Lisa

I found that when my Celiac kicked in, I was extremely more sensitive to liquor that ever before, regardless of whether the alcohol was grain based or not.

I don't know why and I have not seen any research to link, but it caught me by surprise once or twice.

Are these the same test strips that ShayFL tested (at her own expense) for us and determined a lack of accuracy?

https://www.celiac.com/gluten-free/index.ph...52627&st=75

RESULTS ARE IN!! Read EVERYTHING I write here BEFORE you make up your own mind.

Bottom Line For Me: A Waste of Money

Why? Both food items that were known gluten-free tested NEG as expected. Whole Wheat pasta tested High POS as expected. BUT the Wheat based Soy Sauce tested NEG. The WHOLE point of these tests is to detect minute amounts of gluten (they claim down to 10 ppm). Wheat based soy sauce was expected to be POS, but was NEG. That makes them completely useless to me. I am looking for "hidden" gluten, so the fact that it gives whole wheat pastas a POS doesnt help me at all. The fact that it gives a NEG for items that are known gluten-free doesnt help me either (they were the controls in this experiment). The fact that it gives wheat based soy sauce a NEG, makes them (the test strips) dangerous for me to depend on.

Many in here have gotten sick from soy sauce. Many.

"One drop of soy sauce or strand of spaghetti sets off an auto-immune reaction, and antibodies start destroying the nutrient-absorbing capability of the gut."

"regular soy sauce contains 40-60% wheat"

Here are my pictures:

www.terracegallery.com/Nongluten1.webp

www.terracegallery.com/Nogluten2.webp

www.terracegallery.com/Nogluten3.webp

www.terracegallery.com/Gluten1.webp

www.terracegallery.com/Gluten2.webp

www.terracegallery.com/Gluten3.webp

I followed the directions to a T. I am the most anal person in the world. Yes, I admit it. I cleaned the surface area, washed my hands and put on new gloves for each test. I used their little measuring spoon to put the exact amount into the extraction solution (.05 g). I then shook the vials for 2 minutes. I set a timer. Sat them down and left undisturbed for 5 minutes. Again I used a timer. Took exactly 10 drops from the upper 1/8 inch (clearest sections per the instructions) and put them into the test tube and then put the EZ Gluten test strip in arrows pointing down and left undisturbed for 10 minutes. I timed it. I removed the test strips and compared them to the results card.

The instruction pamphlet says: For FOOD TESTING ONLY (They must have a reason for this). It also states that a negative result does not necessarily indicate a complete absence of gluten in the product being tested. This statement alone makes them worthless to me. The whole point is to detect gluten. It goes on to say ELISA Technologies, Inc. makes no warranty of any kind, either expressed or implied, except that the materials from which its products are made are of standard quality. (i.e. they do not guarantee that they are accurate, only that they use quality materials to produce the strips.) Buyer assumes all risk and liability resulting from use of this product.

MIKE: I know you REALLY believe in these test strips and I suggest you KEEP believing. There is great power in what one believes. If you feel they are valid and work for you, they are likely to continue to do so. But for me - NO - they did not prove valid.

EVERYTHING I have written here is the result of my own experiments with 4 EZ Gluten test strips using 2 known gluten foods and 2 known gluten-free foods. My OPINION is that they are a waste of money. You might have a different experience with EZ Gluten test strips. You might draw a different conclusion/opinion than I did. It is entirely up to you to decide whether these test strips are right for you. I have nothing against nor any affiliation with ELISA Technologies, Inc.

Welcome,

I am assuming that you have not gotten the results of your colonoscopy/endoscopy? Testing is far from reliable unfortunately.

Continue to try the diet and be as diligent as possible. For you to have digestive difficulties to the level you have had, it will take some time to heal, if gluten is in fact your problem. Gluten can be very tricky and hide in surprising places. Lighten up on your dairy or eliminate it all together. That will help the healing.

We have all felt your frustration and walked in your shoes. This is a great place to learn. Take a walk around.

Thank you for posting this and especially updating some older information.

Celiac Disease is developed through an autoimmune reaction to the proteins found in wheat, barley, malt and rye.

Due to the damage caused by this autoimmune reaction, dairy often can be problematic. It may resolve with the removal of gluten from your daughters diet after some time, if in fact she has Celiac Disease.

How much wheat and/or gluten is in her diet currently?

I recently had a problem with a safe tea that I believe was imported. So for me I choose to be very careful with any product that only has an address of a distributor. I think those are made overseas and don't fall under the strict guidelines of US foods.

It didn't used to be a problem for me but now...

As Peter mentioned "FDA labeling rules apply to all foods sold in the United States, regardless of the country of origin of the product or any ingredients in the product. Wheat would have to be disclosed. "

Lovely new cut Patti. Quite lovely! Peeeerfect for that Texas humidity. You'll find curls you never thought you had.

Angie,

I'm so glad that things look promising and hope you have answers soon. I'd love to see an updated picture. I was there when she was born. and wanted to name her "Goose Guhlia"

Hugs to you both!

Yes, in the US is is derived from corn. No gluten worries.

Discussions are great, especially when they are in a direction for the common good.

We have an annual Super Bowl Party (no matter who is playing ).

