Lisa

Welcome and let us know how we can help you.

Hi,

I was just diagnosed on Thursday with Celiac. I started the gluten free lifestyle on Saturday (after a delicious homemade lasagna and bread on Friday - my "last supper" of my old life!). Anyhow, my doctor had advised me to also cut out all dairy for the time being as it can be hard to digest while the villi are damaged from the gluten. Darn it - he didn't mention how long to expect to be off dairy, before reintroducing it. I've never had a problem with dairy before, and we don't think I do now. I'm curious for people who cut out dairy at first and then reintroduced it, about how long did you wait, and how did you know you were ready to reintroduce it?

Thanks,

Nicole

How luck for you to actually have a doctor who knows what he's talking about. Your healing coincides with how diligent you are to the diet. 100% will expedite healing.

Dairy can cause the same type of symptoms as gluten does, but not always and not for everyone. But, it may be hard to tell the difference and gluten has high priority right now.

As recommended I would eliminate gluten and dairy and gradually reintroduce dairy after a few weeks, or longer. In the beginning it's really hard to be 100% and goofs are common.

Do your best and learn from this site. If we can help you, just ask.

This may or may not be because I just switched to a new web browser, but anyway...

When I click on a topic, I'm only seeing the first message, followed by a list of the remaining messages; then I have to click on each individual message to read it. I used to just see all the messages on one page, and I'd like to get back to that as the default behavior. Does anyone know how to change this in my settings?

Jeanne

Look in the upper right of this post. Click on options in the white box. And, then click on "standard" and that should bring you back to "normal"

Will the Enterloab test just tell me if I am truly sensitive to gluten?

Maybe, but you already know that. I have never seen any independent studies as to the accuracy of Enterolab's testing.

I am not arguing with you and I certainly do not want to deminish your illness.

I don't know where you live, but ANY products sold in the US, imported or not, by law is required to list wheat if added.

If you buy pepper in the US, and wheat is not listed as an ingredient, it is not in there. There may be some weird, funky pepper blend available somewhere that may contain wheat to prevent caking, but wheat still must be listed.

Hello and Welcome:

It doesn't matter what order you test. What matters is that you continue to eat gluten for the optimum accuracy in testing. BTW, a stool test cannot indicate Celiac.

This is the panel to request from your doctor:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Keep yelling until you get an answer.

I'm sorry, but manufacturers DO NOT add wheat to pepper, and certainly undisclosed.

I think as you travel through gluten free land, your reaction will vary in strength and time. What used to be a reaction with 20 minutes of eating, could become a 24 hour reaction time. It is very typical. It makes it difficult to determine the point of gluten.

Many people here depend on the information found here. Accuracy is paramount.

on the label it says it is but, when i read it, it has "Herbs and spices, and spice extract. so is it gluten free?

Well, it doesn't have wheat as an ingredient. When in doubt, you should call the company. Is there a website on the label?

Here is a result when I googled "Mr. Spice - gluten Free"

Open Original Shared Link

Welcome! This is a great source and glad you found us.

OK, so many questions and certainly understandable.

Many of us have been predisposed to Celiac Disease and it often takes a trigger to kick in. Mine was stress, others, illnesses, pregnancies...

IBS stands for "I B Stumped" as it is not a diagnosis, just a classification where no known cause can be found. Do not stand for a diagnoses of IBS!

Mild villi blunting is generally a diagnostic earmark for Celiac Disease. It can be cause by other things, but with your combined symptoms, most likely you have Celiac Disease.

Your blood work may or may confirm, although they are not as accurate as we would like at the present time.

If you choose to pursue further testing, yes, it is imperative to continue to consume gluten. But, there is no guarantee that you blood work would support your biopsy result. Blood work can rule Celiac in, but it cannot rule it out.

You certain could go on a complete gluten free diet and if you have a positive dietary response, it also will support a diagnoses. Should you have Celiac Disease (and I think you do, although I am not a doctor) and if you continue to consume gluten, it will continue to damage your small intestines until you remove that toxin from your system.

I may not have answered all of your questions. This is a great site. Take a walk around, there is much to learn.

Hi,

I was diagnosed with celiac disease 16 months ago...based only on blood test! I'm not feeling better..probably worst but I know I'm on a strict gluten-free diet, no cross-contamination, no hidden gluten anywhere... Now I want the biopsy, I have an appointment with a specialist next week for a gastroscopy first...while I'm still on a gluten-free diet. The only thing in my blood test who was positive for celiac disease was my IgA more I don't anything more specifics.

Somebody told me my IgA could have been positive for Candida! Can somebody help me with this..I don't know anything about it! I just took a questionnaire on the Internet and it said if my score was over 183 it mean I probably have it...my score was 253! I tried the spit test - even thought I really don't know if it's reliable or not- and it was positive! I have almost all of they symptoms the had mentioned!

I hope somebody can help me with this??

Thank you

Julie

This this information may be helpful:

Open Original Shared Link

I would get a copy of your blood work. Some test are more specific to Celiac as noted in the above link.

If you are going to pursue further testing for Celiac Disease, I strongly suggest that you eat gluten. Otherwise, it would effect your accuracy.

Nothing it just says black pepper.. might just be a CC issue.

Doubtful, yet oddly possible. There is no guarantee that anything is 100% gluten free or free of contaminants.

Elsewhere would be more likely to have caused your issues.

-- since an immune response is a secondary symptom of celiac disease (primary being inability to digest wheat gluten)

gfb1 -

I am very intrigued by this statement. Would you kindly expand on this. Is this the sequence for Celiac Disease (autoimmune) as well, or an allergy (immune)?

