to ask for the rest of the full panel BUT you would have to go right back on gluten now so you wouldn't get a false negative. Cyclinglady only tests positive on the DGP IgA which is really weird (we always knew she was weird ) which usually only 2 yr. olds test positive to. Oh! That's it! She's in truth just a...- 33 replies
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- blood work
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ARCHIVED Just diagnosed, weight loss?
squirmingitch replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It can go either way. Once people heal their guts, they can either gain weight or lose weight. It's not like a one size fits all just the same way when you're undiagnosed, you can be skinny as a rail OR super chunky & anywhere in between. -
ARCHIVED Itchy bumps on elbow
squirmingitch replied to Canadian1000's topic in Dermatitis Herpetiformis
I hope you have found the culprit in that. DH has a mind of it's own & does whatever it darn well pleases but no, it doesn't generally come & go that quickly. -
ARCHIVED Impatiently waiting for scope results
squirmingitch replied to blueeyedapple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you saying you're going to bake up all those gluten cookies starting Saturday? If you are saying that then I must tell you it's a very bad idea. For a celiac that's a no-no. Celiacs can't make cakes, cookies or anything with gluten flours because they breathe the flour. What goes down your throat ends up in your stomach. No gluten baking should be done...- 33 replies
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ARCHIVED Impatiently waiting for scope results
squirmingitch replied to blueeyedapple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you bake there are a duo of fabulous cookbooks you simply must have. I swear, the breads, pastries, rolls, coffee cake, you make from those recipes are sheer heaven. Seriously, gluten eaters will never figure out they are gluten free. Open Original Shared Link Open Original Shared Link- 33 replies
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ARCHIVED Impatiently waiting for scope results
squirmingitch replied to blueeyedapple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Exactly!!!! And BTW, one of the "triggers" for celiac to present itself is stress. The most common triggers are: stress, pregnancy, surgery, major illness, accident. Yes, I mean, we aren't exactly taught in school what constitutes a "normal bowel movement right?" When docs asked me if I had "D", I would say no b/c I only had the (sorry TMI) watery stuff...- 33 replies
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Antonette I doubt you will get a response as this thread is from 2009. I haven't seen any of these posters around since I've been here (since late 2010) with the exception of ravenwoodglass.
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ARCHIVED Impatiently waiting for scope results
squirmingitch replied to blueeyedapple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Firstly, you weren't given the full celiac blood panel. You were given the "screening" panel. The full panel consists of 6 tests & you only had 2. It doesn't matter that your DGP IgG was within reference range. A positive is a positive; one does not have to test high on ALL the tests. As a matter of fact, I've never seen anyone come on this site who tested...- 33 replies
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ARCHIVED Itchy bumps on elbow
squirmingitch replied to Canadian1000's topic in Dermatitis Herpetiformis
List of foods to avoid with sulfite allergies: Open Original Shared Link -
ARCHIVED Itchy bumps on elbow
squirmingitch replied to Canadian1000's topic in Dermatitis Herpetiformis
Check out these links; they will explain the difference between sulfa drugs & sulfites. Open Original Shared Link Open Original Shared Link Open Original Shared Link -
ARCHIVED Elevated liver numbers
squirmingitch replied to Spencer88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's really interesting Scott. Good info.! -
ARCHIVED Looking for answers - docs are clueless
squirmingitch replied to Cboray's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Looking for answers - docs are clueless
squirmingitch replied to Cboray's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's the thing..... the tease..... I deplore the tease. There is nothing that turns me off faster than the tease. It makes me turn the channel, close the tab, or walk out faster than you can say Jack Sprat. I might miss some good things because I get so disgusted with the tease but I guess that's just part of my personality. -
ARCHIVED Looking for answers - docs are clueless
squirmingitch replied to Cboray's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks! Okay, I watched that sneak peek. Not just vague but says absolutely nothing. Then I looked around the Tom O'Brian/Life Enthusiast site some. Money, money, money --- "Show Me the Money!" The Betrayal Series..... I'm not buying that either but I do thank you for the info. plumbago. I had not heard of that one before. -
ARCHIVED Looking for answers - docs are clueless
squirmingitch replied to Cboray's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'll have to look for that plumbago. I did mean to mention that the symthroid never made a single bit of difference in my husbands symptoms. Not one bit. That is why he was not afraid to go off of it for so long.