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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    When you go to the Whole Foods website, select which store you would like to visit. Once you are on the site for your store, on the left hand side, under "Welcome", click on special diets. Then, click on gluten free. Yes, Whole Foods has their own gluten free bakery (not in the store!) that makes their own line of gluten free bread products. Here is...
  2. happygirl
    I found them at Wegman's and had the same reaction as you did - I can't believe how wonderful they are. Same with the bagels. Absolutely wonderful!
  3. happygirl
    from: Open Original Shared Link The diagnosis of celiac sprue should be considered in any patient presenting with unexpected or unexplained deficiencies of iron, folate, or other elements, or with nonspecific gastrointestinal complaints undiagnosed by conventional studies. The high prevalence in the general population and the grave consequences of misdiagnosis...
  4. happygirl
    Yes. What blood tests were done? Silent Celiac is now believed to be MORE common than "classic" (i.e., symptomatic) Celiac. Presence or absence of symptoms, unfortunately, can't rule in/rule out Celiac alone. Usually. The purpose of the biopsy is to rule in/rule out Celiac. It is recommended that multiple biopsies (4-6+) are taken from multiple...
  5. happygirl
    The endoscopy/biopsy can look for other concerns/issues besides Celiac, as well.
  6. happygirl
    It can take awhile to heal, even on a strict gluten free diet. Was your child biopsy confirmed in February? Is another biopsy planned? What did your doctor have to say about it? Hopefully with a lot of minds, including your doctors, working together, you will get the solutions you need.
  7. happygirl
    1 in 133 haven't been diagnosed. Link to full study, out of University of Maryland: Open Original Shared Link
  8. happygirl
    My opinion - no. But, the presence of the genes and symptoms warrant further investigation. 30-40% of Americans have one or both genes. 1 in 133 Americans (less than 1%) have Celiac. 1 in 56 symptomatic patients has Celiac.
  9. happygirl
    Is there a formal list of who has been 'in charge'?
  10. happygirl
    Below info from: Open Original Shared Link CONTACT INFORMATION www.CeliacCentral.org Editorial Comments: Vanessa Maltin Editor@CeliacCentral.org CeliacCentral Volume 3 Issue 10 November 2008 CeliacCentral Printable PDF Newsletter Articles: NOTE FROM ALICE BEYOND RICE CAKES: At-Home Celiac Test Coming Soon to U.S. Market...
  11. happygirl
    Hang in there. Its a steep learning curve. But you have great resources here at your fingertips to help your mom. I would definitely recommend seeing a good nutritionist too. You are lucky to be in Chicago - they have one of the best Celiac centers in the country. www.celiacdisease.net. Call and ask for help - they can direct you and provide you with...
  12. happygirl
    Open Original Shared Link
  13. happygirl
    Have you had follow up bloodwork (Celiac panel) or another biopsy to see if your problems are still directly Celiac related or something else?
  14. happygirl
    Pasta: Tinkyada (rice based) pasta Coke and Pepsi drink products are all gluten free All first degree relatives, regardless of symptomology, should be screened for Celiac (kids, siblings, parents) Hang in there. Its a steep learning curve. But you have great resources here at your fingertips. My best piece of advice is to learn to effectively...
  15. happygirl
    The post that was spam has been removed. The correct way to deal with spam is the hit the report button and issue a report to moderators. They are able to deal with issues like this quicker.
  16. happygirl
    momtodeap: See this link for more information about oats: Open Original Shared Link Generally, no, oats are not safe for those with a gluten problem, unless they are specialty gluten free oats. Even then, some with Celiac still have problems.
  17. happygirl
    Open Original Shared Link
  18. happygirl
    I would seek a second opinion, as their opinion differs greatly from the medical literature and Celiac specialists. Open Original Shared Link
  19. happygirl
    from Columbia University Open Original Shared Link Q: Is it ok if I ingest some gluten if I do not experience any symptoms? No. The majority of patients with celiac disease experience no symptoms when they ingest gluten, either intentionally or unintentionally. This led to the concept that patients, especially children may grow out of the disease. In...
  20. happygirl
    Tim - wow, what a ride you have had. I'm sorry your sweet daughter has had to go through this. I'm sorry you are having to deal with this, but this board is a great resource , so I'm happy you have found it! You are in VERY good hands at the Celiac Center. There are lots of gluten free replacements. If you could share what types of things you are...
  21. happygirl
    All of your other allergies/intolerances are '8 main allergens' - meaning, by law, they must be listed on the label, and not hidden.
  22. happygirl
    Hang in there!!!!!
  23. happygirl
    Hi 1morething, Welcome to the board! Diabetes and thyroid problems are related to Celiac. Given your health problems, and positive tests, it is probably more likely than you are a Celiac than someone who didn't have the related health concerns. That being said, it depends on which blood tests were run and which were positive. I would talk to your...
  24. happygirl
    Mae - Thanks so much for the update and for sharing what you learned. Its very helpful to us all.
  25. happygirl
    LA - see my PM.
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