squirmingitch
Advanced Members-
Posts
4,552 -
Joined
-
Last visited
-
Days Won
94
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by squirmingitch
-
ARCHIVED Questions: Skin Biopsy Of Dh
squirmingitch replied to irish11's topic in Dermatitis Herpetiformis
You got it heaped upon you didn't you with care giver for mom & working full time. {{{{{{{{{{{{{{{{{{{Irish}}}}}}}}}}}}}}}}}}} I know about the care giver thing having done it myself. It ain't easy! Here are some threads on gluten-free shampoos & topical products. https://www.celiac.com/forums/topic/89346-makeup-and-toiletries/ https://www... -
Woooo Hoooo! Good for you!
-
ARCHIVED Thoughts On Dermatitis Herpetiformis Diagnosis
squirmingitch replied to Sunshine Sassie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You're very welcome! You might want to pay special attention to the sticky at the top of the dh forum. This one: https://www.celiac.com/forums/topic/84513-descriptions-of-dh-types/ -
ARCHIVED Thoughts On Dermatitis Herpetiformis Diagnosis
squirmingitch replied to Sunshine Sassie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The rash can stop itching & yet still be there. It can re-flare OR it remains until the skin heals. Also, you had the steroid shot which will make the rash stop itching but I will warn you many, many of us with dh have felt the payback of steroid usage when dealing with the rash. There is a backlash when the steroid is withdrawn & it pays you back... -
ARCHIVED Thoughts On Dermatitis Herpetiformis Diagnosis
squirmingitch replied to Sunshine Sassie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I forgot to answer your question as to if I have dh. Yes, I do as does my husband. -
ARCHIVED Thoughts On Dermatitis Herpetiformis Diagnosis
squirmingitch replied to Sunshine Sassie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No problem about spelling the name -- don't think another thought about it. I'm not real clear on what you mean by your question. Can you clarify please? -
ARCHIVED Thoughts On Dermatitis Herpetiformis Diagnosis
squirmingitch replied to Sunshine Sassie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You've been gluten free so a biopsy of dh will come up negative. You would have to do a gluten challenge just like for the blood work. Then there is another obstacle which is the steroid shot which will turn up a false negative. You would have to wait 2 months for that to clear. Sooooo, I'm sorry to tell you you're out of luck. You know how gluten makes you... -
ARCHIVED Chef That Wants Your Feedback
squirmingitch replied to allergiescooked's topic in Gluten-Free Restaurants
I know Colleen! The list goes on & on! Oh yeh, coffee cake ~~~ I used to make one that had dried apricots & raisins in it ~~ I'm going to throw some in this one. I'm really stoked now & can't wait to try SO many of the recipes. Cinnamon raisin bread, pie crust, cheese bread & more! Wooooooooooo Hoooooooooooo!!!!!!!!!! Let the baking... -
ARCHIVED Chef That Wants Your Feedback
squirmingitch replied to allergiescooked's topic in Gluten-Free Restaurants
Dear allergiescooked, I tried the America's Test Kitchen biscuit recipe today. OMG! Freakingfantabulous!!!!!!!!!!!!!!!!!!!!!!!!!!!!! They nailed it! For the first time in over 3 years I had a biscuit that was a biscuit! Real, honest to goodness, walking, talking, living, breathing, home made biscuits! They are sheer perfection. If a gluten eater ate one of... -
ARCHIVED Questions: Skin Biopsy Of Dh
squirmingitch replied to irish11's topic in Dermatitis Herpetiformis
I'm rushing this morning so if I sound short don't take offense --- just in a hurry okay? Soy is fine!!!!! No iodine in soy that you need to worry about. The whole thing about soy is that many celiacs can't tolerate soy --- makes them bloated or gassy or such -- it did me too but after I was gluten-free for a year & my gut healed up some then I am... -
ARCHIVED Girl Scouts Rolls Out 3 New Gluten Free Cookies
squirmingitch replied to squirmingitch's topic in Gluten-Free Foods, Products, Shopping & Medications
I will buy a box too once I figure out which one. LOL!- 19 replies
-
- cookies
- girl scouts
-
(and 1 more)
Tagged with:
-
ARCHIVED Girl Scouts Rolls Out 3 New Gluten Free Cookies
squirmingitch replied to squirmingitch's topic in Gluten-Free Foods, Products, Shopping & Medications
There seems to be some confusion. This site says Toffee-tastic is gluten free: Open Original Shared Link This one says Toffee-tastic AND Trios are gluten free: Open Original Shared Link This one says 2 of them are gluten-free: Open Original Shared Link ???????????????????????????????- 19 replies
-
- cookies
- girl scouts
-
(and 1 more)
Tagged with:
-
ARCHIVED Girl Scouts Rolls Out 3 New Gluten Free Cookies
squirmingitch posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Check it out: Open Original Shared Link- 19 replies
-
- cookies
- girl scouts
-
(and 1 more)
Tagged with:
-
You can try the cider & see what happens. I tried cider vinegar (not organic) & it did nothing. I tired distilled white vinegar & it did nothing. But that's just me; you may have a different effect. Have you seen this thread? https://www.celiac.com/forums/topic/96552-help-for-the-itching-stinging-burning-pain-of-dh/ At this point in time...
