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happygirl

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Everything posted by happygirl

  1. All FDA products are require to list wheat, and cannot hide them in anything, including "flavorings." This leaves rye/barley/oats. There are companies that have policies of not hiding gluten and fully disclosing all gluten sources, so that you don't have to worry about flavorings. If you don't see wheat/rye/barley/oats, then it does not have it hidden...
  2. It mainly depends on two things - the ingredients in each product, and how they were prepared. Even if the products were safe, if they were prepared in/around bread proudcts, they may not be. You know enough to know that cake crumbs, even on the floor, are not safe for someone with Celiac. Its hard to have a mixed household AND be messy...
  3. If you have insurance, you may want to see: https://www.celiac.com/gluten-free/index.php?showtopic=21847
  4. The quote posted is just a very brief abstract of an entire chapter. I don't believe the author is suggesting that someone in your son's condition does not have Celiac. But -for those that do have a heightened response, it may be the mechanism behind it.
  5. While I don't know if gluten is related to your problems or not, if it is, it does (unfortunately!) take longer than a few days to see improvement. Hang in there. It is overwhelming to begin. We've all been there. What can we do to help? Do you need help with foods, label reading, etc? No matter what it is, I hope you find the answer. Best...
  6. "Husband's doctor just informed him that due to the heriditary nature of his condition, all first degree relatives must be tested for it." Open Original Shared Link "Q: Why do my family members need to be screened for celiac disease? When the diagnosis is established in one family member, their first- degree relatives (parents, siblings and children...
  7. Some people with Celiac don't react to tiny amounts. Some do. Some with non-Celiac gluten intolerance don't react to tiny amounts. Some do. Unfortunately, its not a one-size-fits-all answer, especially since we know so little about non-Celiac gluten sensitivity.
  8. Open Original Shared Link Gluten free Lifestyle Webinar: Parenting the Gluten-free Child
  9. The reason that one may be positive and one negative (or variations thereof) is that none of the tests are perfect, and they do not correlate 1:1. If that were the case, then they would only need to run one test - but none of the tests are perfect. Do not go gluten free until all testing is completed.
  10. I feel like these should be read in a Dr. Seuss book or something silly like that. These made me laugh! I am partial to "askmeificaregirl" and "myfavouritecolourisyellowgirl"
  11. Open Original Shared Link The Celiac Disease Foundation lists a State College Support Group, with a phone number and email.
  12. I've tried some of them - good, but I haven't purchased them again.
  13. happygirl

    ARCHIVED Books

    Celiac Disease - A Hidden Epidemic by Dr. Peter Green. Magazine: Living Without Gluten Intolerance Group (GIG) Quarterly Publications (by subscription) The First Year: Celiac Disease and Living Gluten-Free: An Essential Guide for the Newly Diagnosed https://www.celiac.com/gluten-free/index.ph...c=54564&hl=
  14. Do I have to change mine on days when I'm not happy?
  15. Janet, You may want to check out Better Batter gluten-free flour, as I believe it would meet your requirements - they have a TON of bread recipes, and even give directions for converting to a bread machine. (Open Original Shared Link) Ingredients in their mix: Open Original Shared Link Rice flour, Brown Rice Flour, Potato Starch, Tapioca Starch,...
  16. Janet - when you say no corn, can you have xanthan gum?
  17. It is safe - it is derived from rice, corn, or potato. Open Original Shared Link
  18. Hi Megan - good luck and I hope the procedure yields some answers. You may want to talk to the doctor beforehand to make sure that multiple biopsies are taken. Celiac Disease can have 'patchy' damage, and when only one sample is taken (which sometimes doctors do), its often not as accurate. Open Original Shared Link (see: Pitfalls in the biopsy diagnosis...
  19. He's right - the tTG and EMA, esp both being positive, are highly specific/sensitive for Celiac.
  20. DMC - These are the four main, separate Celiac tests: AGA IgA, AGA IgG, tTG IgA, and EMA IgA.
  21. All Uno's should be serving it now, per Open Original Shared Link Liz, is Z Pizza a nationwide chain, or is it just something in your area? I love the gluten-free Alert! It is such a treat to be able to eat safely, when so many times, it seems like we can't.
  22. That is pretty high! All doctors have different perspectives on the biopsy, but the tTG and EMA are pretty sensitive/specific for Celiac. Do you need some info for getting started? Welcome to the board.
  23. GFinDC - I'll send you the same info I sent MM.
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