Things are changing quickly, but as always use caution.

Our local Farm Fresh recently advertised "Farm Fresh Gluten Free Fried Chicken". WELL, (I said to myself), I have to check this out. As expected, I ended up chewing out the manager for their stupidity.

Never heard of Gluten Free Cafe, but sure could use a good frozen enter in the next few weeks.

DH result as a response to gluten intake and develops on the skin . Celiac Disease results as an autoimmune response in the small intestines. They have many common denominators, but yet are different.

Hi, okay it made me enter my address to sign up and phone number. But I don't want them displayed on my profile. Please help. I have already tried going in and deleting the info. Won't work. What am I doing wrong?

Thanks!

Tiffany

Tiffany,

Your address and telephone on your profile can be seen by only you. No one else can see it. I see mine, but I can't see others.

Not to worry.

Just be careful, I am fairly certain I had a gluten reaction to their black pepper that came in a duo combo with salt. I thought Walmart was one of the "good" companies..

What is listed as ingredients, other than salt and pepper?

Hi.....Have a extremely sore throat and picked up some popsicles to sooth it....does anyone know if these are safe to eat on a gluten free diet?

I would not think that popsicles would contain gluten, but what are the ingredients? Always read the ingredients.

Recovery time varies widely. It is not unusual to last three weeks or longer depending on the extent of your damage.

Gluten can be very tricky. Have you checked you vitamins, meds, lip balms, lotions or scratched pots and pans or shared toaster.

Dairy products are often recommended to eliminate. It can create the same type of symptoms of gluten, but it can be re-introduced later after some healing has taken place.

Perhaps a food diary may help pinpoint a problem.

Mike

No reaction to my hard shell bean taco. So what is at PF Changes? I love food like that and there are a couple in Raleigh where I live. So tell me what is good.

Not Mike, but this might be helpful:

Open Original Shared Link

Hi all!

Whenever I go eat PF Chang's I get my food to go. My usual order is Lettuce Wraps and the Chang's Spicy Chicken. And maybe some cake. The other night I went there with a friend, and we ate in the restaurant. I ordered the Lettuce Wraps and they were served on top of some crunchy white noodles. When I order the Lettuce Wraps to go, they are not served with those noodles. So what are those noodles? Are they rice? I ended up feeling very sick that night and all day yesterday, and I have no idea if it was the Lettuce Wraps or the Spicy Chicken. This is the first time I've ever gotten sick from Chang's since going gluten-free. My Lettuce Wraps definitely looked different than my friend's - hers were much darker and richer looking.

Thanks!

They are rice noodles and most likely not on your to-go meal is because they would get soggy.

There is always a chance for a mix-up, but I have yet to hear of one. If you notice, even the plates that they serve are different shaped to aid the waitstaff.

Try Rice Chex - they took the malt out of it.

I love Dove, milk chocolate Promises anytime of the year.

I was initially diagnosed with the endoscopy and followed up with blood work. I never had any symptoms other than anemia.

This recent endoscope and biopsies came back "normal".

I never noticed any real relief from the diet because I didn't have any of the gastro symptoms to begin with. The anemia was improved, but I was also put on iron supplements.

I had followed the diet very, very strictly for the 1st year, although I admit it was a learning process. Then, on and off for the next year and then definitely for the last 6 months, I did not adhere to the diet much at all. I have the anemia back currently, but the ulcerative colitis can account for that, couldn't it?

Many people here have not had the digestive symptoms similar to you. Some are asymptomatic and have no symptoms what so ever. That's the hard kind because you don't know when you have kicked in that autoimmune response when your body attacks itself.

Do you have any other symptoms, joint aches, headachs, balance issues, thyroid issues, diabetic issues? The reason for the strick gluten free diet, when diagnosed is to prevent other, more serious complications down the road.

What was the reason for you follow up endo?

I don't know if you were misdiagnosed, because you have not given us the details. And, I am certainly glad that you are seeking answers to your questions, because a diagnosed person with Celiac Disease, not adhearing to the diet, is only asking for trouble down the road.

I hope you find your answers.

I was diagnosed a little over 2 years ago with Celiac Disease. At that time, I was also diagnosed with Ulcerative Colitis. For about the last 6 months, I have not followed the gluten-free diet. I had an endoscope and a colonoscopy done yesterday and the only thing that came of it was the diagnosis of the ulcerative colitis, again. I asked about the villi and the celiac and my gastro doc said that it was normal. I asked specifically if the villi were flat or affected and he said no...perfectly healthy. So, does this mean that I do not have celiac disease then? Isn't the endoscope/biopsy the confirming factor?? Thanks for any advice.

How were you diagnosed with Celiac Disease initially?

Did you have a recent biopsy with your endo? Many times damage is not visible.

hi im 16 and i think i mite have some sort of intolarance,

my doctor thinks its a virus but i really dont think thats the case ,

ive had these symptoms for about 2 months now , and im getting pretty fustrated on whats wrong with me

pain in joints

muscle twitching , (annoying)

weak

irritable

tingling in legs and arms

i usally get these symptoms a a hour or so after eating

but no stomach problems!!

could this be a intolarance ?

Hi Tyrone and welcome,

I'm not a teen, but I have a suggestion. If you think it's food related, begin a food diary. Write down everything that you eat and then record your reaction. That might help narrow down so maybe you can pinpoint a certain food that makes you feel ill.

I would also look into getting a metabolic blood panel to check on all your mineral and vitamin levels. When they are off you can get the type of symptoms that you are having.