Jump to content

squirmingitch

Advanced Members
 View Profile  See their activity

  • Posts

    4,552

  • Joined

  • Last visited

  • Days Won

    94

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by squirmingitch

  1. squirmingitch
    I understand Elaine. Please do not get hung up on the blisters part ~~~ that's the same thing derms do & why it's so frustrating. DH doesn't always present as blisters. Um, what you're describing with itchiness speaks for itself ~~~ you can't leave it alone long enough to find out if it will erupt ~~~ I'm betting it would if you could not touch it but...
  2. squirmingitch
    I also would love to read this research article.
  3. squirmingitch
    Elaine, I think you're talking about the skin biopsy right? I don't have an exact answer on just how long the skin biopsy can pick up the antibodies but it's not long. Testing is not as sensitive as our skin is sensitive. But here's an answer for you from the U of Chicago Celiac Disease Center re: skin biopsy for dh: Open Original Shared Link It says...
  4. squirmingitch
    YVW! I felt just the way you did about no way I was going to eat gluten for some doc. I knew what I had & didn't need to prove it to anyone! At least, not enough to put myself through more torture for heaven knows how long. May I ask what country you're in? I rather doubt the derm can or will help you get an endoscopy. We with dh tend to have patchier...
  5. squirmingitch
    Kalokairi, Welcome to the board & the dh forum, something we wish no one ever had to be a part of if you catch my drift. Honey, it sure sounds like you've got it. I have never had the white balls things but a couple of people have mentioned it. Everything else you say fits to a T. Been there, done that with no sleep, bloody sheets every single morning...
  6. squirmingitch
    Oh no, I couldn't possibly wear a necklace nor a bracelet & certainly not an anklet! Maxi skirt...... we used to call them granny skirts remember? I've thought of that but haven't found any. I am fortunate in that I live in north Florida so our winters are what you would call mild. Mild to you, cold to me as I come from way down south in Fl. Last winter...
  7. squirmingitch
    I've had dh everywhere but my lips. Shhhhhhhhhhhhhhhhhhhh, I don't want the dh gremlins to hear me say that! Some people have said they get it in the corners of their lips but not many at all have reported that. Truthfully, I would look elsewhere for the cause of your lip problems. Sure, salty foods can really dry out your lips & mine have gotten sort...
  8. squirmingitch
    This is so typical!!!! Absolutely true!!! The seams of jeans, where they wrinkle when you sit where your leg joins your torso, where the snap is. I'll have to try yoga pants -- I don't presently have any. Mostly I wear very light weight sweat pants with drawstring & preferably at the hips. I am so glad spring is coming & I can go back to shorts &...
  9. squirmingitch
    You just have to train yourself not to put anything in your mouth that you haven't read a label for. I know, there were times when I came a hair's breadth from grabbing a candy out of the bowl at the bank & such as that but I thankfully managed to catch myself before I actually did the deed. Becky, I too hope you can find a way to feel comfortable at...
  10. squirmingitch
    YVW. I'm happy to do it.
  11. squirmingitch
    I'm so sorry to hear about the heart attack. Must have scared the living daylights out of all of you! Stay the course with the gluten-free; it takes a long time for some to heal. You also may have some other issue but stick with the gluten-free & see how it goes & then you can start running down the cause if things don't improve. Wishing...
  12. squirmingitch
    BTW, how are you doing? Are you managing okay not getting cc'd with gluten eaters in the house? And how are you feeling these days? Things getting better?
  13. squirmingitch
    OK! Looks like she's going to be just shy of 2 months off the steroids when she has the appointment. I'd say it's a good chance that she actually does have dh. I hope you can get a proper dx. Yes, you have the right of it for how the biopsy is taken. She very well could have had eczema as skin conditions are common with celiacs but you see her everyday &...
  14. squirmingitch
    I'm so sorry you had to go through that with your special needs child! (((HUGS))) That has to be a horrible thing for a parent to have to endure when you know you're right. And not being in your position, it's easy for me to say this, but I would tend to think that experience, as awful as it was, would make you more determined to not let them treat you that...
  15. squirmingitch
    First, I am no expert. I can share with you what I have learned. I do not understand what you mean when you say "she is 1 of my children who threw about after going back on gluten after a gluten free trial". What is threw about? As to the photos...... could dh look like that? Yes. Can many other skin conditions look like that? Yes. You haven't given...
  16. squirmingitch
    I make this w/o the cocoa powder & use quinoa flour instead of the rice flour. Really healthy & so delicious too. Besides the almond flour, I've used cashew flour & hazelnut flour --- they all work great! Yes, I know this is an old thread. I'm just adding to it for future readers.
  17. squirmingitch
    First, gluten sensitivity & celiac disease are 2 different things. At present, there is no test for gluten sensitivity & as far as anything I have read, dh does not present with gluten sensitivity. A dx of dh is a dx of celiac disease. No, celiac disease is not an allergy at all. It is a disease of the immune system. You can have an allergy to wheat...
  18. squirmingitch
    I agree with WinterSong. Cross contamination is cross contamination & it will hurt you. Some people don't get any symptoms but it is still damaging their villi. Heck, there are celiacs who, when they were eating full gluten & didn't know they had celiac disease, had absolutely NO symptoms at all yet upon endoscopy had complete villous atrophy. Loves...
  19. squirmingitch
    First, there is no test for non celiac gluten intolerance. For the celiac blood panel you have to have been eating gluten. From: Open Original Shared Link "How much gluten should be consumed prior to being screened for celiac disease? It’s best to continue a normal, gluten-containing diet before being screened and diagnosed. If a gluten-free diet has b...
  20. squirmingitch
    I'm glad you got a good night's sleep. Ha,ha,ha,ha,ha,ha, ..... typical or not typical. Thanks for the laugh. Laughter is the best medicine of all isn't it? Well, to answer your question, I think you pretty much know now what is typical of dh but let's say for you, right now, it's typical for certain parts to rage while others are quiet. That's actually a...
  21. squirmingitch
    We all started somewhere. You will get there, just take it easy & don't let it intimidate you. Yaaaaaaaaaaaaaaaayyyyyyyyyyyyyyyyy Simon!
  22. squirmingitch
    Prurigo nodularis is the result of dh (& other skin conditions). It is caused by the constant scratching; at least that's what I read when I researched it. In other words, pn is not in & of itself a disease but it is rather the result of a disease sort of like IBS is not a dx, it is caused by something & is in fact a symptom of a disease. You...
  23. squirmingitch
    Yes, celiac disease is associated with many skin conditions. We tend to have skin sensitivities as well as allergies in general or develop allergies. Did you read this? Read the thread & the link. It wasn't yet known that dh is caused by gluten --- celiac disease wasn't know to be caused by gluten yet. https://www.celiac.com/forums/topic/84513-descriptions...
  24. squirmingitch
    Go low iodine. Take cold showers & see if that helps. I used probably 100's of bottles of witch hazel. I would lay on the bed & my hubs would pour it on me & spread it all around while the ceiling fan was whirring above me helping to cool the rash. Ice packs. Antihistamines. Wear loose clothing, the looser the better. A shot of vodka? Or two?...
  25. squirmingitch
    This flare is from stopping the prednisone. This flare IS from stopping the prednisone! THIS FLARE IS FROM STOPPING THE PREDNISONE. But I can't tell you it will resolve in a day or two. I'm sorry. I have to be honest with you & I'm never going to pull any punches with you. I know you're suffering. Been there, done that!!!!! I know exactly what it feels...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.