Aly1
-
Posts
228 -
Joined
-
Last visited
-
Days Won
3
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Aly1
-
ARCHIVED Full Recovery, What Worked For Me.
Aly1 replied to B-ry.'s topic in Dermatitis Herpetiformis
Oh and btw, way to go for fully healing yourself! -
ARCHIVED Full Recovery, What Worked For Me.
Aly1 replied to B-ry.'s topic in Dermatitis Herpetiformis
I am relatively new to gluten-free after a decade of severe muscular problems that landed me in a wheelchair, so I found your post very interesting. Pain issues aside (and they were major till I got the chair and just stopped using the muscles) my muscles would tighten up more and more with every contraction. They would feel weak for hours, then days as my... -
ARCHIVED Doc Only Did A Stool Test, It Was Negative
Aly1 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have been gluten-free for 5 months and was under the impression I'd been tested fully for celiac and tested negative. (I get really ill now from gluten so it's a given I have an issue regardless of testing). I discovered at my latest doc appt that he only did a stool test (I know he checked for malabsorption issues and I was ok; not sure if there are any... -
[quote name='IrishHeart' timestamp='1328471325' Everyone has made good suggestions, and I do not disagree with them-- but it is wise to have a baseline level done before supplementing to make sure you are getting an adequate amount. IMHO I know everyone says there is no unsafe level for taking some supplements, but my doctor feels otherwise and...
-
ARCHIVED She Grew
Aly1 replied to stanleymonkey's topic in Parents, Friends and Loved Ones of Celiacs
Wow! Wow! That's great! -
I do get this, i thought i was the only one on the planet . I recently had that for the first time in 25? yrs. I used to get it all the time as a teenager and I noticed it several nights ago. I imagine it's an intestinal spasm? I never have any GI symptoms from gluten but maybe that is one and I didn't just know what it was! I've been gluten-free for 5 months...
-
ARCHIVED Could This Be Dermatitis Herpetiformis?
Aly1 replied to basilicious's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hmmm, that looks like what I get and what I get is atopic dermatitis. I developed allergies to my baby's wipes and whenever I use them that's what I get down the inside of my finger. It's super itchy and before the welts/bumps appear sometimes it stings a little first. That being said, it sounds like you really tied your rash to gluten already? -
Yay, thanks!
-
Happy birthday and thanks for sharing your story. Can you share something else? I'd love a carrot cake recipe!!
-
ARCHIVED Distended Abdomen
Aly1 replied to Dr. Jill's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well I am used to dressing the belly (loose shirts are a staple!) since I've done it all my life! I just discovered I have problems now with onions, maybe that's what was doing it? We'll see... -
ARCHIVED Im Starting To Get P/o
Aly1 replied to heidi g.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hmmm, I don't know anything about leaky gut. Anyone else? -
ARCHIVED Im Starting To Get P/o
Aly1 replied to heidi g.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes! You'd think at this stage it wouldn't surprise me but it's always the foods you least suspect, isn't it. I have to research what's related to onions and make sure there aren't other things lurking... -
ARCHIVED Im Starting To Get P/o
Aly1 replied to heidi g.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hmmm, it definitely sounds like corn could be an issue for you, and thats a common one. Is the soda you drink sweetened with high fructose corn syrup? Like I said before it's common to have a number of sensitivities come to light once you remove gluten, I don't know why. Just last night I had another a-ha moment when I realized I'm having problems with onions... -
Don't ever settle with this illness or "get used to living like this" - you are fighting for your life literally, don't ever give up!
-
ARCHIVED Im Starting To Get P/o
Aly1 replied to heidi g.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I find fructose malabsorption very interesting, but it's different from what I have in that fructose was a go-to for me for many years to avoid glucose and other sugars. It's just with my recent corn issues that I can no longer tolerate it, as it's corn-derived. I post this so that the OP understands that there are a couple different types of sugar intolerances... -
. I've been there. Where you are hungry and overwhelmed and sick of thinking about it, and know that anything you put in your mouth is going to make you feeling lousy. Just this week I figured out my corn-derived sweetener issue and removed it (I am eating muffins out the wazoo bc I was dropping weight like crazy. Now they are totally unsweetened muffins...
-
ARCHIVED Im Starting To Get P/o
Aly1 replied to heidi g.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Absolutely!! Omg, eating sugars messes me up so bad, just as bad as gluten does! Its hard bc I have Such a sweet tooth, but I can't tolerate any of them. Well that's not true - I can eat what diabetics eat sweetener-wise, and do well. (well I could until I developed issues with corn and learned that my go-to sweetener fructose is derived from that and now... -
Well, it seems that a lot of us who go gluten-free become very sensitive to other things in our diet. My doc says when you take the biggest offender out of the picture, other things bubble up to the surface. For me it was corn and anything derived from corn, even sweeteners. I'd been having those for life without any perceived problem, but now that I'm gluten...
-
So there could be a few things going on. You need to test each of the items to see which one is causing it - have a plain potato (yawn, I know) on an empty stomach and just drink water, and see what happens. If you feel sick, you know you have an issue with potatoes. (You should still test each one of the other items to make sure you aren't reacting to any...
-
Was there anything on it? Was it the only thing you ate? What did you drink alongside it? Take any supplements after?
-
ARCHIVED Quick Reply Needed - What Tests For 2.5 Yo?
Aly1 replied to Aly1's topic in Parents, Friends and Loved Ones of Celiacs
Oh he's so cute!! Thanks! -
I tried that. My boobs got bigger but I was still feeling lousy.
-
Yes Beebs, it was mommy forums I was referring to in my earlier post! Hormones...!
-
That is very interesting. Are there foods you are eating more of when you go gluten-free? Have you tried a food diary to narrow down why it might be occurring?
-
Why thank you
