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researchmomma

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Everything posted by researchmomma

  1. researchmomma
    Isn't strange what we crave? Jordan was sick from CC and craved rice krispie treats. She ate a ton of them on Sunday and missed school on Monday with all the old symptoms. Funny. I learned about twizzlers and licorice from my neighbor. They poisoned their son twice with twizzlers and licorice. So that one is stuck in my head. However, I will take...
  2. researchmomma
    After I sent the sample in, i called to tell them about the IgA total serum being low. However, I don't think the GI will care either way! It probably doesn't matter anyway, it is the fecal fat that I want addressed, right?
  3. researchmomma
    Now this is interesting. I think I am going to approach the GI with the fecal fat lab and just ask her what she thinks could cause it. It truly needs to be looked into. That is so interesting about the low stomach acid. Irish did mention that too. It is also interesting to me that she has tTg IgA even though she has low serum IgA. I may ask the doc about...
  4. researchmomma
    Thanks for the info Nora.
  5. researchmomma
    Those all sound horrible! I am hoping just for gluten intolerance, lol. We have an appt with the GI in two weeks so I think that should work. Hopefully she will be puzzled by this as well. She hasn't had her stomach acid tested. The GI said, that the high dose priolosec would tell her if that was the issue. So she wanted to dose her full of...
  6. researchmomma
    She had the Deamidated Gliadin Abs, IgG and tTg IgG which were both negative. I have run clinical studies in UC and Crohn's and she doesn't seem to have those symptoms but I will ask the GI if they can be ruled out. Hopefully she will run the labs that I ask for. One last question, as I stated her GI wanted her on priolosec 40mg QD. I...
  7. researchmomma
    Good info. Our GI went about things backward. She gene tested her first (low total IgA) and since she is not DQ 2 or DQ 8 (3) positive, she would not do the endoscopy. She also had a negative IgG tTg, but I don't know what her total IgG was. She is improving on gluten free diet but the GI told me that since she doesn't have the genes, that she didn't...
  8. researchmomma
    Thank you Skylark. I have a question for you. I know that GIs don't really believe in the fecal ttg results as they haven't been properly correlated to blood work through clinical trials. However, since my daughter has low total IgA and she came up a bit elevated on tTg IgA, do you think that holds any weight? I talked to the lab and they were surprised...
  9. researchmomma
    OK I get it now. She is DQ 5,5 which is a part of DQ 1,1
  10. researchmomma
    Hi Nora, I believe my daughter is DQ 1, 1 based on the above results. Am I wrong? Thanks!
  11. researchmomma
    I sent it to you in a PM. However, her fecal fat value 490 and typical results for pancreatic issue is 600-1000. But I will bring it up to her GI. what a joke that will be. I think if I bring this enterolab report to her, she will blow me off. Anyone else have any luck in convincing their docs with the enterolab reports?
  12. researchmomma
    Great info and one of her biggest issues is neuro. She has occipital based seizures and a few other weird ataxia issues. Well, even though the medical community doesn't really recognize DQ 1 as a gluten sensitive gene, it does make me feel better. I know that a few docs believe, but not many!
  13. researchmomma
    Well after 2 months on this forum and almost 13 years of bad health, I think I have a little confirmation of gluten intolerance in my daughter. However, the diet has been the best confirmation. Her IgA results are somewhat negated because her total IgA serum is low 43 and normal is 68-300 (this was checked twice) but Enterlab said to call them when...
  14. researchmomma
    I would love to see that study! Can you get a link?
  15. researchmomma
    hi Ciamarie. How are things? Yes, I cook with those noodles too but haven't used them for the glutenlike pastas that I want to make. Good idea.
  16. researchmomma
    Yes, I think pasta making is in my future! Sounds so yummy. This gluten-free thing has awakened the cook in me! I am still trying to get the hang of baking gluten free but I don't find baking as much fun as cooking. I have a KitchenAid as well. I will look into the attachments. Have a good rest. Cesky Krumlov is one of our favorites and Kutna...
  17. researchmomma
    I ordered the Celiac Panel from ineedlabs.com and it was 200 dollars for the panel which included EMA. AND I didn't need a doctor to order it. They use LabCorp.
  18. researchmomma
    I have never made pasta before. I love to cook but making pasta seems so daunting and time consuming. However, I see it will be part of my future. I would love your recipe if you don't mind typing it. I have a standing mixer and I thought I could also buy a pasta attachment. Is that true? BTW, I love to travel too. I read that you loved the food...
  19. researchmomma
    Thanks everyone this is very helpful. J isn't an Alfredo fan. Funny she isn't in to rich foods because they make her stomach hurt. Once she has been gluten-free for 3 months, we agreed to try some of the foods that made her feel sick before. I think she will be pleasantly surprised! Good to see you too IH. Thanks again and chime in if you have...
  20. researchmomma
    Do you have a good way to cook gluten-free noodles so they aren't mushy or under cooked? I have had both of these things happen to me. Also, with gluten pasta, I could cook some up on Sunday and stick it in a ziploc and use it during the week for kid's lunches. Is that possible with gluten-free noodles or do they not last long after cooked? I could...
  21. researchmomma
    Zone perfect are gluten-free??? wow, that makes me smile!
  22. researchmomma
    Oh and baked potato
  23. researchmomma
    Great post. My almost 13 year old is a thermos girl. We put taquitos (Delimax) cut in half, healthy choice chicken rice soup (I add some salt), chili (Stags leap it says gluten free on can), fried rice with chicken and mushrooms, chicken shredded with bbq sauce, chicken soup with gluten-free noodles, etc. Fruit or cucumber or edamame gluten-free pretzels...
  24. researchmomma
    HalliesMom, I so get it. I really do.
  25. researchmomma
    Thanks for both replies. I have the cocoa pebbles bars in my cupboard now. It was just so darn stupid.
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