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Minette

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Everything posted by Minette

  1. Minette
    My daughter loves that book too. She was diagnosed a year ago at age 6 and it was perfect for her -- she still asks us to read it to her (or reads it to herself) frequently. I also got The gluten-free Kid out of the library, but I think it was a little old for my daughter. It seems odd that there aren't more choices, with the incidence of celiac skyrocketing...
  2. Minette
    I've been dragging my feet on dealing with possible non-food sources of gluten. My daughter had chronic mild stomachaches, which have mostly cleared up since going gluten-free, and she has never had a noticeable gluten reaction since then. Because she doesn't react (or at least not in a way we can clearly see), it's hard to know how careful we need to...
  3. Minette
    I know this is too late for you, but FWIW... Whenever I go there, I stock up on cookies from the frozen section. In our store, there are some gluten-free things in the regular freezer section, but there's also a whole separate gluten-free section next to the cake counter. My daughter loves the star-shaped lemon cookies. I also sometimes splurge on...
  4. Minette
    (OP here...) My daughter is not allergic to dairy or eggs, and her gut seems to tolerate them fine. But based on her blood testing, the immunologist said she reacted to them very slightly (still within the normal range, but not zero). So he recommended significantly reducing them. It was actually not a celiac or allergy thing at all, but rather an attempt...
  5. Minette
    I don't think it's realistic to be with her always. Yes she is only 3, but my daughter is 7 and she still sometimes eats things she isn't supposed to. (Luckily for us, she doesn't have any obvious reaction -- although that is also partly why she doesn't always remember to say no.) How do you decide when they're old enough? And being with my child all the...
  6. Minette
    We have a mixed kitchen, and it sounds like you're doing everything we do. My guess would be that either he's just sick, his tummy hurts for some psychological reason (moving to a foreign country for 6 months would be stressful for anyone!), or he got glutened somehow outside of the house. That said, I really have no idea if we're glutening my DD, because...
  7. Minette
    My 7 year old DD was diagnosed last spring. She has been gluten free for ~7 months, and now may need to go off dairy and eggs too, at least for a few months. (Her immunologist said she doesn't have to be completely dairy- and egg-free, but to avoid eating them straight up or in large amounts.) She subsists largely on Amy's boxed rice mac & cheese...
  8. Minette
    My DD is not allergic to eggs and they don't bother her stomach, but her immunologist just told us to take her off eggs at least for a few months to give her immune system a rest and help her gut to heal. She is very relieved because I had been making her eat eggs (again, for the protein) but she really doesn't like them.
  9. Minette
    My 7 year old DD has been gluten free for ~7 months. She just had her follow-up appt and her tTg was still high, so we obviously need to figure out where the gluten is coming from. Her iron was also low (I don't know what the number was) and the doctor told us to give her a supplement. Any suggestions? I bought Floravital at Pharmaca today because that...
  10. Minette
    My 7 year old daughter was diagnosed with celiac (by bloodwork and biopsy) in the spring. She went gluten free in June. At her 6-month checkup last week, the doctor did two different gliadin tests (sorry, I can't find the link right now to tell me exactly what they were) as well as tTg. Gliadin tests were both within the normal range (I don't know if they...
  11. Minette
    My daughter's behavior has not changed a whit since going gluten-free (but she never had major behavior issues in the first place -- just normal kid stuff). But I wanted to chime in to say that it did take the constipation a while to resolve. She's been gluten-free for 6 months now and it's gotten better. But her diet is still very limited (world's pickiest...
  12. Minette
    My 7 year old daughter's symptoms were extremely minimal too. She did have very frequent stomachaches, which is why we took her to the doctor in the first place, but they seemed pretty mild. Since going gluten-free 6 months ago, she has shown no sign of symptoms from accidental exposure. However, she had her 6-month checkup last Friday and unfortunately her...
  13. Minette
    I have twins too -- one celiac and one not. Fortunately the non-celiac doesn't mind that we bring rice mac & cheese and a "gluten-free snack sack" for her sister nearly everywhere we go, while she usually has to eat what's being served. She doesn't like mac & cheese anyway. And the celiac would much rather eat her mac & cheese than any unfamiliar...
  14. Minette
    This was our first gluten-free Halloween as well. My daughter (almost 7) did great with it. If there was a gluten-free option in the bowl, she took it. If she wasn't sure, she just took whatever. Then when we got home, I sorted it all out and replaced the gluten ones with gluten-free candy I had bought previously. I was actually really surprised at how...
  15. Minette
    I think my daughter's doctor would consider the change in weight gain to be significant enough (especially combined with your positive response to going gluten-free) that he would be willing to test. Then again, we are lucky enough to have great insurance that lets us do pretty much anything, so we rarely have to work hard to convince doctors to run tests...
  16. Minette
    That's also our situation, so I guess I was taking the same approach. She had very minor symptoms even before going gluten-free, so I can't really rely on that to tell me if she's being affected. But I need to remember that although it's nice that she doesn't have symptoms, the antibodies are really the important thing. Thanks!
  17. Minette
    My almost-7-year-old daughter (dx celiac by antibodies and biopsy) has been gluten free for about 4 months now. The stomachaches are gone and she seems somewhat happier in general. We've been careful about gluten at home and in restaurants (not that we go to many). But I'm sure she must have had some incidental contact with gluten along the way (especially...
  18. Minette
    Those look yummy -- I never thought of that either, but it looks really easy! Probably a healthier cookie for my DD than the store-bought ones (obviously cheaper too).
  19. Minette
    Hmm, I never heard of it described that way, but I wonder if my 6yo daughter is going through a bit of that. (How old is your daughter?) She is very defiant (not all the time, but more than usual), tests limits constantly, and keeps getting out of bed. However, I had just attributed it to being 6, which is a rough age. (Her non-celiac twin sister is doing...
  20. Minette
    I used that same template for my letter to the school. (She's in elementary, so it went to her teacher as well as the principal and nurse. The principal distributed it to everyone else who needed to know.) I did rewrite it quite a bit to make it in my own words (just because it felt more natural to me) and to address various Sarah-specific situations....
  21. Minette
    I know our school has other celiac kids, but they won't tell me who they are. Not that I blame them, I'm sure it's a privacy issue, but I would really like to know. They also have several kids who are gluten-free for other reasons, as well as all the other types of allergies/sensitivities. So dealing with the school has been fairly positive. But I don...
  22. Minette
    Thanks! Pretty much all of that is in her care plan, though I didn't think of specifying how the desks are to be wiped. I do plan on being in the classroom sometimes (though I can't be a room parent) so I can see how things are done. (That's not primarily why I want to be in the classroom, but it will be a good side benefit.) I like the idea of those washable...
  23. Minette
    I'm working on Sarah's care plan with the school district nurse. The school is very understanding and accommodating, but she's also made it clear that they can't promise a gluten-free environment. We are lucky that Sarah seems OK with minor incidental contact with gluten. As far as I know she's never actually eaten any since going gluten-free, but she...
  24. Minette
    That's a good point. Although I cried privately, I tried to present it to DD more as "OK, this is definitely a bummer, but you will feel so much better!" Also, she's always been annoyed at being short and skinny (she didn't hit 40 lbs and move to a booster seat until she was almost 6), so we keep telling her that she will start to grow. The book "Eating...
  25. Minette
    Our school has been pretty helpful, but we live in a very "enlightened" area (Boulder, CO). I did have to explain to the teacher, principal, and nurse all about the issues of cross-contamination (as opposed to just not eating wheat), but they were all very understanding. It's actually not too challenging right now because my daughter isn't (as far as we know...
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