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researchmomma

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Latest Celiac Disease News & Research:

Everything posted by researchmomma

  1. researchmomma
    They didn't rise quite right so I am thinking they will be rock hard. So second choice is Against the Grain baguettes from the freezer or crackers. Hubs is in a CRAPY mood. Just sent the kids to their rooms and he is grumpy. I told him maybe he needed some fresh air. SHEESH.
  2. researchmomma
    Sounds good! I love chicken fingers. It's comfort food to me. And who doesn't like a good sorbet. Yum
  3. researchmomma
    People in the US also have been diagnosed without genes. In a study at UC Irvine they have 800 biopsy confirmed Celiacs and 5% do not have the genes. I emailed back and forth with the sub-investigator on the study and she confirmed this.
  4. researchmomma
    This is a broken link Mushroom.
  5. researchmomma
    Love fest continues...it is Valentine's Day! I heart you back. Happy Valentine's Day all! Baked brie with roasted garlic and baguettes (I am going to bake my first baguette tonight, wish me luck!). My 7 yo boy will have a hot dog instead of that "smushy stuff" on bread. Ciao!
  6. researchmomma
    That was funny! We are just lookin' out for you Irish.
  7. researchmomma
    I am glad that your doctor didn't wait for a "high positive" which means extensive damage is going on. That would have been silly and it happens all too much as seen on this forum. Welcome to the Boards and to a healthier you!
  8. researchmomma
    Yeah, what she said! Aren't you supposed to be limiting your finger tapping?
  9. researchmomma
    I had to chime in. My daughter has had fecal impaction since she was 6 years old (that was when we had the first xray). We had negative blood work (low IgA) for Celiac and no genes so they refused biopsy. We eliminated gluten 6 weeks ago. She always has been constipated and after 6 weeks, she doesn't seem constipated! Her stools are soft. This is brand...
  10. researchmomma
    Avalon, Dr. Fasano has noted that biopsies are not entirely reliable. He is hoping to start a diagnosis procedure where to diagnose Celiac you have to have 4 out of 5 criteria: symptoms, genes, positive blood work, villous atrophy and positive result from the diet. You most likely will meet 4 of the 5 criteria. Maybe that will help your doctor. I would...
  11. researchmomma
    This is probably true, yet my daughter is NCGI (although they refused biopsy due to negative blood work and no genes) and she is off the growth charts (less than zero percentile). They don't think she has ulcerative colitis or Crohn's. I think it is the gluten but we will see. Her hair is starting to grow in and her skin tone went from gray to pink in ...
  12. researchmomma
    Yes, keep eating gluten until all your testing is done. 24 hours probably wouldn't make much a of a difference but I would start eating up all the gluten you can find. ;-)
  13. researchmomma
    Go international Flat Rate at the post office.
  14. researchmomma
    Aha! That was it. Thank you for clarifying!
  15. researchmomma
    OMG! Mitchell loves corn. But I can get him to eat asparagus and green beans but not broccoli. Thank God for multi-vitamins. It's hard because Jordan is a healthy eater and Mitch loves crap. Crap I tell you. Even peanut butter and nutella sandwiches are not good enough. I put good food infront of him and do my best. One day he will get so hungry he...
  16. researchmomma
    So my trick is like the sneaky chef. I use one of those handy hand blenders and put the broccoli in the sauce and blend it up. I use zucchini too. My son is so picky that it is ridiculous.
  17. researchmomma
    They should take her MD away! I wish someone would tell the Today Show she gave out the wrong information. Argh. Don't be freaked out, that is not what I intended. Just rule it out.
  18. researchmomma
    It is so frustrating that a stereotype of "what is Celiac looks like" exists. You are going to have to really push to get tested but if I were you, I would bring in a list of symptoms from this site or another where they list constipation as being a symptom. I would then plead with your doc and say, please just test us. If her blood work was positive...
  19. researchmomma
    Ok, more drooling. Do you mind sharing that recipe for the chicken? It sounds wonderful! So does the spinach. Tonight we are having Pumpkin Shrimp Bisque (sounds weird but it is incredible), salad and a french bread (gluten-free of course) and company! Gotta clean up around here.
  20. researchmomma
    Oh thank God. I thought I was alone!
  21. researchmomma
    While the testing for wheat allergy can be unreliable, it certainly wouldn't hurt to get tested. You may want to talk to your doc about an epipen if you do have an allergy. An allergy can be deadly and with every exposure your body increases its response to the allergen. I think Skylark (pretty sure it was you) gave one of the best explanations...
  22. researchmomma
    Yes, you should be probably tested too. If you have a PPO, you do not need a referral. HMOs typically require referral. Do you know which you have?
  23. researchmomma
    Hi and welcome to the Boards. Many children do not get positive blood work even if they have full blown Celiac. Much like my 18 month old neighbor. When they did an upper GI to look for structural issues or ulcer, they biopsied him because it is hospital policy. He had Celiac and negative blood work. He was in crisis and almost died. If your daughter...
  24. researchmomma
    I definitely want the empanada recipe!
  25. researchmomma
    Oh like a hamburger bun! I don't know what I was thinking. I didn't get much sleep last night.
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