
icm
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by icm
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ARCHIVED Board Upgrade - Please Report Bugs
icm replied to Scott Adams's topic in Board/Forum Technical Help
I can no longer email messages to myself. Personally I don't like the new layout as much as the one I saw a few months ago. -
ARCHIVED Australians And New Zealanders Hellooooooo :)
icm replied to Aussie Peg's topic in Introduce Yourself / Share Stuff
Pure Bred is really good, I much prefer it over Country Life. Nicer packaging and less nasty ingredients. -
ARCHIVED Why I Still Eat Bread...
icm replied to SandraLAVixen's topic in Coping with Celiac Disease
This is where I would recommend a test from Cyrex Labs and Enterolab. I believe that the gluten sensitivity should be tested for before it is treated. It is especially difficult to test for gluten intolerance once gluten is no longer present. Thought I should add: If you are still eating gluten and feeling unwell (despite negative test results... -
ARCHIVED Positive Bloodwork But Negative Biopsy In My 7Yo Need Advice!
icm replied to M817's topic in Parents, Friends and Loved Ones of Celiacs
Have you asked for the FULL and complete celiac panel? When I say FULL I mean this: AGA (anti-gliadin antibodies) TTG (anti-tissue transglutaminase antibodies) EMA (anti-endomysial antibodies) DGP (anti-deamidated gliadin peptide antibodies) I would recommend you do all of these blood tests (especially the DGP which is highly specific and sensitive... -
ARCHIVED Outgrowing Celiac
icm replied to lipreader's topic in Parents, Friends and Loved Ones of Celiacs
There are at least three (3) factors required for celiac disease to be present. Presence of genes Presence of decreased intestinal integrity (i.e. something that alters the bacterial balance in the intestine) Presence of gluten I believe that there is a fourth factor as well that I won't go into for now. What's important to realise is that some... -
Have you assessed your intestinal permeability by doing a "leaky gut" test? Sounds like leaky gut syndrome is most likely your issue. Are you taking any probiotics. What about 5000IU a day of Vitamin D3? How about a banana a day? You might just need some time to heal from the damage.
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ARCHIVED Australians And New Zealanders Hellooooooo :)
icm replied to Aussie Peg's topic in Introduce Yourself / Share Stuff
The new country life bakery loaves are great. 'Tis a shame they had to add soy and maize as it seems lots of people do badly with these. Also to all Australians and New Zealanders who have a relative with TYPE 1 DIABETES: An opportunity awaits. The people conducting a trial for preventing type 1 diabetes are in desperate need for people to have a blood... -
ARCHIVED Do You Ever Cheat On Your Gluten Free Diet?
icm replied to karinp's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Anything above 10 milligrams (mg) of gluten (per day) is unsafe. Cheating once a month with a piece of cake is far too often if you want to stay healthy. You will almost certainly encounter gluten sometime in the future, due to it's abundance in our food supply. Since you're new to the diet, you will need time to heal and yes you will probably consume... -
Good question. I've heard that it's helpful with children w/ASD but not sure what would happen in your case. Any other thoughts?
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I've heard that many children with Autistic Spectrum Disorder have IBS. I've noticed that over the years, I've always felt queasy after eating carrots. From what I've read carrots are high in lutein type substances. Lutein sensitivity sounds like it's common in ASD. I've only just heard about this issue myself and it seems like it may just fit the...
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ARCHIVED Auto-Immune Disease:
icm replied to 1desperateladysaved's topic in Coping with Celiac Disease
Have you tried avoiding A1 milk? From what I've read and seen around the place it appears that the BCM7 protein fragment (peptide) might actually be key to a host of autoimmune diseases including celiac. Yes, gluten is the trigger for celiac, but maybe not the cause?? -
Here's an interesting video that talks about the benefits of 5000IU of vitamin d3 a day. I'm doing the protocol and never plan to have the flu shot in the future.
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I still feel like complaining and publicising what happened. Where do you think I should start. I want to let go of it, but feel it needs to be made known to the public what they did since celiac is a valid condition and needs to be taken more seriously, especially by a top university in our country! Let me know what you would do if you were to complain...
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Have you considered casein intolerance? I started an interesting thread here: A lot of people who thought they were lactose intolerant over here in Oz found out it was bcm7 (an opiod in A1 milk) that was causing problems.
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ARCHIVED Does Bcm7 (A Milk Opiod) Initiate Celiac Disease?
icm replied to icm's topic in Food Intolerance & Leaky Gut
I looked at the information provided in the second link, Skylark. It appears as though (at least according to Keith Woodford) there may be some industry bias here too. The professor explains here: from Open Original Shared Link from Open Original Shared Link I'd appreciate your thoughts on this, as it seems there are problems with some... -
That's what I would have thought, too. But when they say 'in particular reference to Semester 1, 2012', I believe that my most recent (which are my worst) results will be taken to account. I think you're right about the 'maturity' aspect as I definitely have/had some growing up to do... Thank you for your kind words, and sharing...
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ARCHIVED Broke Hungry College Kid
icm replied to glutenfreecollegekid's topic in Introduce Yourself / Share Stuff
If you are living in a catered residence, whatever you do, please don't make the same mistake as me: -
ARCHIVED Does Bcm7 (A Milk Opiod) Initiate Celiac Disease?
icm replied to icm's topic in Food Intolerance & Leaky Gut
To the best of my understanding, Ireland has one of the highest rates of celiac disease in the world. They also drink lots of A1 milk as shown on a page at betacasein.org Casomorphins seem MUCH more powerful than gluteomorphins, too. People in France eat lots and lots of bread (isn't it the most difficult country in the world when it comes to finding... -
Earlier today, I received an email from the University.
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Thank you all for your support. A lot has happened since I last responded to this thread (including Government decisions, helping out with fixing up our recently bought house), and more. My mum was right about my needing to go through disability services, as I actually did qualify for a disability allowance and have just attended my first appointment...
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ARCHIVED How Important Is An Endoscopy If Blood Test Is Positive?
icm replied to tommysmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Isn't that a condition where you can't eat anything? I'm terribly shocked that gluten could trigger this... -
Thank you so much for your encouraging words!!! I'm not sure about Sydney (or NSW for that matter) but I know in Queensland there have been some real issues with employment (as of the last couple of months). Many people already with skills are jobless and even my parents and others in our family are half wondering about the stability of their own jobs...
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ARCHIVED Am I Likely To Be Celiac?
icm replied to icm's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac apparently isn't any more common with autism than with the general population though. I have autism and what is more common from what I've heard is gluten (and sometimes dairy, soy, etc.) sensitivity. -
ARCHIVED Am I Likely To Be Celiac?
icm replied to icm's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My mother thought the biopsy/gastroscopy was a joke because a lady in the local area who was quite well known in the community was convinced she had celiac disease. She did the celiac blood tests and they came back completely negative. She then had her first endoscopy. It was completely normal (Marsh 0). She insisted that the specialists were wrong and... -
Thank you for your kind words. It has been a struggle. I will definitely try and stay near home where my mum can cook. She's gluten-free as well. I'm in the land 'down under'. I thought that when going down south for uni, at one of the best universities in the country, I'd be fine and the kitchen staff would have it together. It was a smaller residential...