This year:

Blazing Saddle Stew - Layered Salad - Corn Bread - Pamela's Choc. Cake

Quarters Kielbasa

Ground beef

Green Peppers

Onion

Baked Beans

Kidney Beans

Chili Beans

Tabasco

Worcestershire Sauce (L&P)

Ground Mustard

Serve with Sour Cream

(Please read labels for Beans)

Everything is very easy and can be done ahead of time so you can watch the game, or in my case, the commercials.

This recently crossed my path. Hopes this will help:

Throwing Your Child a Gluten-Free Birthday Party

By Abby Schwartz, NFCA Volunteer Staff Writer

As 2009 begins and the family calendar slowly fills, one date is marked boldly in our home: my daughter's birthday. Granted, hers is not until November, but we will go through many ideas and plans before settling on a party theme. Because she has celiac, food is a critical factor. Luckily, there are endless options for throwing a smashing birthday party complete with delicious, gluten-free food.

A Piece of Cake

Let's start with the most important element: the cake. Years ago, for our daughter's fourth birthday, we ordered a cake from a gluten-free bakery, drove two hours round-trip to pick it up, and carefully transported it to the site of her gymnastics-themed party. It was a masterpiece: layers of vanilla cake sandwiched with fluffy mascarpone cheese (think tiramisu) and topped with whipped cream, rainbow sprinkles and chocolate shavings. The kids took a few bites and left the rest of their $40 cake to run off and do more tumbling on the mats.

After that year, we started baking our own birthday cakes. Two of our favorite gluten-free mixes come from Miss Roben's (www.allergygrocer.com). We love their chocolate and yellow cake mixes. Both are simple to make with a few added ingredients. We bake them in a sheet pan and frost them with ordinary, brand-name frosting like Duncan Hines or Pillsbury. Be sure to check the labels, as some are gluten-free and some are not. My daughter loves to help with the baking and decorating. She adds sprinkles, chocolate chips or chopped nuts to the iced cake and the result is delicious. The kids love it, too, and never suspect they are eating something gluten-free.

One bonus to using a gluten-free cake mix: it can easily be used for cupcakes. Check the package for baking times and ladle the batter into a lined pan. They are a little harder to frost than a sheet cake, but make a great treat to send in to school with your child if his or her birthday falls on a school day.

Party Entrees

To kids, the food at a party is one of the least important details. I confess to having spent too much time over the years at other children's birthday parties worrying about my daughter's feelings being hurt when she can't eat the pizza or other entr

Distilled vinegar in the mustard should not be a problem, regardless of the source, and the mustard seed does not contain any offending gluten.

YOU DONT HAVE TO DRINK BEER IN COLLEGE!!!!!!!!!!!!

No you don't, but when questions are asked here, we try to be helpful and answer them.

The post you quoted was over four years old. Rossi has most likely graduated and off into the world. Bet he figured it out.

Depending where you are in healing on the diet, it could be dairy. After some time you might be able to reintroduce it and be fine with it.

I haven't seen anything. Have your checked their website?

Open Original Shared Link

I don't know when this listing has been updated, but it's a good base to follow. If it's inaccurate, it would err on the conservative side.

I don't believe that chalk should be an issue. But, then, I don't remember the subject ever coming up before.

There are currently several active threads regarding the SCD Diet. Please make you replies to this link:

https://www.celiac.com/gluten-free/index.php?showtopic=54285

They are definately NOT gluten free. My fiance and I were so bummed when they clarified that the "syrup" had wheat in it. Sorry guys!

Please read this entire thread (as indicated on page one):

Glucose, glucose syrup, caramel and similar ingredients have no detectable gluten, even if derived from wheat.

.

New food labelling laws require food labels to list all ingredients derived from wheat, rye, barley and oats.

This does not mean that all ingredients derived from these sources actually contain gluten.

So, it is a legal requirement that the source be declared, but remember that ingredients derived from wheat that are gluten free are:

dextrose, glucose and caramel colour (additive 150).

Unfortunately, there is no "typical" reaction. Everyone is different, but this does sound like a gluten response. The BRAT Diet helps sooth the tummy - banana, rice, apple sauce and tea/gftoast.

I would strongly recommend, if possible, you get your family tested. It might be important down the road when they are older and independently living. Or start to test the one with the most severe reaction first.

Hope everyone feels better soon.

Thank you for posting this. Yes, ALL Pepsi Products are gluten free.

We live in a small town and I have gone early to ask to view the ingredients. All appeared fine. It's not all that healthy, but what would a good movie be without popcorn.

Every threater may be different. Always check first.

Hi,

I have recently been diagnosed Celiac (6 days ago) and am wondering if anyone knows of a support group locally in the North Shore

Boston area? Also, interested in suggestions for restaurants, nutritionists, doc's.

Welcome,

Here is a link to some good people in your area. If they can't help you, they can direct you to those who can:

Open Original Shared Link

It you take a walk around this place, you will find that this is the best support group you can find anywhere.

If we can help you in any way...

Open Original Shared Link

Here is McD's nutritional listing to include ingredients.

McD's and Chic-fil-A are the only fast food places that I will eat. I choooose carefully.

After over three years on the diet, I consider myself in "remission". Reaction time can vary and sometimes, not at all.

In my case, I believe it would take repetitive glutenings over an unknown period of time, for me to be symptomatic with digestive issues. I have reacted within a 24 hour period with neuro symptoms, that would make me a bit unpleasant to be around. I could clear a house within minutes.

You may be symptomatic, just not the way that you expect to be, gluten sensitve or with Celiac.

But,as Jess said, more research is needed.