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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    No I don't thank goodness b/c I've been rabid to the max. not to get any cc at all. From what I've read other people reporting it can be immediate to a few hours to 1 day. I've never heard longer than 1 day before you know. Benzocaine is in Orajel. This is what I used. Open Original Shared Link
  2. squirmingitch
    That's it Jim, just wait it out. The very best we can do is help the itch from itching so badly & even then we are pretty much hogtied. There is a thread on here "Help for the itching, stinging, burning pain of dh" you might be interested to read. You may find a thing or 2 that helps you. My hubs & I have found that not one thing works all the time...
  3. squirmingitch
    I believe he said several things that would apply here.: “If you are going through hell, keep going.” “Never give in–never, never, never, never, in nothing great or small, large or petty, never give in except to convictions of honour and good sense. Never yield to force; never yield to the apparently overwhelming might of the enemy.” “If you ...
  4. squirmingitch
    Open Original Shared Link Open Original Shared Link And gluten means wheat. barley & rye not just wheat. If a company says they disclose gluten it means they disclose gluten not just wheat. The law that is in effect now also covers wheat. barley & rye not just wheat.
  5. squirmingitch
    Thsi is the full celiac blood panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA The DGP test was added recently to the full panel. Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA GLIADIN...
  6. squirmingitch
    I'm sorry, when I suggested that I forgot you aren't doing cheese. For future, here's a recipe for chef's salad. Open Original Shared Link I throw in bell pepper & anything else I have a mind to. Personally I always have a vinegar & oil dressing on chef's salads.
  7. squirmingitch
    Autumn, there should be a reference range listed for the TTG IGA otherwise, the result means nothing because you can't tell if it's positive or negative without the reference range. Look back on the paper & see if it states a reference range. Also it looks like they screwed up the blood draw when they took it by reading that comment that says IMMUNOLOGY...
  8. squirmingitch
    I'm sorry, somewhere I got the impression you couldn't have nuts. If you can have almonds then you can have almond butter as well as cashew butter (my favorite!). You can also use any of the nut butters on celery.
  9. squirmingitch
    If you were gluten light or gluten free prior to your blood panel then that would have scotched the results. At any rate, you know how you felt gluten free so just go for it.
  10. squirmingitch
    Yaaaaaaaaaaaay for victories! Oh sure you can use ACV for salad dressings. It's better than not having any dressing. Your salad sounds delicious. Great that you didn't get sick. Keep eating salads like that & you'll get even healthier. How about making a Chef's salad with the same dressing you used? Yummy!
  11. squirmingitch
    You've had some great suggestions. Yes, peas are good for you! You like raw peas? Snow peas, just wash them & eat them - yum! Did you know peas are loaded with iron? Tuna or salmon right out of the can, just pop the top, grab a fork & dig in. Raisins gluten-free chili in a can --- bake a potato, slice lengthwise, spoon on chili & pop back in...
  12. squirmingitch
    Hi there Betty! Welcome to the forum. You need to go back to the lady doc who asked if you had ever been tested for celiac. She has a clue! nvsmom might have made a typo above. Celiacs with dh often test negative for celiac on the blood tests. 60% of the time! It's worth getting the blood test though because you might be one of the 40% who DO test positive...
  13. squirmingitch
    I do not use moisturizing lotions or creams with wheat listed in the ingredients. For one thing, if it were on my face, it can get into your mouth. If it's on my body I still do not use it. If I touch whatever part of my body it is on & then touch my lips or without washing my hands first, then I would risk getting it into my mouth. I use Vaseline Intensive...
  14. squirmingitch
    I guess I'm pretty lucky. I got over my craving for anything gluten pretty quickly & that includes bread. The toughest thing for me was biscuits. I have made my own biscuits since I was a teen. I use Pamela's mix & make biscuits now & have to say they're amazingly good to me. The texture is somewhat different but still very good IMHO. I always...
  15. squirmingitch
    No, no, no! Dh IS celiac disease! you have been given links to the medical proof of that. The U of Chicago Celiac Disease Center is one of the premier authorities if not the premier authority on celiac disease. Not all celiacs get GI symptoms. Did you know there is such a thing as silent celiac disease where there are NO symptoms at all? It's true. But...
  16. squirmingitch
    I told you that I was doing fine rash wise before the carageenan. Until & unless that changes post carageenan there is no reason to be worried about anything else. i don't jump at shadows. Personally, I think steroids are dangerous drugs to be avoided if possible. Yes, people sometimes need them & I have had real need of them before but I am not...
  17. squirmingitch
    You are so right notme! We haven't tackled seafood yet & also no carageenan except for my screw up with the Lactaid. Also no iodized salt yet. Other than that, we are good to go on everything else iodine. But this little escapade with carageenan tells us in no uncertain terms that we are not yet ready for seafood. It's interesting, I can do Tylenol...
  18. squirmingitch
    I just researched it & discovered the calcium enriched Lactaid has the carageenan in it but the NON calcium enriched does NOT contain carageenan. I had noticed a couple months ago, that it now said calcium enriched on it but my store no longer carries the non calcium enriched Lactaid. So that solves that riddle.
  19. squirmingitch
    First: ((((((((RCV))))))))) What country are you in? What is the name of these gluten-free pizza sandwiches? Did you read the ingredients? I know, I'm sure you did but are they certified gluten-free or what? Millet is fine but where do these sandwiches come from? Who makes them? How long had you been eating them? A few weeks or a few months or what...
  20. squirmingitch
    No, it is absolutely not gluten. No way, no how. I am rabid about gluten. We have a gluten free household. There is no gluten in any of the food we eat. Dog is fed gluten-free food. I don't take any meds so that's not an issue. DH can take years to resolve even on a strict gluten-free diet; that is known and is in medical texts. BUT I was doing...
  21. squirmingitch
    Okay, I see what you're saying now. Have you read this thread? https://www.celiac.com/forums/topic/105835-mast-cell-activation-syndrome-mcas/ I'm not implying that is what you have but I can't help but think there may be at least a kernel in there that might benefit you. Since you've been at this 20 years, I am wondering what are the most common ways...
  22. squirmingitch
    Have you ever been tested for a wheat allergy? Do you know it's possible to be both celiac and also​ have a wheat allergy? What you describe with the trachea being affected and having trouble breathing even so much so as to have to go to the ER is indicative of an allergic or anaphylactic reaction. This is something serious that should be addressed. One d...
  23. squirmingitch
    YVW! That's where I ordered mine from as my local stores do not carry it.
  24. squirmingitch
    Awwwww, you guys are getting me all teary eyed but there's a huge smile on my face at the same time. ((((((((HUGS))))))) to all of you! Happy healing!
  25. squirmingitch
    I am so glad to hear you understand & are willing to just move forward. That in itself, is a major step in the right direction. You will not spend weeks and months mentally stressing while trying to get a dx. The prednisone would make a dh biopsy negative for 2 months after quitting the prednisone so there's another factor most people don't know &...
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