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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Doctors do this to so many people. It really is a shame. If you do decide to test, the blood tests need 8-12 weeks of eating gluten and the endoscopic biopsy needs 2-4 weeks of daily gluten. The blood tests are: tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA AGA IGA and AGA IgG Neuropathies could be causing that symptoms...
  2. nvsmom
    Welcome to the board. I would say that the majority of celiacs are not positive in all of the celiac tests done, that's why (good) doctors run so many. The tTG IgA is considered to be one of the most reliable for diagnosing celiac disease, and is, by far, the test most widely used. The tTG IgA (tissue transglutaminase immunoglobulin A) has a specificity...
  3. nvsmom
    LOL Waiting is, most definitely, one of the hardest parts about getting a diagnosis.
  4. nvsmom
    Excellent! Good for you. I'm glad you had fun.
  5. nvsmom
    Try posting in our dermatitis herpetiformis (dh) board. There are a lot of experienced and smart people over there who will be able to help you more with skin biopsy questions (all I know is that the area beside the rash must be biopsied) and give you good advice. https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/
  6. nvsmom
    As Karen linked, how much pizza you eat will be determined by which test you are doing. Blood tests require about 3 months of gluten/pizza, and the endoscopic biopsy requires 2-4 weeks. The (area beside the ) rash biopsy just requires a rash, I think.
  7. nvsmom
    That sounds really good! I hope the last few weeks of gluten aren't too hard on you.
  8. nvsmom
    It is probably negative. You did not have the deaminated gliadin peptides tests done though (DGP IgA and DGP IgG). We have a few members who only were positive in one of those tests, so it may be a good idea to get those done if you suspect you might have celiac disease. All first degree family members should be retested for celiac disease every couple...
  9. nvsmom
    Good luck! Many labs and doctors will only do the tTG IgA test, my doctor being one of them I hope you find answers.
  10. nvsmom
    As far as I know (and I could be wrong), Hashimoto's id not a cause for an elevated deaminated gliadin peptides (DGP) test. Hashi's can cause slightly elevated tTG IgA results, but the DGP tests is more about a reaction to gliadin (gluten). I don't think Hashi's wil cause a false positive. My guess is that you have celiac disease and have not been as...
  11. nvsmom
    I hope your daughter feels better soon! Are you pursuing further testing for your 8 year old?
  12. nvsmom
    Yes, the anit-gliadin antoibodies (AGA) tests are the older tests. Their sensitivity is not as good as the newer DGP tests but they do still catch some celiacs. As you can see from this report (page 12), the sensitivities of the AGA tests are around 17-100% and <70-91%. The sensitivity of the DGP tests (deaminated gliadin peptides) is a fair bit better...
  13. nvsmom
    I wouldn't worry about it as long as you were able to get it clean. Only if the plastic is really scratched up with gluten in the grooves, would I consider getting rid of it... But I've never had a steamer.
  14. nvsmom
    Good luck!!
  15. nvsmom
    Those with dh tend to have more false negative blood tests, so you could be correct that it is celiac disease. Perhaps it is a wheat allergy? The tingling and swelling sounds a bit like an allergy.
  16. nvsmom
    As far as I know, the large descending colon (the one on the way "out") is on the left side. That's usually where constipation pain is although if you get really backed up, I wouldn't be surprised if it can affect the right side too. I get ovarian pain for about 6-12 hours when I ovulate. Could that be it? Hope it goes away soon!
  17. nvsmom
    Sounds pretty good! I hope it is a breeze.
  18. nvsmom
    Good luck! Make sure they take at least six samples. Let us know how it goes.
  19. nvsmom
    Spolumbo's is a local gluten-free sausage - love it!
  20. nvsmom
    I tend to like bacon and eggs, or coconut flour pancakes for breakfast, but I eat a lot of other foods too: trailmix (nuts, raisins, seeds, coconut, cacao), coconut yogurt, raw veggies with tzaziki of hunnus dip, pepperoni sticks, cheese, coconut cream in my coffee, smoothies and leftovers. I rarely rarely eat cereal, bread or muffins for breakfast. I think...
  21. nvsmom
    I live in a city of over a million and still don't eat out. I don't like to take the risk.
  22. nvsmom
    That does look interesting! Yeah, many doctors don't realize that about the blood tests, and if you are going to use blood tests to monitor gluten-free compliance, the DGP tests are the better ones to use. My docs kept using the tTG tests on me and I could tell that they didn't believe I was 100% gluten-free because I was still positive well past 6 months...
  23. nvsmom
    I've not actually read that before, bt then again, I'm not widely read on allergies/ IgE reactions.... Something new for me to look up.
  24. nvsmom
    My pleasure. It really is hard to stay patient - I didn't do well with it. Keep in mind that if it is osteoarthritis, the gluten-free diet may not help as much, although it still may as inflammation levels in your body drop. My arms and shoulders are much better but my knees continue to grind away and my hips aren't happy either. OA often isn't...
  25. nvsmom
    My doctors told me my arthritis was due to aging too... I'm 41 now. More and more doctors believe that all arthritis (autoimmune and osteoarthritis) may both be linked to the immune system. Unless you've injured a joint, they now think that it shouldn't be wearing out... It's that darn inflammation again. Anyway, back on topic. I had arthritis...
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