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happygirl

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Everything posted by happygirl

  1. I'm certainly not offended by any of it, don't think anything should be erased, and think that today is a great day for our country!
  2. I'm going pipe in here and in the spirit of this group, and the spirit of the "gab/chat" forum (non-controversial topics), respectfully ask that politics are not brought up here (other than talking about the inauguration, of course!). There are dems, repubs, independents, etc on here. (of course, no one has to listen to me. )
  3. Hi Fawn, Welcome to the board! There are three main national Celiac groups that have local support chapters. Here are their listings. Celiac Disease Foundation: Open Original Shared Link Gluten Intolerance Group: Open Original Shared Link Celiac Sprue Association: Open Original Shared Link
  4. E. is on the steps of the Capitol
  5. Find out what your university's HR policy is on telework. Many companies have strong language that strongly encourage telework, as long as certain requirements are met.
  6. List some of the products/practices that your family and son use. Does he come in contact with wheat products at all (even if he doesn't ingest it)? Personal care products, prescription and OTC drugs, art supplies. What about lunch at school, or at friends' houses? Does he eat out at restaurants, fast food places? Does he have immediate reactions (i...
  7. You are more than welcome, Deergirl. There are so many helpful people on this forum that have taught me so much. Its nice to be able to pass it on.
  8. I knew some of you would find it particularly amusing ;)
  9. Its not silly at all, but it is helpful to understand it. Doesn't matter if the food is imported or not. If its sold in the US and regulated by the FDA, then the law applies. Wheat must be declared and cannot be hidden (starch, flavoring, or any other ingredient). If you don't see wheat, it isn't in there.
  10. Flavorings, etc. can be suspect if: 1. They are not on the lists of full disclosure ( Open Original Shared Link and Open Original Shared Link 2. All FDA products require wheat to be listed (per the 2006 FDA Food Allergen Labeling Law), so it can't be hidden at all, in any form. 3. After that, the concern would only be in non-disclosing companies...
  11. I don't check things that often anymore (in terms of calling companies) because I generally use the same products and brands....and so many products are made by companies that have good labeling practices. I occassionally email companies so that I can have it on file, but I don't remember the last time I actually called a company for a specific product that...
  12. Response from Smirnoff on 1/19/2009: "......All Smirnoff vodkas are certified to be gluten free....."
  13. Its a steep learning curve to adjust to the diet....but then it becomes more of a management issue, on a day to day basis. A good book to read is "Celiac Disease: A Hidden Epidemic" by Dr. Peter Green of Columbia University. Hopefully this will make your life easier with food label reading --- Unsafe ingredients: https://www.celiac.com/articles/18...
  14. I'd bet your glutening came from dining out. Do you have a print out of the companies which are safe? It may be helpful to bring that shopping with you. I have a few folders of my most important stuff, next to my good Celiac books, and then I have a few word documents with info or links, as well as a "Celiac" folder on my favorites list that has information...
  15. If you have a positive biopsy for Celiac, then you have Celiac. The biopsy is the definitive test for Celiac...often referred to as the 'gold standard.'
  16. Emily, I hope your dad is okay!
  17. Congratulations, and its wonderful to hear you are doing so much better!
  18. Eggs are gluten free. There are no rules at this point for what is "gluten free" - so you could see labels on 'naturally' gluten free items - like water, fresh fruits/veggies, fresh/plain meat/poultry, etc.
  19. The tTG IgA and EMA screen are the two most sensitive/specific tests for Celiac. It doesn't mean you don't have it since you tested negative, but the chances are lower given negatives on both (which is why she doesn't think you have Celiac).
  20. Hi ticketlady, The tests that you posted are not for Celiac. Doctors often run the "IgA" test in conjunction with the celiac tests, but the total IgA is not a Celiac test, itself. How did you doctor determine you don't have Celiac? Did you have any tests run that say things like anti gliadin (AGA), tissue transglutaminase (tTG) or endomysial (EMA)?
  21. Unfortunately, there is no way to know that without knowing what blood tests were run and what the results are, and discussing that with your doctor.
  22. It may be helpful to have a follow up appointment to talk with your doctor about the next steps, and get a copy of your bloodwork as well.
  23. Woodrow, have you been back to your doctor to have your Celiac blood panel monitored (since you were diagnosed)? That may help you understand if you still have gluten damage.
  24. If you feel that a definite confirmation of the diagnosis (via biopsy) would help you adhere to the diet, then it may certainly be worthwhile. Which blood tests were positive?
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