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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch

    ARCHIVED Shins?

    squirmingitch replied to oni's topic in Dermatitis Herpetiformis

    I agree with Scott depending on how long and how strict you have been gluten free. Hallmarks are that dh appears on both sides of the body echoing each other. Celiacs have a tendency to rashes or skin issues regardless. Your derm would not be able to do a dh biopsy if you're gluten free --- it would turn up negative. Just like with the celiac blood panel...
  2. squirmingitch
    Are you a celiac or are you asking if this weight loss is possibly an indication that you have celiac disease?
  3. squirmingitch
    I posted on page 2 that yes, you would have to be eating gluten for 6 weeks to 2 months for a dh biopsy AND if you had not been off the steroids for 2 months prior that would throw a false negative.
  4. squirmingitch
    I will add to what ravenwoodglass said about the liver panels. Mine were wonky prior but not enough to cause alarm to the doctor however, once I was gluten free for about 6 months my liver panels returned to absolutely normal.
  5. squirmingitch
    I didn't have a blood test prior to quitting gluten. I was so far gone with all my symptoms including the rash that the moment I figured out what it was I quit gluten right then & there. There was no way I was going to eat it one moment longer just so some doc could put me through the wringer misdiagnosing it time & again. I could not even wait for...
  6. squirmingitch
    The night time dh going nuts driving you out of your mind thing is a feature of the nasty beast for pretty much everyone. My sheets were a wreck for 2 years. Every morning they were grosser than gross. Disgusting, nasty & awful! Almost everyone with dh has been dx'd eczema, psoriasis, scabies, bed bugs. We hear it all the time. And the first thing...
  7. squirmingitch
    Oh, I'm sorry, I failed to answer you about the scarring ~~~ what you describe is typical. The purple places will eventually go away. Sometimes people get white spots. My purple fades & turns a tan color & then finally, after months & months, it returns to normal skin tone. Yes, it can itch even where there is no blatant rash ~~~ count your blessings...
  8. squirmingitch
    What you have just stated is consistent with dh. We tend to have fewer, milder GI symptoms. I had no vomiting, no real overt GI symptoms. I did have indigestion 24/7 there in the last year or two, bloating out the wazoo, belching like a sailor & the same nausea that you describe. Not all of us are the same & I now know mine had gone on for years ...
  9. squirmingitch
    Also, if you DO have dh, the blood tests usually turn up false negative 60% of the time. Open Original Shared Link
  10. squirmingitch
    FYI, all too often we hear that doctors are not aware that steroid usage will affect the blood tests and that includes GI docs.
  11. squirmingitch
    See: Open Original Shared Link
  12. squirmingitch
    HI & welcome to the board! First off huge hugs for you ((((((((((((((((( Jireh ))))))))))))))))))))))))))))) You've been through the wringer lately. I'm so sorry about your mom. And on the heals of that you find out you have 2 big health issues. The celiac at least is not a big deal now that you know about it & eat strictly gluten free. Make sure...
  13. squirmingitch
    There are others here who are much better at figuring out the blood work that I but this is the CURRENT FULL celiac blood panel. Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA The DGP test was added recently to the full panel...
  14. squirmingitch
    As long as you are eating gluten-free or gluten light the dh biopsy will turn up negative so if you want a biopsy you have to eat gluten for roughly 2 months. I'm sorry but you say you feel like all this careful eating/eliminating favorite foods was not worth it but you did NOT eliminate gluten b/c you went & ate it. If it is dh then you MUST be 10...
  15. squirmingitch
    Edited to remove link.
  16. squirmingitch
    That looks similar to my husbands who has a bad case of it on hands & fingers. His used to be much, much worse. It's really hard to tell b/c dh really can take so many forms as is evidenced by the sticky at the top of the dh forum. At any rate, you really need to get tested since your sister has celiac & it is a genetic disease. Odds are...... Plus...
  17. squirmingitch
    It's called refractory sprue or refractory celiac. Well, if you gotta do it, you gotta do it & as long as you're going to do it why not just go for a month & cover Thanksgiving & Christmas?
  18. squirmingitch
    Oh, & here is the current full celiac blood panel. If the doc does any less then it's not a correct celiac panel. Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA The DGP test was added recently to the full panel. Also...
  19. squirmingitch
    To upload photos (last time I did it) go to Flickr Open Original Shared Link Or Photobucket Open Original Shared Link And read this thread on how to post photos: https://www.celiac.com/forums/topic/104676-posting-photos/ Most of us with dh have mild GI symptoms that we never consider "digestive issues" even though we still get GI damage. We...
  20. squirmingitch
    I'm sorry to hear of the death in your family Ruth. {{{{{{{{{{Ruth}}}}}}}}}}}}}}}}}
  21. squirmingitch
    Awwwww, I'm sorry. I've always been allergic to penicillin -- it will flat out kill me in a heartbeat. As celiacs, we tend to develop allergies to things. I was fine taking sulfa class drugs until about 8 or 10 years ago & then one day I wasn't fine taking them.
  22. squirmingitch
    Oh BTW, I'm a southerner born & raised. Can you say fried chicken? Can you say fry it, fry it. fry it? LOL! Deep fried YUM! I tried many fried recipes & concoctions. It was all so simple but everything I read made it complicated. Sometimes it's better to go back to basics. The best thing I have found is corn starch. Good frying! It requires a little...
  23. squirmingitch
    A) Remember that dh can & DOES flare at any time EVEN when you're strict gluten free (or even not gluten free). That's the b%$@# of it. That's also why I am unbelievably rabid about not getting the tiniest amount of gluten. That allows me to be POSITIVE the flare is not from gluten. This is as much a mental battle as a physical one. Comfort comes in knowing...
  24. squirmingitch
    Yay for you Jim!!! And give your wife an extra special hug. Her going gluten free with you is the ultimate in support. It certainly takes a whole lot of stress off by not having to worry about cross contamination. You're still in the mourning phase bemoaning all those foods you will never be able to have again but it will pass & I promise you won't miss...
  25. squirmingitch
    I've been giggling about the hemorrhoid cream thing too since you mentioned it. it's only fitting as the rash is a pain in the butt.
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