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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    My hubs was hypothyroid. He took synthroid for 20+ years. He was ALWAYS underweight - grossly underweight. Guess what? After dx & being gluten free for a while, he quit taking the synthroid & over a year later got a full, complete thyroid panel done. Numbers couldn't be more perfect. No more hypothyroidism. It was celiac all along.
  2. squirmingitch
    Oh my gosh sweetie! I soooooooooooooooooooooooooo feel for you. {{{{{{{{{{{{{{{{{{{{{{ Antonette }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}} What day is the appointment Antonette?
  3. squirmingitch
    How is your son doing now DH-Mom? How long has he been gluten free?
  4. squirmingitch
    You're very welcome! It certainly is great to hear things are getting better for you Mark. Keep up the good work!
  5. squirmingitch
    Jon, you MUST be eating gluten for at least 2 weeks prior to the endoscopy!!! This is VERY important otherwise you can get a false negative. GAAAAAAAAAAAAAAAA, I wish docs would stop telling people to go gluten free before all testing is finished!!!!!!!!!!!!!!!!!!!!!!!! Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!! They are just wrong! Thing is,...
  6. squirmingitch
    I agree with cyclinglady.
  7. squirmingitch
    You're freaking out. Anxiety is one of the symptoms of celiac disease. CALM DOWN!!!!!! Just breathe, breathe. You're not going to die tomorrow or tonight or the next day. Settle down. If you had a positive celiac panel then the next step is an endoscopy & then you can begin eating gluten free. Now seriously Jon, think about it for a minute. Anesthesia...
  8. squirmingitch
    Thank you for letting us know. The gluten free diet is not bad once you get used to it and she will. I'm not sure of the exact odds for your son but they are increased by having a first degree relative with celiac. Remember that all first degree relatives should be tested every 2 years in the absence of symptoms and immediately if symptoms present.
  9. squirmingitch
    I was dx'd with a fatty liver pre-celiac dx. Went gluten free & liver is completely normal.
  10. squirmingitch
    I make this & can tell you it's fabulous!!!! Eat what you want, freeze the rest for future meals. I put a dollop of sour cream in the center of mine. YUM! Open Original Shared Link
  11. squirmingitch
    A hallmark of dh is that it appears bilaterally; that is on both sides of the body ie: both hands, both knees, both arms, whatever. It echoes itself from one side of the body to the corresponding area on the other side of the body.
  12. squirmingitch
    I had hot flashes & night sweats from celiac. I got tested for peri menopause & it was always, Nope, you're not starting to go into menopause yet. Now I know why I was having those night sweats! I had hot flashes from menopause. For me, they acted the same as celiac night sweats & hot flashes. I haven't had a hot flash for years since going...
  13. squirmingitch
    This is the full, current celiac blood panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA GLIADIN IgG GLIADIN...
  14. squirmingitch
    We don't know. There is no photo and there are many rashes that all resemble each other anyway. Is it only on the one hand?
  15. squirmingitch
    60% of those with dh test negative on the celiac blood work. Blood work doesn't really give out false positives as you stated but it can give false negatives. The best way to find out if it's dh is to go to a derm & have a dh biopsy done. This is taken adjacent to an active lesion not on one. If they take it ON a lesion, then they are doing...
  16. squirmingitch
    No need to apologize. Personally, I have a theory that there are subsets of celiacs. Some react more strongly to wheat gluten and some who react more strongly to barley (malt) and maybe yet another reacts more strongly to rye. I can tell you that way back when I was a kid, I learned that malted milk balls were NOT my thing. They got me every time. At the...
  17. squirmingitch
    So you're still eating gluten right? Beer is gluten.
  18. squirmingitch
    It's really up to you Annie as to doing a gluten challenge or not. The big question is whether your doc would agree to re-order the tests in 12 weeks. I agree with Emma that you need to get your iron & B-12 levels checked. If you do decide to just go gluten free than like i said, you have to go all the way, strict, no cheating, no cross contamination...
  19. squirmingitch
    You had the full, current celiac panel done. That's the one titled Celiac Disease Antibody Profile. Here's some info. on that.: Open Original Shared Link Once in a while a person will be what's called sero negative which means they test negative on the blood work but actually do have celiac but that doesn't happen very often. Then there's the...
  20. squirmingitch
    Annie, I see the celiac panel was done on Nov. 2, 2016. Had you been eating the gluten equivalent of a slice of bread each day for 12 weeks prior to that? If the answer is yes, then your celiac panel would not be falsely negative. You could be NCGS (non celiac gluten sensitivity). As RMJ stated, there is no test for that. From what you say, it...
  21. squirmingitch
    Amen to that.
  22. squirmingitch
    This is the full, current celiac serum panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA GLIADIN IgG GLIADIN...
  23. squirmingitch
    You know, you came on here asking for help & advice but you have taken issue with every little thing we said and nit picked to the inth degree. You said you had a negative dh biopsy. Then why did you post in the dh section? If you're negative then you're negative. See, I can nit pick too. You act like you believe everything your doctors say...
  24. squirmingitch
    Good for you!
  25. squirmingitch
    I could not agree more with Gemini. Ditch that GI doc & get someone else. Just tell the new GI that you have been dx'd celiac (because you were by 2 docs & 2 beats 1). You've been through enough sweetheart, you just need to eat strictly gluten free now & start healing in earnest.
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