Jump to content

guest134

Advanced Members
 View Profile  See their activity

  • Posts

    186

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by guest134

  1. guest134
    I think the unfortunate reality is many doctors are not willing to do much unless you come in with horrid symptoms, if they would listen to the patient and do appropriate tests to catch early autoimmune I think the diseases in themselves would be of little issue. If treated early there are few AI's that can really hurt you, aside from Lupus, MS and type ...
  2. guest134
    Yes, I completely agree with that but unfortunately a lot of doctors don't. The correct view would be to say in of itself it does not have a high correlation with celiac (remember JUST celiac, nothing about NCGI etc..). It is very useful in a case where someone has an elevated TTG, with an elevated TTG and a negative reaction to gluten (positive AGA) it is...
  3. guest134
    Intolerance/allergy is what I meant. Yes it can go down in celiac as well as gluten intolerance when gluten is stopped but that does not correlate with celiac in of itself as it does not cause damage, it is simply a negative reaction to gluten that is not specific to celiac. For this reason some doctors are under the impression it is not helpful at all,...
  4. guest134
    I have noticed this not only on the University of Chicago's site but many other medical sites as well that this forum references. Sometimes I get the feeling that there are multiple different people with very different opinions filling out the FAQ at Chicago University's website. They say that the gliadin antibodies are not useful for CELIAC disease...
  5. guest134
    Em, I have always had the same thoughts as you, which is what I stated in my post. They have never been able to prove a direct link rather than someone with celiac developing cancer later in life, which is absolutely not fact on whether or not celiac caused it or if it was merely just a coincidence. Of course, chronic inflammation can increase issues...
  6. guest134
    I forgot to ask that actually, exactly how bloody is the diarrhea? Is it a bit on top of the stool and on the toilet paper or are we talking a significant amount here? I just assumed with bloody diarrhea you meant a significant amount.
  7. guest134
    There are two types of false positives and I am not sure which one you are talking about: 1- Standard testing error: You test with the max being 20 and you are 21, next test and subsequent follow up you are back under negative, that would be an instrumental error. That can happen, especially with antibodies were a machine or person is diluting them, minor...
  8. guest134
    That is correct, make sure you get the deamidated versions too.
  9. guest134
    Gemini, it is great that you feel that way with yourself however the poster has expressed her own concerns on validating it to her family and doctors. We also don't know what tests she did have, what if it was the antigliadin IgG and it came back barely over positive? Not every case is clinically similar to yours so saying this happened to you so it will...
  10. guest134
    I am 22, not actually diagnosed yet (still might not have it) but it can come up at any age. Bloody diarrhea is not typical of celiac (usually no blood). My suspicion earlier was with a still relatively low positive TTG without gliadin IgA positivity could be indicative of crohns disease. The fact that your diarrhea is bloody makes me lean to this more...
  11. guest134
    That sucks, sorry to hear about all of your negative experiences. I too had some issues when we were questioning my thyroid, I had to go on the internet and come back with the right tests to get accurate results, luckily I am fine in that regard. Just out of interest, would you mind sharing your TPO, thyroglobulin and Free T levels upon diagnosis?
  12. guest134
    "Elevated platelets are one of many abnormal laboratory findings that can be expected in celiac disease" Open Original Shared Link That is from live strong, I can't tell you how credible that site really is but most info I have seen on it so far seems pretty accurate.
  13. guest134
    Some people make celiac out to be worse than it is. It is a disease, and having a disease sucks, we would all prefer to be disease free, BUT as far as diseases go this is easily managed. You don't need annoying medication and gluten free is healthy and a lot of people would be better off without it to begin with. -5 of the 6 food groups are naturally gluten...
  14. guest134
    The tissue transglutaminase (ttg) is a marker of damage in the small intestine, you are getting in the range were it becomes very specific for celiac. It can be low positive in other cases but your numbers would likely be in the 10-30 range to consider that. Antigliadin is outdated though, you were negative on it. Going to need some more info on your...
  15. guest134
    I feel the need to state once again, I do think that she has celiac (well obviously it makes her very sick) I was just saying that YES false positive blood work is a possibility, but not in her clinical case. There is a reason they say the clinical presentation is very important in diagnosis, she has it, positive blood work, it sounds good to us but NOT to...
  16. guest134
    Why was it so hard to find hashimotos? It is 5 simple blood tests and you either have it or you don't, unlike celiac it is very easy to diagnose.
  17. guest134
    And once again I will stress that your tests are very unlikely false positive, you get sick after eating gluten, seems obvious to me.
  18. guest134
    Tom, I just want to make sure she at least has every possibility of an accurate diagnosis and some people do heal a lot quicker than others, especially depending on how much damage there was. It is like having someone with a endomysial of 1:10 vs 1:3250, you can tell who is going to heal quicker. Tax breaks are in the UK as well. Open Original Shared...
  19. guest134
    Well, false positives do happen but I think in your case we can forget about that, you are obviously getting sick after eating gluten and if that does not show celiac I don't know what does. A biopsy to confirm celiac would be beneficial for a few reasons, one would be the tax breaks people with celiac get, two you can't ever get drafted into war but...
  20. guest134
    False positives are more common than false negatives but that is dependant on many things. The EBV virus has been proven to increase Tissue Transglutaminase antibodies separate of celiac, did you have those tests around the time of the virus? EBV has also been known to cause nasty after effect symptoms that can last even years after the virus and antibodies...
  21. guest134
    Yeah, I was planning on giving it a try either way, after all my research it really does not sound like a hard diet at all.
  22. guest134
    Wow, you scarily fit the celiac description, you really need to be tested. Unfortunately it will cost you money to get the celiac blood panel, I assume you live in the States, I am not sure of the costs down there. If you can pay out of pocket, I would, a situation like this can be life changing and would be well worth the money. Here are the tests you...
  23. guest134
    If bedside manners meant the difference between having a job and not, 90 percent of doctors would be unemployed. I always find it funny how as a financial planner for a big bank I would lose my job in a second if I treated my customers the way doctors do their patients. If I rolled my eyes whenever a client was confused about some finance term and said "here...
  24. guest134
    If you were to have any disease on this planet I would say celiac is the one to have, no annoying medication and the diet is natural and healthy, heck a lot of people would live much healthier lives on the diet. Be happy you caught it early unlike some poor members on this forum who now have several other autoimmune diseases because of missed diagnosis for...
  25. guest134
    You could bet your bottom dollar that any post that comes from me is based off medical fact and not just my opinion, I would never share an opinion that I cannot support with medical link, that would be insane and wrong. I always stress the importance of knowing what you spread before you spread it, if I see a member say something on this forum I need my...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.