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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    If the biopsies are negative, and you still suspect gluten, it may be non-celiac gluten sensitivity (NCGS) which presents with most of the same symptoms as celiac disease. Consider going gluten-free for a few months regardless of the results - It could help. Best wishes.
  2. nvsmom
    I've seen 2-4 weeks for the endoscopy, and anywhere between 1/2 to 4 slices of bread per day with 1-2 being the average. If you go with a shorter gluten challenge, have him eat more gluten. If you are doing the 4+ weeks, then you can go with less.... But no guarantees. The endoscopy can miss up to 20% of celiacs, and this seems to be because of the way...
  3. nvsmom
    Yep. It sounds like you talked to someone who doesn't know how to bake. The flour in a wheat tortilla is the same used in bread! LOL Have a cinnamon bun, a big juicy pub burger and a beer for me. I've been missing burgers lately. Perhaps try to eat the majority of your gluten later in the day so your mornings are a bit better. Good luck...
  4. nvsmom
    The endoscopy can miss up to 1 in 5 celiacs, but on the flip side, I catches 80+% of all celiacs. If you only had the endoscopy done, with no blood tests, and it was negative, then you probably do not have celiac disease. A negative biopsy means you did not have a lot of microscopic damage to the intestinal villi. It is possible to have early stages of...
  5. nvsmom
    Celiac symptoms wax and wane. I am confident that I have had celiac disease for my entire life but I wasn't always sick. Some days were better than otheres, some weeks were worse than other weeks, and some years were not bad at all. When I was feeling poorly, it wasn't always after eating gluten, sometimes it seemed pretty random... probably why it often...
  6. nvsmom
    ...Sometimes I think it would have been so much simpler if I was born a man.
  7. nvsmom
    I doubt this is related to celiac disease directly but I wonder if it is autoimmune related, so I thought I'd post it here. I have jawline acne that is driving me nuts. I almost always have at least one or two zits there and they range in size from small whiteheads to volcanoes that can cast a shadow. I have had it for about 5 years or so, maybe more...
  8. nvsmom
    No, mine was a blood test. I pricked my hand and the blood went into a tiny tiny vial - almost like a diabetics blood glucose test.
  9. nvsmom
    Wow, you've looked into a lot. He's lucky to have you! I'm not a medical expert, and am only commenting on his situation from my own research and experiences. That being said, at first glance I would worry about his kidneys. The doctors are happy with them? The mucus, crystals, creatinine, high anion gap, and others seem to point at a kidney issue...
  10. nvsmom
    I think most people around here can relate to your struggle. Those who had a stomach ache for a month, were diagnosed with clear results, and trained on the gluten-free diet, aren't the ones who come here... Sadly, we are the majority of celiacs.
  11. nvsmom
    Welcome to the board. Your poor son. He's had quite a go of it. Those Gliadin Ab tests he had done (AGA IgA and AGA IgG) are not very sensitive tests, they can miss more than 30% and up to 83% celiacs respectively. Take a look at this report (page 12) from the World Gastrolenterology Report on celiac disease: Open Original Shared Link You can...
  12. nvsmom
    I'm lucky because my house is almost completely gluten-free. Hubby has some granola, oatmeal, and a few sauces, otherwise that is it for gluten. I do usually clean up with just a dish cloth and soapy water (and sometimes a disinfecting spray). I change my dishcloths a couple of times per day (it's me and three boys home all day so the clothes get used...
  13. nvsmom
    Water and soap is best. Those wipes kill bacteria. Gluten is just a protein and doesn't need killing... although it would be nice if it was the case. You want to wash away the gluten particles, effectively you need to remove them.
  14. nvsmom
    Yes. Lab normal ranges can vary quite a bit. I've seen from 0-4 up to 0-20. My lab range was the 0-20, and everything above a 20 was considered high. If you have 19.8, you are not a celiac but 20.2 probably is. My result was stated at greater than 200 so I have no idea what it actually was - could have been 201 or 1000. The normal range usually...
  15. nvsmom
    I hope he continues to be well if he will be eating a normal diet. Best wishes.
  16. nvsmom
    The test I took was not for genes - we might be talking about different tests. You link didn't work for me so I just assumed it was for the Biocard test which I know is available in Canada (since I used it). The Biocard test I did was for anti-tissue transglutaminse (tTG IgA) which is positive when the body attacks the small intestine. It also showed if...
  17. nvsmom
    Welcome to the board. The tTG IgA is about 95% specific to celiac disease meaning that only 5% of (weak) positives are caused by something other than celiac disease (diabetes, thyroiditis, crohn's, colitis, liver disease, infection). You have quite a few symptoms of celiac disease, and your ttG IgA is over double the normal upper limit, so you probably...
  18. nvsmom
    In some people, two weeks on the gluten-free diet is enough to see improvements in some symptoms, although not all. I had less bloating and fewer stomach aches within days of going gluten-free. Headaches and a few other symptoms were getting better at about a month gluten-free. After a year gluten-free, my arthritis improved. It really depends on the...
  19. nvsmom
    I did the home Biocard test a few years ago. I suspected celiac disease but hated going to doctors so I was just sticking my head in the sand and ignoring the situation. A friend discovered the Biocard tests were on sale at a local (Alberta, Canada) health / whole food store so she pushed me to buy one. I increased my gluten intake for about two weeks...
  20. nvsmom
    Yes. Get tested asap. If you are gluten-free for a long time, you will need to resume eating gluten for 2-3 months prior to testing! That is a long time to make yourself sick for a diagnosis. Better to stay on gluten for a week or so until you can get the tests done, and then go gluten-free (unless you are also having the endoscopic biopsy done). These...
  21. nvsmom
    I discovered that I had Hashi's when when we were running (confirmation) tests on celiac disease -I had the doctor run extra tests for thyroid problems . LOLI agrre that you might as well check them both at once. Good luck with it!
  22. nvsmom
    Progress is good.
  23. nvsmom
    I agree completely.
  24. nvsmom
    Welcome to the board. Bartfull has lots of info listed. I tend to buy Glutino, and Udi's for baked goods and cookies. Bragg's makes a nice soy sauce. I use Biolife or Go life bouillon... or something like that. I usually shop at Superstore (Canada) and they have a (small) natural foods aisle that makes finding gluten-free foods a bit easier. Otherwise...
  25. nvsmom
    It sounds like you'll be walking through the door well prepared this time.
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