-
ARCHIVED Chef That Wants Your Feedback
squirmingitch replied to allergiescooked's topic in Gluten-Free Restaurants
Fantastic news allergiescooked! -
ARCHIVED Do You Ever Break Down And Eat Gluten Every Once In A While?
squirmingitch replied to supersquatchy's topic in Coping with Celiac Disease
Never been tempted in the least! Nope not once. Zero, zip, zilch, nada desire to eat anything gluten. 3 years gluten free & no accidents because I am vigilant as all hell. I never eat out, never eat anything I haven't prepared (some gluten-free processed foods) but nothing prepared by someone else at their house. I have the celiac rash & nothing,... -
ARCHIVED Questions: Skin Biopsy Of Dh
squirmingitch replied to irish11's topic in Dermatitis Herpetiformis
Here's why dairy contains so much iodine: https://www.celiac.com/forums/topic/89923-iodine-levels-in-dairy-products/ Yes, if one wants to go low iodine then one uses plain salt instead of iodized salt. I was low iodine for quite some time and had to call many companies to find out if they used iodized salt in their different products. Oddly Vlasic pickles... -
ARCHIVED Newbie - Any Advice Please?
squirmingitch replied to MummytoDan's topic in Parents, Friends and Loved Ones of Celiacs
Take a deep breath & don't panic. There's a steep learning curve to this diet & realize you're not supermom even though you want to be & it will take time to learn all the rules. You already did the biggest part which was getting him tested to find out why he was dropping in the percentile. Yes, you will need to have your daughter tested too ... -
ARCHIVED Questions: Skin Biopsy Of Dh
squirmingitch replied to irish11's topic in Dermatitis Herpetiformis
I'm so sorry this is happening to you. My hubs had a nurse at his urology doctor who was like that. She ended up getting fired finally. Okay, so is there ANY other dermatologist in your HMO plan that you could go to? You now have the vial, the list of labs etc.... you could give to the new dermatologist. I truly do not understand why the 1 doc would not do... -
ARCHIVED Gluten Challenge - Bad Symptoms
squirmingitch replied to tpchan85's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
{{{{{{HUGS}}}}}}} And hang tough. -
ARCHIVED Continuing Gluten Challenge?
squirmingitch replied to Elisa91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know. I haven't had an endoscopy so can't speak of any personal experience. I would think you should call them & let them know you are having pain/discomfort. -
ARCHIVED Continuing Gluten Challenge?
squirmingitch replied to Elisa91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This excerpt from: Open Original Shared Link Roswitha Moehring says: January 24, 2013 at 6:06 pm Celiac disease affects primarily people of Northern European descent and is virtually absent in China and other Southeast-Asian countries and subsaharan African Blacks. To understand this distribution one has to look at the history of European nations,... -
ARCHIVED Questions: Skin Biopsy Of Dh
squirmingitch replied to irish11's topic in Dermatitis Herpetiformis
So irish11, what happened yesterday? Did you get the biopsy? -
ARCHIVED Continuing Gluten Challenge?
squirmingitch replied to Elisa91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Awww rats!!!! This is so frustrating! Bad enough that so many docs don't know what they're doing in regards to his disease but worse yet when it's another country. The upshot of it all is (I assume) you are of Dutch or Germanic heritage --- DUH! and the northern European peoples have a higher incidence of celiac disease. -
ARCHIVED Continuing Gluten Challenge?
squirmingitch replied to Elisa91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you're in the US it sounds mighty weird about the "lab doesn't do those tests" and you would have to go to a GI doc at the teaching hospital. Doctors have access to many labs not just one so if this is the case it would seem your doc is just saying that b/c they think they know better & think the test they gave you is sufficient AND it was negative...