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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    Open Original Shared Link "Donate Now! Support Atlantic Crossing Celiac Awareness Campaign Missing: 2,700,000 Americans Undiagnosed with Celiac Disease Michele Wallick is sailing 7,000 nautical miles across the South Atlantic to raise awareness for the estimated 2,700,000 undiagnosed Americans with Celiac Disease. Michele was diagnosed with...
  2. happygirl
    "As many as 1 in 133 Americans has celiac disease (inability to digest gluten), but many don
  3. happygirl
    Open Original Shared Link An article by Tricia Thompson, MS, RD, with answers from Dr. Daniel Leffler, MD, MA, Director of Clinical Research at the Celiac Center at Beth Israel Deaconess Medical Center.
  4. happygirl
    You can bookmark them under your favorites....that is what I do for threads that have useful information. Or, you can manually copy and paste into, say, a Word document.
  5. happygirl
    Welcome to the board! Let us know what you need help with - someone here always has an answer...or at least an opinion
  6. happygirl
    I believe you can deduct the difference in cost of a gluten-free item with a regular item. (Regular bread = $2, gluten-free is $5, so the difference is $3 that can be claimed) However, you have to meet the 7.5% threshold for medical expenses to be deducted. If you don't meet that number, you cannot deduct.
  7. happygirl
    Related to general food allergies: Open Original Shared Link Open Original Shared Link Gluten Open Original Shared Link Open Original Shared Link
  8. happygirl
    I'm guessing she meant, specifically Celiac Disease.
  9. happygirl
    You may already have the evidence for a Celiac diagnosis - just a physician who interpreted the report incorrectly. You could look into finding a local Celiac support group, and asking them for a referral to a doctor that is knowledgable about Celiac. No way to know if Dr. F has a long waiting list and takes your insurance unless you call and ask....
  10. happygirl
    I love university researchers!!!!!! Here is an article about the video that the MSU posted. Open Original Shared Link
  11. happygirl
    The ranges are generally specific based on the lab that ran them.
  12. happygirl
    There are a lot of urban legends out there. If they used it (with any regularity), there would be people who have true allergies to wheat/rye/barley/malt (etc) that would be having anaphylactic reactions to it, and we would all know about it.
  13. happygirl
    Yes, I prefer citrus-y, and not exactly bitter.
  14. happygirl
    Those are the right tests for Celiac. The total/quantitative test is not a Celiac test, per se - instead, it looks to see if you are IgA deficient. If you are, then the IgA based tests won't be accurate. If you are IgA deficient, you could have Celiac, but test negative for it. No one test is perfect for Celiac, but the tTG & EMA tests are newer...
  15. happygirl
    Well, hopefully it isn't Celiac/gluten related, and the topical medications help. But, in the case that it doesn't, or you develop other symptoms, you now have the information you need to get the correct testing completed. Good luck!
  16. happygirl
    One of the best things you can do it get followup bloodwork run, to make sure that your antibodies are returning to normal levels. That will help ease your mind to a great degree when you know your body is healing!
  17. happygirl
    After all the weird things that have been discussed on this board, you are really concerned about calling your cat Puppy Girl? Really?! I would be okay with Kitteh-girl or Kitteh-boy.
  18. happygirl
    If you have the tTG IgA done, make sure the total IgA is done. You cannot correctly interpret any IgA based test if you are IgA deficient. No one blood test is 100% specific or sensitive. Columbia's Celiac Center states that, "Several studies have demonstrated that reliance on either anti-tTG or endomysial antibody as a single test will underestimate...
  19. happygirl
    The bloodwork in very young children is not as accurate as in adults. It doesn't mean that all children who have it won't test positive - it just means that they could test negative and still have it. The bloodtests include: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies...
  20. happygirl
    Some of them may have been, or used to, but Kingsford no longer has gluten. Not all charcoal uses (or used) gluten.
  21. happygirl
    And if its brown, it should be named Samantha Or, as I like to call her, puppy girl. You'll find just the right one, Susie.
  22. happygirl
    Well I usually read it online everyday, and get the Sunday WP delivered.
  23. happygirl
    Anything when the WaPo asks readers to write in and come up with witty phrases, etc., is always absolutely HYSTERICAL. They are always great for that.
  24. happygirl
    Your nurses interpretation is not quite accurate. Having the genes doesn't mean anyone has Celiac. 30-40% of the American population has one or both of the genes, but only 1 in 133 (latest estimates), so less than 1% has Celiac. Genes does not equal Celiac. However, the vast majority of those with Celiac (upwards of 95%) have one or both of the genes...
  25. happygirl
    And - many blue cheeses are gluten free.
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