Jump to content

squirmingitch

Advanced Members
 View Profile  See their activity

  • Posts

    4,552

  • Joined

  • Last visited

  • Days Won

    94

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by squirmingitch

  1. squirmingitch
    Thanks Barty!!!! Jamie! That sounds amazing! Yum! Mind sharing the crust recipe? I have some almond meal just waiting for me to do something with it.
  2. squirmingitch
    This time next year or before & you will be eating greek yogurt & sharp cheddar Jamie. And having pumpkin pie too.
  3. squirmingitch
    Thank you! And now I feel bad that you can't have dairy. It sucks doesn't it? You'll get there too though. Just hang in there & you'll get there. It's funny how when you haven't had something in a long, long time, you tend to OD on it. I'm putting cheese on things I never put cheese on in my entire life. LOL! I can't seem to get enough of it. My bones...
  4. squirmingitch
    Yes. Read this: https://www.celiac.com/forums/topic/91878-newbie-info-101/
  5. squirmingitch
    Len, Gluten turned sweet lil ol' loving me into a dyed in the wool fire breathing dragon lady. I could easily have been an ax murderess. I didn't want anyone to even speak to me & for a long time I could not see what a harridan I had become. Sex? Forget about it! You see Len, celiac disease affects every. single. cell. in. your. body. And it doesn't...
  6. squirmingitch
    Thank you both!
  7. squirmingitch
  8. squirmingitch
    I am sooooo glad you "get it" Coconutkris! We are responsible for our own health & can't rely on anyone else to take care of it for us. We have to protect ourselves! As to social; take it as an opportunity to gently educate those who have no clue. You actually might save a life by alerting someone to the possibility they may have celiac disease but were...
  9. squirmingitch
    You'll get there Abbs! There is light at the end of the tunnel & I can see it! One day we will both be on the other side of this b%$@# called dh & dancing in the rain. Thanks IH! Bully for you having shellfish! Yaaaaaaaaaaaayyyyyyyyyyyyyyy!!!!!!!!!!!!!!!!! Hmmmm...... do I see oysters in your stuffing?
  10. squirmingitch
    You are right on all counts Colleen! You have conquered cancer & hubs & I have an entire food group back AND more! I just can't wait to find some fresh asparagus!!!! Hubs calls it a vile weed but I say yummy, yummy in my tummy. And baked rice pudding here I come! Weeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee!!!!!!!!!!!!!!!!!!!!!!!!
  11. squirmingitch
    Organic restaurants do not mean they are "safe" restaurants for you. You can get as much cross contamination there as anywhere. Since you live in SF & there are many options for you then I would suggest you ONLY eat at totally gluten-free restaurants. Then you don't risk getting cc.
  12. squirmingitch
    After having been low iodine for what seems like a lifetime in order to keep the dh rash from eating me/us alive, I am overjoyed to say that both my husband & I are eating iodine without incident! We began the iodine experiment slowly & cautiously on September 10th of this year. We have a whole egg every morning, in fact, this morning my hubs had...
  13. squirmingitch
    Who isn't a fan of Nuts.com? Oh my, oh my, oh my! Umm, umm, good! And yes, you order & turn around & it's arrived! If anyone hasn't yet tried these, you must, you simply must! I swear I could live on them. Pricey but OMG! I could swallow my tongue & eat these for breakfast, lunch & dinner. They are......... Organic Raw Cocoa Goji Energy...
  14. squirmingitch
    See page 2, the last paragraph in the right column. Open Original Shared Link In other words..... you're already too late to start glutening yourself.
  15. squirmingitch
    annajazz, Your question was how do we deal with the server? The first thing wrong with your question is that you seem to think the server is the only person you have to worry about. That's the first mistake. You have to worry about every single person who works at that restaurant & enters the kitchen. You not only have to worry about the chef & other...
  16. squirmingitch
    The problem is that when she goes back on gluten then it will be depositing more antibodies under her skin & that means the rash (which has already hung on for 18 months) will go on & on & on. If she gets the blood panel there's a very good chance she will come up false negative & then you play hell getting the doc to believe she has celiac...
  17. squirmingitch
    I think I've seen 2 postings on here (the dh forum) where ppl used the topical Dapsone (Actone? or something) & if I remember correctly, 1 said it helped & 1 said it didn't. You can give it a go & see.
  18. squirmingitch
    Ohhhhhh, nooooooo, steriods, topical or oral are no nono !!!!!! Especially the oral!!!!!! They will help a lot but the second the steroids are withdrawn the rash will punish in SPADES!!!!! You don't want to put her through that hell. This stuff is a b%$@#!!!! It can take 2 years or more for the antibodies to get out of the skin. We are all individuals ...
  19. squirmingitch
    What happens is that it separates the layers of the skin. Typical for the dh rash. hmitchell, it's going to be impossible to get an official dx unless you're willing ot put her back on gluten. you have to be eating a gluten diet for a dh biopsy or a endoscopic biopsy or the celiac blood panel. And 60% of us with dh test neg. on the celiac blood panel even...
  20. squirmingitch
    I answered you on the photo bank thread you posted on. Here is some additional info. Interesting Reading on DH: https://www.celiac.com/forums/topic/95643-interesting-reading-on-dh/ Descriptions of DH Types: https://www.celiac.com/forums/topic/84513-descriptions-of-dh-types/ Help for the Itching, Stinging, Burning, Pain of DH: https://www.celiac...
  21. squirmingitch
    I'm having major computer problems (repeatedly crashing) & am trying to fix it so I'll have to be brief. IMO that's dh!!!!! If you had been gluten-free when the biopsy was done then OF COURSE it would come back inconclusive or negative. If the biopsy was taken directly ON a lesion then it was done wrong & OF COURSE it would not be positive for dh...
  22. squirmingitch
    I'm sorry, the photo is so small I can't really make out what's going on. I see a red area & that's all. It's really hard to say answerseeker. There are many rashes associated with celiac disease & some rashes do present symmetrical. Dh is crazy, insane itchy though & gets worse (if that's possible, but it IS) at night, wakes you up or keeps you...
  23. squirmingitch
    You're welcome on the dh thread anytime Colleen! Why shouldn't you be here????? It's ALL celiac. On the subject of restaurants.... SNORT! Back when hubs & I were unaware we had celiac; we would get SOOOOOOOOOO frustrated eating out! A bare minimum of 75% of the time they got something wrong with our order anyway. They couldn't do it right then!!!! There...
  24. squirmingitch
    YVW jiggles! I do wash my mouth & my hands after touching my dog but you know, there's always going to be those times when something distracts you before you wash up & it only takes once! I will say to all of you too b/c this bears repeating over & over & over again: EATING OUT IS LIKE PLAYING RUSSIAN ROULETTE! Unless you eat at at completely...
  25. squirmingitch
    https://www.celiac.com/forums/topic/96552-help-for-the-itching-stinging-burning-pain-of-dh/ Abby has been a very quick learner so you can bank on what she says! It could have been something you ate like the feta (iodine) or it could be nothing you ate. This darn rash will vex you to no end!!! I have no idea if artichokes are high iodine or not...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.