Jump to content

researchmomma

Advanced Members
 View Profile  See their activity

  • Posts

    297

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by researchmomma

  1. researchmomma
    This made me laugh out loud.
  2. researchmomma
    IH, I think you take the cake (gluten-free of course) on this one. I am appalled at the ignorance and the lack of care.
  3. researchmomma
    Our pediatric GI (the Celiac expert in our city) looked at my short, puberty delayed and skinny daughter and said "I can't get my head around all of her symptoms. Her blood work is negative so let's not waste time with a biopsy, let's just see if she has the genes. If no genes, it is not possible to have Celiac". I asked her about the negative IgA testing...
  4. researchmomma
    I really don't understand the reluctance by physicians to diagnose Celiac. I couldn't even get a biopsy for my daughter who has had almost 13 years of symptoms. Maybe you could give this article to your doctor by Dr. Fasano. Here is an excerpt about testing: AR: What about eliminating the need for the biopsy to diagnose celiac disease? AF: Confining...
  5. researchmomma
    I made this last night. It was really good and I froze the left overs (I used crab and shrimp since crawfish are a bit difficult to find where I live). I used gluten free condensed soups. Broccoli Crawfish Cheese Soup
  6. researchmomma
    hi Roda, I had the EXACT same experience with CVS. Clueless. I should go the private route. Good idea. She can swallow pills which is what they first gave her but they were too big and she gagged them back up multiple times. So she did get the liquid. When I called the mfg they said "why are you asking about gluten free". It was so strange...I mean...
  7. researchmomma
    Aha! That is great and I hope she gets him. I am envious!
  8. researchmomma
    OMG! He should be reported for malpractice, tied to a chair and force fed McDs while watching "Super Size Me". UnREAL.
  9. researchmomma
    We were told to add butter to my DDs baby food. I did that for one year and it did help. Now she is almost 13 and addicted to butter and in the 3% for height and weight. However, we have just figured out her gluten issues so I am hoping for an improvement over the next year.
  10. researchmomma
    This is the same thing I have run into. But let me tell you this....even if you change docs within the same group it won't help. They back each other up. My pediatric GI won't let me change docs within the group and it wouldn't matter if I did because she would tell them her opinion and they would back her. It stinks. I really don't get the medical...
  11. researchmomma
    I am on the phone with them right now. They were closed last night when I thought about it AFTER I had given her a dose. I am still a little new to this. I had googled it and Amoxil came up gluten free but it was the version made by GSK. They confirmed that it is gluten free. Thanks!
  12. researchmomma
    my daughter was prescribed oral suspension amoxicillin for pneumonia. It is by West-ward pharmaceuticals and the tutti frutti flavor is making me nervous. Anyone have experience with this one? CVS didn't know. Website: nothing. Thanks!
  13. researchmomma
    You can definitely go gluten free without testing but if you want to know if you are Celiac you need the testing. Is there any State or Federal programs that you would qualify for? Probably not, but thought I should ask. I am no expert on skin care products but someone posted here that gluten is a large molecule and doesn't cross the skin barrier. Honestly...
  14. researchmomma
    My pediatrician told me something once that I keep in mind to this day: if her food equals one good solid meal per day, you are doing great. Keep the fluids up and include some healthy snacks and that is the best you can do. If a child feels your stress about it, they will react to it. I had to just put the food down and stop nagging. It seems to work...
  15. researchmomma
    Great question! I am gluten-free with my daughter who is gluten intolerant (both sides of our family are). I decided to do it with her so I could feel the peer pressure (you wouldn't believe how many of my friends will say "she won't know if you eat it" ), has an ally and I am interested in finding good tasting food for us both. That gas and...
  16. researchmomma
    I am with Skylark. I had to do the exact same thing for a business trip the weekend after we went gluten free. I have made a cupboard gluten free and all snacks and supplies are in there. I also have two gluten-free shelves in the freezer with stuff for smoothies, Udi's pizza crust, etc. I then made a list of what goes in the lunch box. Then I...
  17. researchmomma
    Welcome to the Board. My daughter is non-celiac gluten intolerant. We are seeing that she has malabsorption issues much like Celiac because she has high fecal fat (but we are hoping to rule out some other diseases like Crohn's Dissease too). However, we know she is very sensitive to gluten. So I feel the big difference between gluten intolerance and Celiac...
  18. researchmomma
    I am one of the new ones and this thread has been very helpful. Thank you!
  19. researchmomma
    I see gluten intolerance everywhere. Whether Celiac or not. That is the frustrating thing for me. My doc won't even consider a Celiac diagnosis without the genes despite all the major symptoms and medical proof that some just don't have those two little genes. We don't need a Celiac diagnosis! No big deal, it would have been so refreshing if the GI recommend...
  20. researchmomma
    Thanks Skylark! Her endocrinologist is convinced her issues are GI related but she is friends with the GI so this was a challenge. Now I have proof this is GI with that fecal fat! Yeah. Now I just need to rule out the other diseases associated with fecal fat.
  21. researchmomma
    This made me laugh out loud. I am beginning to think that idiot GIs are almost as common as DQ 2 or 8 in Celiac. hahahah
  22. researchmomma
    These look amazing!
  23. researchmomma
    You are seriously a slacker!
  24. researchmomma
    Skylark: so that fecal result isn't going to be dismissed by this Celiac Expert GI because it was from Enterolab?
  25. researchmomma
    That and her short stature (3rd percentile for height and weight). I could go on and on but you have heard it all!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.